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July 2017
August 2018
The National MPS Society’s 2018 Symposium
The 2018 MPS Symposium August 2-4, 2018 People who attend the symposium can expect to learn about that latest in MPS research as well as workshops about best practices and latest management advice. The event will feature both an academic, research focused track and a family oriented track so that everyone can get the most valuable experience that suits their needs. All MPS patients can register for FREE. Registration Regular: 5/31-7/18 On-site: After 7/18 Adult family member: $250/$325/$375 (one day/regular/on-site)…
Find out more »November 2018
GlobalData’s Orphan Drugs: A Review of Key Development Opportunities Webinar
The Orphan Drugs: A Review of Key Development Opportunities Webinar Interested in learning the latest about orphan, rare disease drug development? Well this is your opportunity. The orphan drug field has been getting more crowded as of late and shows no signs of slowing down. This presentation will feature presentations from GlobalData's Journalist Team. This webinar will focus on drug development for transthyretin amyloidosis (TTR), mucopolysaccharidosis (MPS), and atypical hemolytic uremic syndrome (aHUS). Registration for this event is FREE.
Find out more »February 2021
Angel Aid Cares’ Spiritual Self-Care Workshop with Padma Gordon
Spiritual Self-Care Workshop Join embodied mindfulness Counselor Padma Gordon for a morning filled with discussion and meditation. The workshop includes a warmup grounding meditation followed by journaling and a conversation about the meaning of spirituality and the role that it plays in your life. Participants of all religious faiths and spiritual backgrounds are welcome. This is a recurring series held each Tuesday at 10 AM PST. Click here to sign up.
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