Past Events › Laurence-Moon Syndrome

Events Search and Views Navigation

April 2018

Bardet-Biedl Syndrome UK’s Family Conference

April 20, 2018 - April 22, 2018

Hilton Hotel Northampton, 100 Watering Lane
Northampton, United Kingdom + Google Map

£20

Family Conference 2018 This conference will be an opportunity for BBS and LM families to meet and network with one another. Attendees will also be able to learn about the latest updates in treatment development and research from renowned BBS and LM experts. Parents will also have the chance to consult with medical professionals about their most immediate concerns regarding day to day management of Bardet-Bield and Laurence-Moon syndromes. Registration is free for: Individuals who have BBS 17yrs + Under…

Find out more »

+ Export Events

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Past Events › Laurence-Moon Syndrome

Events Search and Views Navigation

Events Search

Event Views Navigation

April 2018

Bardet-Biedl Syndrome UK’s Family Conference

Rethinking What It Means to Live With Acromegaly

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

“Shades of Psoriasis”: Plaque Psoriasis and Sharing Your Story

Understanding RSV: Why Combatting Ethnic and Age-Related Health Disparities Could Improve Outcomes

We Need Equity and Diversity Within Rare Disease Research

DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics - Part 1

Bridging the Diversity Gap in Healthcare

Congratulations to the 2023 Recipients of the Diversity in Lupus Research Awards!

Welcome to Study of the Week. We go in-depth and select a study we think is of particular interest, discussing details, explaining its importance, who may be impacted and lots more!

Let’s Work Together!

Keep Up to Date

Learn More