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March 2022
The MDS Foundation’s 2022 Webinars: Advances in our Understanding of the Management of MDS
Webinar: Advances in our Understanding of the Management of MDS March 26, 2022 with Michael Keng, MD, University of Virginia, Emily Couric Clinical Cancer Center, Charlottesville, VA Attend this webinar to learn about the latest advancements in management and understanding of myelodysplastic syndromes (MDS), as well as how they will impact treatment. To register, click here.
Find out more »May 2022
The MDS Foundation’s 2022 Webinars: Precision Medicine in MDS and AML
Webinar: Precision Medicine in MDS and AML May 21, 2022 with Rory Shallis, MD, Yale School of Medicine, New Haven, CT Attend this webinar to learn about the role of personalized, precision medicine in the treatment of myelodysplastic syndromes (MDS). Learn about the importance of the latest treatment strategies and the role of genetic testing. To register, click here.
Find out more »The Aplastic Anemia and MDS International Foundation’s Aplastic Anemia, MDS, and PNH Virtual Support Group
The Aplastic Anemia, MDS, and PNH Virtual Support Group May 28, 2022 AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with aplastic anemia, MDS and PNH. The group is hosted by AAMDSIF and will be monitored to ensure the privacy and safety of our participants. To register, click here.
Find out more »June 2022
The Aplastic Anemia and MDS International Foundation’s MDS Virtual Support Group
The Aplastic Anemia and MDS International Foundation's MDS Virtual Support Group June 11, 2022 AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with MDS. The group is hosted by AAMDSIF and will be monitored to ensure the privacy and safety of our participants. To register, click here.
Find out more »The Aplastic Anemia and MDS International Foundation’s Pediatric Parents Virtual Support Group
The Aplastic Anemia and MDS International Foundation's Pediatric Parents Virtual Support Group June 14, 2022 This virtual support group is designed to support pediatric parents whose children have been diagnosed with aplastic anemia, MDS, PNH and PRCA. The group is hosted by AAMDSIF and will be monitored to ensure the privacy and safety of our participants. To register, click here.
Find out more »The Aplastic Anemia and MDS International Foundation’s Transplant for MDS Virtual Support Group
The Aplastic Anemia and MDS International Foundation's Transplant for MDS Virtual Support Group June 15, 2022 AAMDSIF is pleased to announce that we will host a support group for patients who have undergone transplant or who are considering this as a curative option for bone marrow failure disease. The group is hosted by AAMDSIF and will be monitored to ensure the privacy and safety of our participants. To register, click here.
Find out more »The MDS Foundation’s The MDS Widow: Sharing and Moving Forward Webinar
Webinar: The MDS Widow: Sharing and Moving Forward June 23, 2022 Rochelle Ostroff-Weinberg, widow of Robert Weinberg, invites you to join her and other MDS widows on International Widows’ Day. To register, email Rochelle ([email protected]) by noon on the 23rd.
Find out more »The Aplastic Anemia and MDS International Foundation’s Aplastic Anemia, MDS, and PNH Virtual Support Group
The Aplastic Anemia, MDS, and PNH Virtual Support Group June 25, 2022 AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with aplastic anemia, MDS and PNH. The group is hosted by AAMDSIF and will be monitored to ensure the privacy and safety of our participants. To register, click here.
Find out more »The MDS Foundation’s 2022 Webinars: Becoming a Partner in Your Care: MDS Support Group
Webinar: Becoming a Partner in Your Care: MDS Support Group June 25, 2022 with Sara M. Tinsley, PhD, APRN, AOCN, Moffitt Cancer Center, Tampa, FL Attend this webinar dedicated to myelodysplastic syndromes (MDS) patient support. Learn about self-care, the challenges faced by patients and caregivers, and how to become a partner in your own care. To register, click here.
Find out more »July 2022
The MDS Foundation’s 2022 Webinars: Living With Chronic Fatigue: I’m Not Just Tired
Webinar: Living With Chronic Fatigue: I'm Not Just Tired July 23, 2022 with Brandi Reeves, MD; Lineberger Comprehensive Cancer Center, UNC-Chapel Hill School of Medicine, Chapel Hill, NC Attend this webinar to learn about the challenges of chronic fatigue, the most common symptom of MDS. In addition, learn about blood transfusion pros and cons, as well as the complications of transfusion dependency. To register, click here.
Find out more »September 2022
The MDS Foundation’s MDS Patient and Family/Caregiver Forum
MDS Patient & Family/Caregiver Forum September 10, 2022 Presenters: Paul J. Shami, MD and Afaf Osman, MD, Huntsman Cancer Center Ashley Moncrief, RN, BSN, Vanderbilt University Medical Center Whether you are a newly diagnosed patient, a long-term survivor, or a caregiver this event will give you the opportunity to learn from experts about treatment therapies and strategies for patients and caregivers LIVING with MDS. To register for free, click here.
Find out more »October 2022
The MDS Foundation’s MDS Patient and Family/Caregiver Forum
MDS Patient & Family/Caregiver Forum October 15, 2022 Presenters: Sanjay Mohan, MD, Vanderbilt University Medical Center Ashley Moncrief, RN, BSN, Vanderbilt University Medical Center Whether you are a newly diagnosed patient, a long-term survivor, or a caregiver this event will give you the opportunity to learn from experts about treatment therapies and strategies for patients and caregivers LIVING with MDS. To register for free, click here.
Find out more »November 2022
The MDS Foundation’s MDS Patient and Family/Caregiver Forum
MDS Patient & Family/Caregiver Forum November 5, 2022 Presenters: Stephen Chung, MD Yazan Madanat, MD Madhuri Vusirikala, MD Amber Thomassen, AGPCNP-BC, AOCNP Whether you are a newly diagnosed patient, a long-term survivor, or a caregiver this event will give you the opportunity to learn from experts about treatment therapies and strategies for patients and caregivers LIVING with MDS. To register for free, click here.
Find out more »The MDS Foundation’s MDS Patient and Family/Caregiver Forum
MDS Patient & Family/Caregiver Forum November 19, 2022 Presenters: Jeffrey J. Pu, MD, PhD, The University of Arizona Cancer Center Laura M. F. McPheeters, FNP-C, The University of Arizona Cancer Center Whether you are a newly diagnosed patient, a long-term survivor, or a caregiver this event will give you the opportunity to learn from experts about treatment therapies and strategies for patients and caregivers LIVING with MDS. To register for free, click here.
Find out more »April 2023
The MDS Foundation’s Psychological Well-Being and MDS Webinar
Psychological Well-Being and MDS April 22, 2023 In this webinar, Dr. Hermioni Amonoo will share her tools for taking care of your mental health and emotional well-being following a cancer diagnosis. Speaker: Hermioni L. Amonoo, MD, MPP; Assistant Professor, Psychiatry, Harvard Medical School; Associate Program Director, Psychiatry, Brigham and Women’s Hospital To register, click here.
Find out more »July 2023
The MDS Foundation’s Updates from the 17th International Congress on MDS: Promising Treatment Advances
Updates from the 17th International Congress on MDS: Promising Treatment Advances July 29, 2023 In this webinar, Dr. Moshe Mittelman will provide an overview of the most promising research presented at the 2023 17th International Congress on Myelodysplastic Syndromes impacting MDS diagnosis, prognosis, and management. After the presentation, there will be a Q & A session for participants. Speaker: Moshe Mittelman MD; Professor of Medicine and Hematology, Tel Aviv Sourasky Medical Center To register, click here.
Find out more »August 2023
The MDS Foundation’s CHIP and CCUS, Precursors to MDS Webinar
CHIP and CCUS, Precursors to MDS August 19, 2023 There have been marked developments in the understanding of clonal hematopoiesis based on findings of somatic mutations in genes known to be associated with MDS. This has led to newer terms to describe precursor states to MDS, such as clonal hematopoiesis of indeterminate potential (CHIP) and clonal cytopenia of undetermined significance (CCUS). This webinar will provide an overview of these conditions which may allow earlier diagnosis, modify surveillance for MDS, and…
Find out more »September 2023
The MDS Foundation’s MDS Patient and Family/Caregiver Forum
MDS Patient & Family/Caregiver Forum September 9, 2023 Los Angeles, CA Many patients and caregivers have never met another person diagnosed with MDS until they connected with them at one of our forums. If you've never attended one, you won't want to miss this opportunity to meet others and to learn more about MDS, current treatments, and emerging therapies from leading experts. Not only will you find answers, support, and hope for MDS, but you will learn tips and strategies…
Find out more »October 2023
The MDS Foundation’s MDS Patient and Family/Caregiver Forum
MDS Patient & Family/Caregiver Forum October 7, 2023 Philadelphia, PA Many patients and caregivers have never met another person diagnosed with MDS until they connected with them at one of our forums. If you've never attended one, you won't want to miss this opportunity to meet others and to learn more about MDS, current treatments, and emerging therapies from leading experts. Not only will you find answers, support, and hope for MDS, but you will learn tips and strategies from…
Find out more »The MDS Foundation’s MDS Patient and Family/Caregiver Forum
MDS Patient & Family/Caregiver Forum October 14, 2023 Nashville, TN Many patients and caregivers have never met another person diagnosed with MDS until they connected with them at one of our forums. If you've never attended one, you won't want to miss this opportunity to meet others and to learn more about MDS, current treatments, and emerging therapies from leading experts. Not only will you find answers, support, and hope for MDS, but you will learn tips and strategies from…
Find out more »November 2023
The MDS Foundation’s MDS/MPN Overlap Syndrome Webinar
MDS/MPN Overlap Syndrome Webinar November 4, 2023 In this webinar, Dr. Angela Fleischman will explain myelodysplastic syndromes/myeloproliferative neoplasms overlap syndrome with an overview of the different features between MDS and MPN and their overlap and what these conditions mean for patients. Peter Löffelhardt will provide an overview of the Global International MPN Scientific Foundation. Attendees may listen to the simultaneous translation into Spanish of this webinar presented in English. After the presentation, there will be a live Q & A…
Find out more »December 2023
The MDS Foundation’s MDS Foundation Breakfast Symposium
MDS Foundation Breakfast Symposium December 8, 2023 In conjunction with the 65th American Society of Hematology Annual Meeting and Exposition The 2023 Symposium will focus on recent advances in the diagnosis, classification and management of patients with myelodysplastic syndromes (MDS). The program combines recent data, application of new tools and evidence on current practice with information that might be applied in the future. To sign up, click here.
Find out more »March 2024
The MDS Foundation’s 3rd Regional Symposium on Myelodysplastic Syndromes
$225
3rd Regional Symposium on Myelodysplastic Syndromes March 15-16, 2024 Kyoto, Japan The 3rd Regional Symposium on Myelodysplastic Syndromes will take place from 15-16 March 2024, in Kyoto, Japan. MDS is a community of international medical professionals who share the common goal of exchanging knowledge about Myelodysplastic Syndromes. This symposium will offer an opportunity to enhance the latest science and advancements in MDS, and a chance to bring the MDS community together to connect and collaborate. To register, click here.
Find out more »April 2024
The MDS Foundation’s MDS Patient and Family Forum
MDS Patient & Family Forum April 6, 2024 Baltimore, MD Many patients and caregivers have never met another person diagnosed with MDS until they connected with them at one of our forums. If you've never attended one, you won't want to miss this opportunity to meet others and to learn more about MDS, current treatments, and emerging therapies from leading experts. Not only will you find answers, support, and hope for MDS, but you will learn tips and strategies from…
Find out more »The MDS Foundation’s Move for MDS Community Walk: Tampa, FL
Move for MDS Walk April 7, 2024 Tampa, FL Register for your local Move for MDS community walk, fundraise and show support to those effected by MDS by joining the Myelodysplastic Syndromes Foundation in our fight against MDS. 100% of every $1 donated goes towards increasing awareness and accelerating critical research. A friendly 5K for everybody! Run, walk, wheel, or any movement you prefer JOIN THE MOVEMENT! Register Walk your 5k (3.1 miles) Celebrate your success! Use our fundraising &…
Find out more »
