- Rare Disease News
Events Search and Views Navigation
All Day
Global Genes’ RARE Patient Advocacy Summit
$175
The Global Genes RARE Patient Advocacy Summit This conference will be a convergence of a variety of rare disease stakeholders, such as rare disease patients, world renowned experts, and caregivers. Attendees will leave this event with the skills necessary to be effective rare disease advocates as well as the latest knowledge about the latest in […]
Find out more »6:30 pm
Staten Island, NY Live Event: CIDP Patient Speaker Program
Speakers: Lisa Mandolfo, MSN Robert Romine To register for this live event, click here. For information on CIDP Webinar Wednesdays with this PW collaborator, click here. And to register, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing […]
Find out more »7:00 pm
Webinar: CIDP Patient Speaker Program
Speakers: Stephanie Stencil Laura Rohe, RN, BSN To register for this webinar, click here. To read more about Webinar Wednesdays, click here. Acknowledgment: This event post is sponsored by CSL Behring and is promoted through the Patient Worthy Collaborative Content program. We only publish content that embodies our mission of providing relevant, vetted and valuable […]
Find out more »