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June 2017
July 2017
Calling All Texans: Local PBC Event Near You!
Living with PBC: Learning Together For patients, family, healthcare professionals, and so many more! FEATURING: Certified PBC Nurse Educator, Jenny Walker, and a Patient Ambassador, Laurie Call 1-844-514-6294 to register and learn more about this PBC event!
Find out more »Living with PBC Event in Ohio!
Living with PBC: Learning Together For patients, family, healthcare professionals, and so many more! FEATURING: Certified PBC Nurse Educator, Jennifer Blood, and a Patient Ambassador, Deb Call 1-844-514-6294 to register and learn more about this PBC event!
Find out more »A Georgia Getaway AND a PBC Event!
Come out to this live PBC event to learn, hear, and empower yourself on the latest PBC news and information Get the chance to listen to nurse educator, Jennifer Blood and PBC patient ambassador, Audrey!
Find out more »August 2017
2017 Tribute to Champions
Join Global Genes in honoring RARE champions of hope in the 2017 Tribute to Champions event in Anaheim, California! Hear from rare disease fighters and champions from all over the globe! Visit http://globalgenes.cvent.com/events/2017-tribute-to-champions-of-hope/event-summary-f9c41d21e56d4473b1569cbd7861b477.aspx?lang=en&sms=2&cn=Ng1ZqAOBfUqwFhDdCNwtFQ&refid=SocialShare to plan your trip and register now!
Find out more »September 2017
Places You Need to Be: the International Congress of Inborn Errors of Metabolism
***Deadline for registration before the meeting: August 21 After this date, registration can be made onsite. Come explore the host city of the Olympic Games and one of the most beautiful places in the world, Rio de Janeiro, while attending the 13th International Congress of Inborn Errors of Metabolism!! ***Visa and yellow fever vaccination required before attending; for more visa information, visit this link. To learn more about the event, figure out travel and accommodations, register, or to contact the organizers, follow…
Find out more »The Ehlers-Danlos Society’s 2017 EDS Global Learning Conference
#DazzleVegas Adult early-bird registration: $299, ends July 7 Regular registration: $349, July 7–August 28 Junior Zebra Registration: $175
Find out more »2017 Myotonic Dystrophy Foundation Annual Conference
Your Sunshine State Getaway The 2017 Annual MDF Annual Conference Registration fee: $200-$250 — covers all conference events (general and breakout sessions, two evening social receptions, and other informational and fun events!)
Find out more »NCATS Toolkit for Patient-Focused Therapy Development Launch Event
Come check out and celebrate the launch of and learn more about the NCATS online resource portal including: How to establish a patient registry How to drive patient-focused discovery and pre-clinical research and development How to work with NIH and the Food and Drug Administration How to conduct post-market surveillance
Find out more »Register Now for Scientific Workshop 2017: A Rare Disease Event in D.C.
Come out to D.C. for a day full of rare disease news and seminars given by many accomplished MDs, PhDs, and CEOs! The full agenda can be found here. Registration is currently at capacity but those interested should still register to be put on a waitlist.
Find out more »Come Out to the 6th Annual RARE Patient Advocacy Summit
Come join Global Genes in attending the 6th annual rare patient advocacy summit Meet rare disease advocates from all over the world in an educational conference setting to create, share, and help with each other! photo box courtesy of http://globalgenes.cvent.com/events/2017-rare-patient-advocacy-summit/custom-35-b667f7db423b463f80ab2ef70b16b4a7.aspx Learn more about this event at http://globalgenes.cvent.com/events/2017-rare-patient-advocacy-summit/event-summary-b667f7db423b463f80ab2ef70b16b4a7.aspx
Find out more »Beach Getaway and 2017 IPPF Annual Patient Conference All-In-One!
Come bask in the California/Newport Beach sun and attend discussions, workshops, and receptions with physicians, patients and advocates of pemphigus and pemphigoid! CONFERENCE ONLY (no awards dinner or entertainment): $150 per person AWARDS DINNER ONLY (Saturday night dinner + entertainment): $100 per person COMPLETE PACKAGE (conference + dinner + entertainment): $225 per person
Find out more »Don’t Miss the National/International Acromegaly Conference!
Come to Canada to learn and talk more about acromegaly among specialists, professionals, advocates, patients and spouses! COST Acromegaly Patients & Spouses: FREE For all other attendees: $200.00 no refund available Register here: https://www.eventbrite.ca/e/nationalinternational-acromegaly-conference-tickets-33026461034#tickets
Find out more »October 2017
Calling All Movie Lovers: Get Tickets for the Rare Disease Film Festival
Spend a day (or two) in Boston indulging your inner film fanatic and watching a compilation of rare disease films from across the globe! Many films are short and sweet at less than 15 minutes long. Between movies, rare disease advocates and researchers will additionally share their own personal experiences and stories with rare diseases. This is not an event you want to miss! Buy your tickets today!
Find out more »2017 Rare Neuro-Immune Disorders Symposium
Hosted in part by The Transverse Myelitis Association (TMA)
Find out more »November 2017
Guess Where the 5th Glycoproteinoses International Conference is?!
ROME! Come and experience beautiful Rome as well as stimulate the exchange of ideas, form new collaborations among investigators and clinicians with different expertise, spark interest in these complex diseases among postdoctoral research fellows and graduate students, and strengthen connections among affected families around the world.
Find out more »North American Cystic Fibrosis Conference: Register Here Now!
Come to the 31st Annual NACFC and be among 5,000 attendees, exhibitors, supporters, and staff from around the globe to learn more and talk about everything cystic fibrosis! Find out your registration fees at this link!
Find out more »HSG 2017: Elevating Huntington Disease
Come explore Colorado while attending the annual and internationally recognized forum for training and education for Huntington disease researchers!
Find out more »PFF Summit 2017 in Nashville, Tennessee
Registration information available soon! Keep checking their website for updates on this exciting opportunity to learn more about PF!
Find out more »International Conference on LGS in Orlando
Warm up your November by attending the LGS Foundation's 5th International Family and Professional conference on Lennox-Gastaut Syndrome in Orlando Registration prices for adults and children with LGS (includes entry into all sessions Friday - Sunday, breakfast and lunch on all days, the cocktail reception on Friday evening and the dinner on Saturday evening.): Adults: $225 Children: $125
Find out more »January 2018
The Mastocytosis Society – Support Group Meeting – Cape Coral, Florida
The Mastocytosis Society presents a support group meeting open to the public in Cape Coral, Florida. Dr. Theoharides MD, PhD is guest speaking. Be sure to RSVP to Michele Kress: [email protected]
Find out more »The Mastocytosis Society – Support Group Meeting – Minneapolis, Minnesota
The Mastocytosis Society presents a support group meeting open to the public in Minneapolis, MN. Be sure to RSVP to Melissa Lovett: [email protected] [email protected]
Find out more »Patients as Partners 2nd Annual Conference – EU
The only conference in the Europe that provides guidance around involving patients through the process of clinical research. Industry Fees: $1,395 or ~ £1175 rates available until November 24, 2017 $1,495 or ~ £1259 rates available until December 15, 2017 $1,595 or ~ £1343 rates available until January 12, 2018 $1,695 or ~ £1427 rates available after January 12, 2018 Academia Fees: $697.50 or ~ £529 rates available until November 24, 2017 $747.50 or ~ £567 rates available until December…
Find out more »February 2018
Clinical Trials Transformation Initiative – 9th Annual SCOPE Summit – Orlando, Florida
Clinical Trials Transformation Initiative presents the 9th annual SCOPE Summit in Orlando, Florida. This event is for clinical ops executives and will consist of a roundtable and presentations highlighting clinical trial selection, development, technology and more! Please visit HERE for pricing details and to register!
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