Past Events › Primary Biliary Cirrhosis

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March 2017

Living with PBC: Learning Together

March 22, 2017 @ 6:30 pm - 10:00 pm

Ruth’s Chris Steak House, 600 Old Country Road
Garden City, NY 11530 United States + Google Map

This event doesn't replace medical consultation with your PBC healthcare team, but this event is an educational program where attendees will: Learn about PBC from a Certified Nurse Educator Hear a real PBC patient tell her PBC diagnosis story Gain knowledge about resources to support taking a proactive role in PBC management

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We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Past Events › Primary Biliary Cirrhosis

Events Search and Views Navigation

Events Search

Event Views Navigation

March 2017

Living with PBC: Learning Together

The Let’s Chat CAR T One-on-One Mentor Program: Speaking with Someone Who Understands What You Are Going Through

“Shades of Psoriasis”: Plaque Psoriasis and Sharing Your Story

Understanding RSV: Why Combatting Ethnic and Age-Related Health Disparities Could Improve Outcomes

We Need Equity and Diversity Within Rare Disease Research

DNA in Color: How Ronya Nelson is Working to Close the Diversity Gap in Genetics - Part 1

Bridging the Diversity Gap in Healthcare

Congratulations to the 2023 Recipients of the Diversity in Lupus Research Awards!

Welcome to Study of the Week. We go in-depth and select a study we think is of particular interest, discussing details, explaining its importance, who may be impacted and lots more!

Let’s Work Together!

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