Upcoming Events › Urea Cycle Disorders

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November 2023

The Center for Chronic Illness Living with Urea Cycle Disorder Virtual Support Group

November 15 @ 7:00 pm - 8:00 pm

Web-Based Living with Urea Cycle Disorder Support Group A supportive, web-based peer support group for those living with urea cycle disorder. facilitated by Annie Moon, LMFT 3rd Wednesday of every other month 4-5 PM PT/7-8 PM ET To sign up for free, click here.

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We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Upcoming Events › Urea Cycle Disorders

Events Search and Views Navigation

Events Search

Event Views Navigation

November 2023

The Center for Chronic Illness Living with Urea Cycle Disorder Virtual Support Group

Lila’s Journey: Staying Positive While Living With Pediatric Low-Grade Glioma (pLGG)

Welcome to Study of the Week. We go in-depth and select a study we think is of particular interest, discussing details, explaining its importance, who may be impacted and lots more!

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