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October 2019

Cincinnati, OH Live Event: Primary Immunodeficiency Patient Speaker Program

October 15, 2019 @ 7:00 pm - 8:00 pm
Cooper’s Hawk Winery & Restaurant- Cincinnati2, 8080 Montgomery Road
Cincinnati, OH 45236 United States
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Speakers: Dawn Helfrich, RN, MSN, APN Annette Gregory To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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Lafayette, LA Live Event: Primary Immunodeficiency Patient Speaker Program

October 15, 2019 @ 7:00 pm - 8:00 pm
Zea Rotisserie & Bar, 235 Doucet Rd
Lafayette, LA 70503 United States
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Speakers: Darlene Madore MSN, APRN, CPNP-PC, BSN, RN Eric Nixon To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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Webinar: Primary Immundeficiency Patient Speaker Program

October 16, 2019 @ 7:00 pm - 8:00 pm

Speakers: Carla Duff ARNP, CPNP-PC, MSN, CCRP, IgCN Carl Schlacht To register for this webinar, click here. To read more about Webinar Wednesdays, click here.    Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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Wheaton, IL Live Event: Primary Immundeficiency Patient Speaker Program

October 16, 2019 @ 7:00 pm - 8:00 pm
Adelle’s Fine American Fare, 535 West Liberty Drive
Wheaton, IL 60187 United States
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Speakers: Darlene Madore, MSN, APRN, CPNP-PC, BSN, RN Traci Davies To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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White Plains, NY Live Event: Primary Immunodeficiency Patient Speaker Program

October 17, 2019 @ 6:00 pm - 7:00 pm
Sam’s of Gedney Way, 50 Gedney Way
White Plains, NY 10605 United States
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Speakers: Darlene Madore, MSN, APRN, CPNP-PC, BSN, RN Annette Gregory To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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Fishers, IN Live Event: Primary Immunodeficiency Patient Speaker Event

October 19, 2019 @ 12:00 pm - 1:00 pm
Four Day Ray Brewing, 11671 Lantern Road
Fishers, IN 46038 United States
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Speakers: Carla Duff, ARNP, CPNP-PC, MSN, CCRP, IgCN Annette Gregory To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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Portland, OR Live Event: Primary Immunodeficiency Patient Speaker Program

October 21, 2019 @ 6:00 pm - 7:00 pm
Irving Street Kitchen, 701 Northwest 13th Avenue
Portland, OR 97209 United States
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Speakers: Michelle Tran, DNP, FNP Annette Gregory To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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San Antonio, TX Live Event: Primary Immunodeficiency Patient Speaker Program

October 24, 2019 @ 7:00 pm - 8:00 pm
Paesanos 1604, 3622 Paesanos Parkway
San Antonio, TX 78231 United States
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Speakers: Dawn Helfrich RN, MSN, APN Angela Kontas To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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Charlotte, NC Live Event: Primary Immunodeficiency Patient Speaker Program

October 29, 2019 @ 6:00 pm - 7:00 pm
Southpark Grill, 4300 Congress Street
Charlotte, NC 28209 United States
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Speakers: Dawn Helfrich, RN, MSN, APN Lori Collins To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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King of Prussia, PA Live Event: Primary Immunodeficiency Patient Speaker Event

October 29, 2019 @ 7:00 pm - 8:00 pm
Founding Farmers, 255 Main St. Suite 180
King of Prussia, PA 19406 United States
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Speakers: Carla Duff, ARNP, CPNP-PC, MSN, CCRP, IgCN Melaine Ziegler To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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November 2019

Glendale, AZ Live Event: Primary Immundeficiency Patient Speaker Program

November 4, 2019 @ 6:00 pm - 7:00 pm
Arrowhead Grill, 8280 W. Union Hills Drive
Glendale, AZ 85308 United States
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Speakers: Linda Lentini, RN Melaine Ziegler To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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New York, NY Live Event: Primary Immunodeficiency Patient Speaker Program

November 6, 2019 @ 6:30 pm - 7:30 pm
Ben & Jack’s Steakhouse, 219 East 44th Street
New York, NY 10017 United States
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Speakers: Linda Anastasia, RN, BSN, CPN, IgCN Lynne Doebber To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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Toledo, OH Live Event: Primary Immunodeficiency Patient Speaker Program

November 7, 2019 @ 6:30 pm - 7:30 pm
Rockwell’s Steakhouse at the Oliver House, 27 Broadway Street
Toledo, OH 43604 United States
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Speakers: Wendy Holz RN, MSN, CPNP Annette Gregory To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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The Woodlands, TX Live Event: Primary Immunodeficiency Patient Speaker Program

November 7, 2019 @ 7:00 pm - 8:00 pm
Grotto Ristorante, 9595 Six Pines Drive
The Woodlands, VA 77380 United States
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Speakers: Darlene Madore MSN, APRN, CPNP-PC, BSN, RN Melaine Ziegler To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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Fort Wayne, IN Live Event: Primary Immunodeficiency Patient Speaker Program

November 18, 2019 @ 6:00 pm - 6:30 pm
Eddie Merlot’s, 1502 Illinois Road South
Fort Wayne, IN 46804 United States
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Speakers: Linda Anastasia, RN, BSN, CPN, IgCN Janet Richards To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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Costa Mesa, CA Live Event: Primary Immundeficiency Patient Speaker Program

November 19, 2019 @ 6:30 pm - 7:30 pm
Water Grill, 3300 Bristol Street
Costa Mesa, CA 92626 United States
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Speakers: Michelle Tran, DNP, FNP Angela Kontas To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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Santa Monica, CA Live Event: Primary Immunodeficiency Patient Speaker Program

November 20, 2019 @ 6:30 pm - 7:30 pm
FIG, 101 Wilshire Boulevard
Santa Monica, CA 90401 United States
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Speakers: Michelle Tran, DNP, FNP Annette Gregory To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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December 2019

Glen Ellyn, IL Live Event: Primary Immunodeficiency Patient Speaker Program

December 7, 2019 @ 6:00 pm - 7:00 pm
Crowne Plaza Lombard Downers Grove, 1250 Roosevelt Road
Glen Ellyn, IL 60137 United States
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Speakers: Darlene Madore MSN, APRN, CPNP-PC, BSN, RN Janet Richards To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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Webinar: Primary Immunodeficiency Patient Speaker Program

December 11, 2019 @ 7:00 pm - 8:00 pm

Speakers: Carl Schlacht Carla Duff, ANP To register for this webinar, click here. To read more about PI Webinar Wednesdays, click here.  Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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Williamsville, NY Live Event: Primary Immunodeficiency Patient Speaker Program

December 12, 2019 @ 6:30 pm - 7:30 pm
800 Maple, 800 Maple Road
Williamsville, NY 14221 United States
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Speakers: Wendy Holz, RN, MSN, CPNP Traci Davies To register for this live event, click here.  For information on PI Webinar Wedenesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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Tucson, AZ Live Event: Primary Immunodeficiency Patient Speaker Program

December 14, 2019 @ 6:30 pm - 7:30 pm
North Italia, 2995 East Skyline Drive
Tucson, AZ 85718 United States
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Speakers: Carla Duff, ARNP, CPNP-PC, MSN, CCRP, IgCN Melaine Ziegler To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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January 2020

Orlando, FL Live Event: Primary Immunodeficiency Patient Speaker Program

January 11, 2020 @ 12:00 pm - 1:00 pm
Cooper’s Hawk- Orlando, 8005 International Drive
Orlando, FL 32819 United States
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Speakers: Carla Duff ARNP, CPNP-PC, MSN, CCRP, IgCN Carl Schlacht To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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February 2020

San Juan Capistrano, CA Live Event: Primary Immunodeficiency Patient Speaker Program

February 20, 2020 @ 6:00 pm - 7:00 pm
Rancho Capistrano Winery, 26755 Verdugo Street
San Juan Capistrano, CA 92675 United States
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Speakers: Michelle Tran, DNP, FNP Stacy Ahearn To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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Louisville, KY Live Event: Primary Immunodeficiency Patient Speaker Program

February 25, 2020 @ 6:00 pm - 7:00 pm
Napa River Grill, 1211 Herr Lane
Louisville, KY United States
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Speakers: Dawn Helfrich RN, MSN, APN Annette Gregory To register for this live event, click here.  For information on PI Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable information to the rare disease community.

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June 2021

The Immune Deficiency Foundation’s National Primary Immunodeficiency Conference

June 23, 2021 - June 26, 2021

The Primary Immunodeficiency Conference June 23-26, 2021 This conference is the largest primary immunodeficiency (PI) patient gathering on Earth. Patients, clinicians, and caregivers will come together for this virtual event dedicated to community, education, and awareness surrounding primary immunodeficiency. For more info on this event, click here. To register for the conference, click here.

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