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April 2018
Aplastic Anemia and MDS International Foundation’s Living with Aplastic Anemia, MDS, and PNH Conference
A patient and family conference for people with aplastic anemia, myelodysplastic syndromes, paroxysmal nocturnal hemoglobinuria, and acute myeloid leukemia. Nurses, caregivers, or other health professionals are also encouraged to attend. Learn more information about facing these diseases every day and meet powerful survivors that can understand the challenges. Registration is free and conference attendees are eligible for a negotiated nightly rate of $129 at Houston Marriott Medical Center/Museum District. Scurlock Towers garage parking is $13 daily and there is a $28 valet option…
Find out more »May 2018
Aplastic Anemia and MDS International Foundation’s Living with Aplastic Anemia, MDS, and PNH Conference
A patient and family conference for people with aplastic anemia, myelodysplastic syndromes, paroxysmal nocturnal hemoglobinuria, and acute myeloid leukemia. Nurses, caregivers, or other health professionals are also encouraged to attend. Learn more information about facing these diseases every day and meet powerful survivors that can understand the challenges. Registration is free and attendees are eligible for a discounted rate of $149/night at the Hyatt Regency Indianapolis. Secure your reservation by 4/26. Travel assistance is also available.
Find out more »June 2018
Aplastic Anemia and MDS International Foundation’s Living with Aplastic Anemia, MDS, and PNH Conference
A patient and family conference for people with aplastic anemia, myelodysplastic syndromes, paroxysmal nocturnal hemoglobinuria, and acute myeloid leukemia. Nurses, caregivers, or other health professionals are also encouraged to attend. Learn more information about facing these diseases every day and meet powerful survivors that can understand the challenges.
Find out more »Aplastic Anemia and MDS International Foundation’s Patient Conference
The 7th Seattle Patient Conference: Aplastic Anemia, MDS, and PNH A patient and family conference for people with aplastic anemia, myelodysplastic syndromes, paroxysmal nocturnal hemoglobinuria, and acute myeloid leukemia. Nurses, caregivers, or other health professionals are also encouraged to attend. Learn more information about facing these diseases every day and meet powerful survivors that can understand the challenges. Registration for this conference is free.
Find out more »September 2018
Aplastic Anemia and MDS International Foundation’s Living with Aplastic Anemia, MDS, or PNH Patient Conference in Providence, RI
Living With Aplastic Anemia, MDS, or PNH Join us and connect with patients, families, and caregivers who are living with aplastic anemia, PNH, MDS, and AML. Meet and hear top medical experts discuss what is the latest in a treatment and empower you with information about living with a bone marrow failure disease. Registration is FREE
Find out more »October 2018
Aplastic Anemia and MDS International Foundation’s Living with Aplastic Anemia, MDS, or PNH Patient Conference in Los Angeles
Living with Aplastic Anemia, MDS, or PNH Patient Conference Join us and connect with patients, families, and caregivers who are living with aplastic anemia, PNH, MDS, and AML. Meet and hear top medical experts discuss what is the latest in a treatment and empower you with information about living with a bone marrow failure disease. Registration for this event is FREE.
Find out more »November 2018
Aplastic Anemia and MDS International Foundation’s Living with Aplastic Anemia, MDS, or PNH Patient Conference in Miami
Living with Aplastic Anemia, MDS, or PNH Patient Conference Join us and connect with patients, families, and caregivers who are living with aplastic anemia, PNH, MDS, and AML. Meet and hear top medical experts discuss what is the latest in a treatment and empower you with information about living with a bone marrow failure disease. Registration for this event is FREE.
Find out more »March 2019
The Aplastic Anemia and MDS International Foundation’s What’s New in Aplastic Anemia and PNH? Webinar
What's New in Aplastic Anemia and PNH? Important Findings from ASH 2018 This online webinar with Dr. Bhumika Patel will discuss the latest aplastic anemia and PNH research presented at the American Society of Hematology's 2018 meeting. Register now to learn the latest about the implications of these findings. You can register for this event here.
Find out more »The Aplastic Anemia and MDS International Foundation’s Pediatric Aplastic Anemia and PNH Webinar
Pediatric Aplastic Anemia and PNH This webinar will feature Dr. Kasiani Myers from The Cancer and Blood Diseases Institute discussing the causes, treatment, and diagnosis of PNH and aplastic anemia in children as well as the connection between these two medical conditions. Register for this online webinar here.
Find out more »October 2020
Managing Your PNH Live Webinar- Sponsored by Alexion Pharmaceuticals Inc.
Managing Your PNH Connect. Learn. Take Action. Live Webinar Thursday, October 29, 2020 Alexion invites patients, families, and caregivers living with paroxysmal nocturnal hemoglobinuria (PNH) to an educational program for the PNH community. Please join us as we bring together patients and families living with PNH. Patient and Caregiver Ambassadors will share their personal stories and Jamie Koprivnikar, MD, John Theurer Cancer Center at Hackensack University Medical Center, will share the latest thinking and knowledge about the disease and its…
Find out more »December 2020
Managing Your PNH Live Webinar- Sponsored by Alexion Pharmaceuticals Inc.
Managing Your PNH Connect. Learn. Take Action. Live Webinar Wednesday, December 9, 2020 Alexion invites patients, families, and caregivers living with paroxysmal nocturnal hemoglobinuria (PNH) to an educational program for the PNH community. Please join us as we bring together patients and families living with PNH. Patient and Caregiver Ambassadors will share their personal stories and Bart Scott, MD, will share the latest thinking and knowledge about the disease and its management options. To register for this event, click here…
Find out more »November 2021
Alexion Pharmaceuticals, Inc.’s Managing Your PNH Webinar
Managing Your PNH Connect. Learn. Take Action. November 9, 2021, 7:30 PM Connecting patients and caregivers in the paroxysmal nocturnal hemoglobinuria (PNH) community. To register, click here. Acknowledgment: This event post is sponsored by Alexion Pharmaceuticals and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.
Find out more »December 2021
Alexion Pharmaceuticals, Inc.’s Managing Your PNH Webinar
Managing Your PNH Connect. Learn. Take Action. December 9, 2021, 6:30 PM Connecting patients and caregivers in the paroxysmal nocturnal hemoglobinuria (PNH) community. To register, click here. Acknowledgment: This event post is sponsored by Alexion Pharmaceuticals and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.
Find out more »May 2022
The Aplastic Anemia and MDS International Foundation’s Aplastic Anemia, MDS, and PNH Virtual Support Group
The Aplastic Anemia, MDS, and PNH Virtual Support Group May 28, 2022 AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with aplastic anemia, MDS and PNH. The group is hosted by AAMDSIF and will be monitored to ensure the privacy and safety of our participants. To register, click here.
Find out more »June 2022
The Aplastic Anemia and MDS International Foundation’s Aplastic Anemia, MDS, and PNH Virtual Support Group
The Aplastic Anemia, MDS, and PNH Virtual Support Group June 25, 2022 AAMDSIF is pleased to announce that we will host a support group for patients diagnosed with aplastic anemia, MDS and PNH. The group is hosted by AAMDSIF and will be monitored to ensure the privacy and safety of our participants. To register, click here.
Find out more »
