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April 2018
The Fat Disorders Research Society’s Next Steps in the Treatment of Lipedema & Dercum’s Disease
$195
This conference will be an opportunity for researchers and disease experts to meet and learn about the latest advances in research and treatment for Dercum's disease, Lipedema, and other fat disorders. Sessions will focus on managing fat disorders on a daily basis, how to treat specific disease complications, and how to seek out patient support. Registration Patients: $195 Therapists, Researchers, Nurses, Non-patients: $450 Physician: $875 Professional's Guest: $195
Find out more »The Wilson Disease Association’s 2018 Annual Conference
$60
This conference is open to health professionals, Wilson's disease patients, and their families. The event will serve as an opportunity for the Wilson's disease community to come together and share their experiences. The conference will also be an opportunity for participants to learn more about the latest news in research and treatment development. Registration FREE for WDA members Non-members: $60 (anyone 18 and under: FREE) Conference Banquet (Members/Non-members): $35/$65 The Whitehall Hotel in downtown Houston has a discount of $129/night…
Find out more »Our Way Forward and The Moth Presents: Stories That Illuminate The Ovarian Cancer Experience
This event will be a part of the National Ovarian Cancer Coalition's National Conference. During this session, cancer survivors, family members, and patients with ovarian cancer will talk about their experiences with the disease. These stories will cover topics such as diagnosis, seeking appropriate treatment, and much more. The storytelling session will have limited seating, and if you wish to attend you will have to RSVP separately even if you are already registered for the conference itself. RSVP via email…
Find out more »The Adenoid Cystic Carcinoma Research Foundation’s Annual Patient Meeting
Annual ACC Patient Meeting Needham, MA This meeting will be an opportunity for adenoid cystic carcinoma patients to build community, share stories, network, and learn the latest news about adenoid cystic carcinoma research and treatment. The date listed on this event is a placeholder; it has not been officially announced when it will take place. Please email [email protected] in order to learn more and RSVP for the event.
Find out more »May 2018
International Mesothelioma Interest Group’s iMig 2018 International Conference
$575
14th International Conference of the International Mesothelioma Interest Group This conference will be a chance for patients, caregivers, and medical experts to come together to learn about subjects related to mesothelioma. Topics will include the latest research, educational topics, treatments, and info sessions. Registration Full delegate: $575 (single day: $325) Industry members and reps: $1175 Students, trainees, caregivers, developing nations, nurses: $325 (single day: $225)
Find out more »The Cystinosis Research Network’s 57 Miles for Cystinosis
On Cystinosis Awareness Day, Clinton Moore of Delaware, who is also president of the Cystinosis Research Network, will attempt to walk 57 miles in a single day. This event will serve as a method to raise both research funds and awareness about this difficult rare disease. Clinton's greatest inspiration is his son Chandler, who has the disease. He must take eye drops and medication several times a day to manage his cystinosis. Unfortunately, these medications come with unpleasant side effects…
Find out more »Advances in Neuroblastoma Research Association’s 2018 Conference
$900
"Building Bridges for Neuroblastoma Research:" ANR 2018 This will be an opportunity for researchers, clinicians, caregivers, and other medical professionals to learn about the latest research and treatment advances in treating neuroblastoma in children. Registration Member: $775/$825 (regular/onsite) Nonmember: $900/$950 (regular/onsite) Trainee: $550/$600 (regular/onsite) Guest: $150 Gala: $125 Nursing symposium: $100
Find out more »EURORDIS-Rare Diseases Europe’s European Conference on Rare Diseases and Orphan Products
€225
“Rare Diseases 360° – Collaborative Strategies to Leave No-One Behind” This event will be the largest rare disease themed conference in Europe. The conference will touch on a variety of rare disease related topics, such as the latest research, treatments, health and social care standards, and public policy. Registration Patient organizations: 165€/225€ (member/non-member) ERN reps, health professionals, researchers, goverment reps/workers: 430€ Students: 120€ Healthcare industry: 1450€
Find out more »The National Keratoconus Foundation’s Family Symposia
$40
The Family Symposia is a single day event that will feature educational sessions led by eye care providers and keratoconus experts, as well as patient led workshops and sessions that will address the day to day needs of patients. Registration $40/80 (Individual/Family rate(2-4 people))
Find out more »The ALS Association’s National ALS Advocacy Conference
$175
The 2018 National ALS Advocacy Conference This event will be an opportunity for the ALS community to come together to learn more about the latest ALS research and treatments. In addition, patient advocates from across the nation will have the opportunity to meet with their lawmakers and representatives. Registration ALS patients +1 caregiver: FREE Additional caregivers, association members, family/friends: $175 Children (3-16): $25
Find out more »PBCers Organization – 2018 PBC Conference – Houston, Texas
PBCers Organization hosts the 2018 PBC Conference to connect, learn and empower. The event is catered to patients, and their family and friends to educate through medical speakers. Registration fees: $80 - before March 17, 2018 $100 - after March 17, 2018 For registration details click HERE.
Find out more »HAEi’s HAE Global Conference
€125
The 2018 HAE Global Conference "Take control of your HAE" #haeGC18 The event will be an opportunity for caregivers, researchers, scientists, and the international hereditary angiodema patient community to converge to learn about the latest in research and treatments for the disease. In addition, patients will find an open and accepting environment to interact with other members of the hereditary angiodema community and understand how to cope with the disease and live a healthy and happy lifestyle. Registration single room: €250/person…
Find out more »NTM Info & Research’s NTM & Bronchiectasis Physician/Patient Conference
The 2018 Nontuberculous Mycobacteria & Bronchiectasis Physician/Patient Conference This conference will be an opportunity for health professionals to learn more about NTB and bronchiectasis. It will be a chance for them to learn about the origins of these diseases, the latest research, and treatments standards. Patients are also invited to attend in order to network with one another, share their personal experiences, and build community. Attendance to the conference is free, but be prepared for travel and hotel costs.
Find out more »The PBCers Organization’s 2018 PBC Conference
$100
Annual 2018 PBC Conference This conference will be an opportunity for PBC patients and their loves ones to come together for education, empowerment, and community building.
Find out more »International Waldenstrom’s Macroglobulinemia Foundation’s 2018 IWMF Educational Forum
International Waldenstrom’s Macroglobulinemia Foundation, IWMF, presents the annual Educational Forum where patients and caretakers alike can come and learn from disease specialists about Waldenstrom Macroglobulinemia. Registration fee: $199 - until 4/1/2018 $250 - after 4/1/2018 $275 - at the door
Find out more »Victory for Women’s 2018 NOW Conference
2018 National Outreach for Von Willebrand Conference This event will be a chance for patients with Von Willebrand's disease to learn more about how to manage living with this disease on a daily basis. It will also be an opportunity to explore the latest research and treatment options. This conference is open to patients and their caretakers. Registration for this conference is closed as of August 2017.
Find out more »Pheo Para Troopers’ International Symposium on Pheochromocytoma
5th Annual International Symposium on Pheochromocytoma "Working Together Today for a Better Tomorrow" This event will be an opportunity for patients and medical professionals to learn about the latest research updates and treatments for pheochromocytoma. After presentations, there will be a benefit gala held at the Rooftop Hyatt Regency in Bethesda, MD. Attendance is $50.
Find out more »Aplastic Anemia and MDS International Foundation’s Living with Aplastic Anemia, MDS, and PNH Conference
A patient and family conference for people with aplastic anemia, myelodysplastic syndromes, paroxysmal nocturnal hemoglobinuria, and acute myeloid leukemia. Nurses, caregivers, or other health professionals are also encouraged to attend. Learn more information about facing these diseases every day and meet powerful survivors that can understand the challenges. Registration is free and attendees are eligible for a discounted rate of $149/night at the Hyatt Regency Indianapolis. Secure your reservation by 4/26. Travel assistance is also available.
Find out more »The Foundation for Sarcoidosis Research’s Meet the Experts
This is a free event for patients that are faced with lung diseases like sarcoidosis to converge and learn from renowned medical specialists about what it takes to promote lung health as a part of day to day living. Afternoon sessions will include breakouts by disease so that patients can get specific information about their disease. Participants will also get a complimentary lunch and free parking.
Find out more »The Center for Information & Study on Clinical Research Participation’s Clinical Trials Day 2018
International Clinical Trials Day #ClinicalTrialsDay #BecomeAWARE May 20th, 2018 International Clinical Trials Day is celebrated every year on May 20th. Communities use the day to remember the efforts of study volunteers and highlight the ways in which clinical trials help develop new medical treatments every day. CISCRP will celebrate by posting weekly BITS (benefits, infographics, trials, and stories) on their social media accounts. Check out their twitter page here. Visit their facebook page here. If you are in the LA area,…
Find out more »International Alliance Of Patients’ Organizations – 8th Global Patients Congress – Miami, Florida
International Alliance Of Patients' Organizations hosts the 8th Global Patients Congress. 200 reps from different healthcare facets will provide expertise, connection, and knowledge related to patient healthcare. Registration is INVITE ONLY. More information coming soon regarding applications.
Find out more »Allied Academies’ World Liver Conference 2018
$799
World Liver Conference 2018 This conference will be an opportunity for medical experts to learn information about a variety of liver diseases, such as hepatitis, liver fibrosis, and liver cancer. There are more than 100 kinds of liver disease and attendees will have the option to choose sessions that suit their own needs. Registration Standard: Business/$799 Academia/$699 Delegate: Business/$499 Academia/$399 Student Registration: $349
Find out more »The International Society For The Study Of Fatty Acids And Lipids’ 2018 Congress
$950
13th Biennial Congress of ISSFAL The congress will be an opportunity for reseachers, scientists, and professionals to present research findings and learn from one another about the latest updates and innovations about a variety of conditions including familial partial lipodystrophy. Registration Members: $800 Non-members: $950 Single day: $300/$390 (Member/Non-member) Student: $400/$450 (Member/Non-member)
Find out more »Nephcure Kidney International’s 12th International Podocyte Conference
$650
The conference will be a chance for researchers, health professionals, and scientists from across the globe to present research relevant to glomerular diseases like focal segmental glomerulosclerosis, podocyte biology, and nephrotic syndromes. Registration Scientists/presenters: $650 Trainees: $325
Find out more »June 2018
The Hypersomnia Foundation’s 2018 HF Conference
$75
#HFconf #BeyondSleepy Attend the 2018 conference in order to learn the latest on a variety of subjects that are relevant to patients with hypersomnia and their families. Make the most of an opportunity to meet other members of the hypersomnia patient community. Registration Early Bird (Before May 11): $75 After May 11: $99
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