Past Events › PURA Syndrome

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June 2017

2nd Annual PURA Syndrome Conference

June 23, 2017 - June 25, 2017

Philadelphia Marriott West, 111 Crawford Ave.
West Conshohocken, PA 19428 United States + Google Map

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June 2019

PURA Syndrome Foundation’s Annual PURA Syndrome Conference

June 22, 2019 - June 23, 2019

Boston Marriott Quincy, 1000 Marriott Drive
Quincy, MA 02169 United States + Google Map

$100

4th Annual PURA Syndrome Conference The conference will be an opportunity for patient families and medical experts to meet and learn about the latest in PURA syndrome research. Additionally, families will be able to consult with health professionals, build communities, and exchange ideas. For registration information, click here.

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