Clinical Implications of Genetic Mutations in Myelodysplastic Syndromes April 17, 2021 Speaker: Rami Komrokji, MD; Moffitt Cancer Center Join this webinar to learn the latest about the genetics of myelodysplastic syndromes. Hear about the role of mutational data in the clinical management of the condition, with implications for treatment, diagnosis, and risk stratification. To register, click here.

Transfusion Dependence and Transfusion Support in MDS May 8, 2021 Speaker: Lewis R. Silverman, MD; Icahn School of Medicine at Mount Sinai Join this webinar to learn a general overview of transfusion dependence in patients living with MDS. Learn about the risks and benefits of blood transfusion. Gain a full understanding of transfusion dependence and have your most pressing questions answered. To register, click here.

Becoming a Partner in Your Care: MDS Support Group June 5, 2021 Speaker: Sandra Kurtin, PhD, ANP-C, AOCN; The University of Arizona Cancer Center This free webinar is geared to supporting patients and loved ones. Listen in to learn how to become a partner in your care. Learn more about self-care and the emotional, physical, and social challenges faced by caregivers and MDS patients. Connect with your community, learn, hear ideas, and have your questions answered. To register, click here.

Que son los sindromes mielodisplasicos? Guillermo Montalbán Bravo, MD, MD Anderson Cancer Center Este seminario les va a proveer como se determina el diagnóstico de MDS, se estará enfocando en los subtipos y la manifestación de MDS. Comprendiendo el diagnostico de MDS y los detalles de los diferentes tratamientos, y las respuestas a las preguntas más comunes serán desarrolladas. Avances en el tratamiento de los sindromes mielodisplasicos.  Guillermo Garcia-Manero, MD, MD Anderson Cancer Center Además, estaremos proveyendo los tratamientos y…

Outcomes for High-Risk MDS Patients Undergoing Transplant vs. Standard Non-Transplant Therapies August 7, 2021 Speaker: Erica D. Warlick, MD, University of Minnesota Medical Center This free webinar provides an overview of allogeneic hematopoietic cell transplant as a treatment for high-risk MDS. This approach will be compared with other common treatment approaches, such as hypomethylating agents and other novel agents. To register, click here.

Webinar: Focus on Understanding Clinical Trials and How to Identify the Right One for You January 22, 2022 with Andrew M. Brunner, MD, Massachusetts General Hospital, Assistant Professor of Medicine, Harvard Medical School MDS patients should consider clinical trials as a viable route for treatment, not just a last resort. Attend this event to learn about innovative treatments for AML and MDS that are being evaluated in trials, the latest research from the American Society of Hematology, and how to…

Webinar: Optimizing Transfusion Support in MDS February 12, 2022 with Lindsay R. Wilde, MD, Sidney Kimmel Cancer Center and Thomas Jefferson University Hospital, Philadelphia, PA Attend this webinar to learn about best practices for blood transfusion and how support for patients receiving transfusions can be optimized for patients living with myelodysplastic syndromes (MDS). To register, click here.

Webinar: Advances in our Understanding of the Management of MDS March 26, 2022 with Michael Keng, MD, University of Virginia, Emily Couric Clinical Cancer Center, Charlottesville, VA Attend this webinar to learn about the latest advancements in management and understanding of myelodysplastic syndromes (MDS), as well as how they will impact treatment. To register, click here.

Webinar: Precision Medicine in MDS and AML May 21, 2022 with Rory Shallis, MD, Yale School of Medicine, New Haven, CT Attend this webinar to learn about the role of personalized, precision medicine in the treatment of myelodysplastic syndromes (MDS). Learn about the importance of the latest treatment strategies and the role of genetic testing. To register, click here.

The Aplastic Anemia and MDS International Foundation's MDS Virtual Support Group June 11, 2022 AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with MDS. The group is hosted by AAMDSIF and will be monitored to ensure the privacy and safety of our participants. To register, click here. 

The Aplastic Anemia and MDS International Foundation's Pediatric Parents Virtual Support Group June 14, 2022 This virtual support group is designed to support pediatric parents whose children have been diagnosed with aplastic anemia, MDS, PNH and PRCA. The group is hosted by AAMDSIF and will be monitored to ensure the privacy and safety of our participants. To register, click here.   

The Aplastic Anemia and MDS International Foundation's Transplant for MDS Virtual Support Group June 15, 2022 AAMDSIF is pleased to announce that we will host a support group for patients who have undergone transplant or who are considering this as a curative option for bone marrow failure disease. The group is hosted by AAMDSIF and will be monitored to ensure the privacy and safety of our participants. To register, click here.   

Webinar: The MDS Widow: Sharing and Moving Forward June 23, 2022 Rochelle Ostroff-Weinberg, widow of Robert Weinberg, invites you to join her and other MDS widows on International Widows’ Day.   To register, email Rochelle ([email protected]) by noon on the 23rd.