Events for May 18, 2021 › Rare Disease

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Global Genes and the EveryLife Foundation’s Rare on the Road 2021: Virtual Training and Networking

May 18, 2021

RARE on the Road 2021: Rare Disease Leadership Tour Virtual Training and Networking: Illinois May 18, 2021 Global Genes and the EveryLife Foundation for Rare Diseases have worked together since 2017 on the RARE on the Road project, serving to develop new leaders in rare disease advocacy and hosting events around the country. At this […]

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We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Events for May 18, 2021 › Rare Disease

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All Day

Global Genes and the EveryLife Foundation’s Rare on the Road 2021: Virtual Training and Networking

Let’s Work Together!

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