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June 2018
The United Leukodystrophy Foundation’s Scientific Symposium and Family Conference
The 2018 Scientific Symposium and Family Conference This conference will consist of a scientific symposium program that will allow medical professionals and researchers to present the latest research in the field of leukodystrophy. There will also be a separate family conference that will allow members of the leukodystrophy patient community to network, share stories, and collaborate. Registration Family Conference Adult members/non-members/teens: $100/$150/$50 Children (12 and under): FREE Scientific Symposium: $300
Find out more »June 2020
United Leukodystrophy Foundation’s Virtual Family Conference
The 2020 Virtual Family Conference June 25-27, 2020 This event features live streamed webinars featuring leukodystrophy researchers and relevant content for leukodystrophy patients and their families. The conference will also feature pre-recorded videos and text resources. In light of the ongoing coronavirus pandemic, the event has transitioned from an in-person conference to a virtual one. Don't miss this opportunity to build community and learn about the latest leukodystrophy news and management strategies. Registration for this year's event will be free.…
Find out more »November 2021
Alex, The Leukodystrophy Charity’s Digital Community Weekend
Digital Community Weekend November 20-21, 2021 Alex, The Leukodystrophy Charity (Alex TLC) provides invaluable support and information to people affected by a genetic leukodystrophy. We are holding a digital community weekend on Saturday 20th and Sunday 21st November. Our weekend will include presentations about condition management, access to medicines, newborn screening, updates on existing and new research initiatives. There will be a professional round table, bringing research companies and medical professionals together to share information and encourage collaboration and progress. You…
Find out more »February 2024
European Reference Networks for Rare Neurological Diseases’ Newborn screening in leukodystrophies by Lucia Laugwitz
'Newborn screening in leukodystrophies' by Lucia Laugwitz February 20, 2024 Educational webinars on rare neurological, neuromuscular and movement disorders jointly organized by the European Reference Networks for Rare Neurological Diseases (ERN-RND) and Neuromuscular Diseases (ERN-EuroNMD) and the European Academy of Neurology (EAN). To register, click here.
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