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October 2023

The Center for Chronic Illness Web-Based Rare Chronic Illness Support Group

October 3 @ 7:00 pm - 8:00 pm

Web-Based Rare Chronic Illness Support Group A peer support group for those living with rare health challenges led by Kerry Heckman, MSW, LICSW 1st Tuesday of each month, 4-5pm PST / 7-8pm EST To sign up for free, click here.

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The Center for Chronic Illness’ Living with Thyroid Eye Disease Support Group

October 3 @ 9:00 pm - 10:00 pm

Web-Based Living with Thyroid Eye Disease Support Group A supportive, web-based peer support group for those living with thyroid eye disease. facilitated by Kerry Heckman, MSW, LICSW 1st Tuesday of every month 6-7 PM PT/9-10 PM ET To sign up for free, click here.

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Cystic Fibrosis Research Institute’s Adults with CF Who Received a Late Diagnosis Online Support Group

October 4 @ 8:00 pm - 9:00 pm

Adults with CF Who Received a Late Diagnosis Online Support Group October 4, 2023 at 8 PM   Online support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD. To sign up and learn more, click here.

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The MDS Foundation’s MDS Patient and Family/Caregiver Forum

October 7 @ 9:00 am - 2:00 pm
Marriott Philadelphia Downtown, 1201 Market St
Philadelphia, PA United States
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MDS Patient & Family/Caregiver Forum October 7, 2023 Philadelphia, PA Many patients and caregivers have never met another person diagnosed with MDS until they connected with them at one of our forums. If you've never attended one, you won't want to miss this opportunity to meet others and to learn more about MDS, current treatments, and emerging therapies from leading experts. Not only will you find answers, support, and hope for MDS, but you will learn tips and strategies from…

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The MDS Foundation’s MDS Patient and Family/Caregiver Forum

October 14 @ 9:00 am - 2:00 pm
Doubletree by Hilton Nashville Downtown, 315 4th Avenue North
Nashville, TN 37219 United States
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MDS Patient & Family/Caregiver Forum October 14, 2023 Nashville, TN Many patients and caregivers have never met another person diagnosed with MDS until they connected with them at one of our forums. If you've never attended one, you won't want to miss this opportunity to meet others and to learn more about MDS, current treatments, and emerging therapies from leading experts. Not only will you find answers, support, and hope for MDS, but you will learn tips and strategies from…

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National Organization for Rare Disorders’ 2023 NORD Breakthrough Summit

October 16 - October 17
Marriott Marquis Washington DC, 901 Massachusetts Ave NW
Washington, DC 20001 United States
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$399

2023 NORD Breakthrough Summit October 16-17, 2023 Registration is now open for NORD's Rare Diseases and Orphan Products Breakthrough Summit! On October 16-17 at the Marriott Marquis in Washington, DC, join hundreds of rare disease advocates, experts, and stakeholders from around the world to tackle the most pressing issues facing the rare disease community. This year's agenda features topics including the future of gene editing, the impact of the Inflation Reduction Act, harnessing the power of AI for diagnosis, diversity and equity in rare diseases, and so…

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The Center for Chronic Illness Living with Cystinosis Virtual Support Group

October 17 @ 7:00 pm - 8:00 pm

Web-Based Living with Cystinosis Support Group A supportive, web-based peer support group for those living with cystinosis facilitated by Kerry Heckman, MSW, LICSW 3rd Tuesday of each month 4-5 PM PT/7-8 PM ET To sign up for free, click here.

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November 2023

Cystic Fibrosis Research Institute’s Adults with CF Who Received a Late Diagnosis Online Support Group

November 1 @ 8:00 pm - 9:00 pm

Adults with CF Who Received a Late Diagnosis Online Support Group November 1, 2023 at 8 PM   Online support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD. To sign up and learn more, click here.

Find out more »

The Center for Chronic Illness Web-Based Rare Chronic Illness Support Group

November 2 @ 7:00 pm - 8:00 pm

Web-Based Rare Chronic Illness Support Group A peer support group for those living with rare health challenges led by Kerry Heckman, MSW, LICSW 1st Tuesday of each month, 4-5pm PST / 7-8pm EST To sign up for free, click here.

Find out more »

The MDS Foundation’s MDS/MPN Overlap Syndrome Webinar

November 4 @ 12:00 pm - 1:00 pm

MDS/MPN Overlap Syndrome Webinar November 4, 2023 In this webinar, Dr. Angela Fleischman will explain myelodysplastic syndromes/myeloproliferative neoplasms overlap syndrome with an overview of the different features between MDS and MPN and their overlap and what these conditions mean for patients. Peter Löffelhardt will provide an overview of the Global International MPN Scientific Foundation. Attendees may listen to the simultaneous translation into Spanish of this webinar presented in English. After the presentation, there will be a live Q & A…

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The Center for Chronic Illness’ Living with Thyroid Eye Disease Support Group

November 7 @ 9:00 pm - 10:00 pm

Web-Based Living with Thyroid Eye Disease Support Group A supportive, web-based peer support group for those living with thyroid eye disease. facilitated by Kerry Heckman, MSW, LICSW 1st Tuesday of every month 6-7 PM PT/9-10 PM ET To sign up for free, click here.

Find out more »

The Center for Chronic Illness Living with Urea Cycle Disorder Virtual Support Group

November 15 @ 7:00 pm - 8:00 pm

Web-Based Living with Urea Cycle Disorder Support Group A supportive, web-based peer support group for those living with urea cycle disorder. facilitated by Annie Moon, LMFT 3rd Wednesday of every other month 4-5 PM PT/7-8 PM ET To sign up for free, click here.

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The Center for Chronic Illness Living with Cystinosis Virtual Support Group

November 21 @ 7:00 pm - 8:00 pm

Web-Based Living with Cystinosis Support Group A supportive, web-based peer support group for those living with cystinosis facilitated by Kerry Heckman, MSW, LICSW 3rd Tuesday of each month 4-5 PM PT/7-8 PM ET To sign up for free, click here.

Find out more »

December 2023

The Center for Chronic Illness Web-Based Rare Chronic Illness Support Group

December 5 @ 7:00 pm - 8:00 pm

Web-Based Rare Chronic Illness Support Group A peer support group for those living with rare health challenges led by Kerry Heckman, MSW, LICSW 1st Tuesday of each month, 4-5pm PST / 7-8pm EST To sign up for free, click here.

Find out more »

The Center for Chronic Illness’ Living with Thyroid Eye Disease Support Group

December 5 @ 9:00 pm - 10:00 pm

Web-Based Living with Thyroid Eye Disease Support Group A supportive, web-based peer support group for those living with thyroid eye disease. facilitated by Kerry Heckman, MSW, LICSW 1st Tuesday of every month 6-7 PM PT/9-10 PM ET To sign up for free, click here.

Find out more »

Cystic Fibrosis Research Institute’s Adults with CF Who Received a Late Diagnosis Online Support Group

December 6 @ 8:00 pm - 9:00 pm

Adults with CF Who Received a Late Diagnosis Online Support Group December 6, 2023 at 8 PM   Online support group for adults with CF who received a late diagnosis. Facilitated by Laura Mentch, EdM, and/or Jean Hanley, MD. To sign up and learn more, click here.

Find out more »

The Center for Chronic Illness Living with Cystinosis Virtual Support Group

December 19 @ 7:00 pm - 8:00 pm

Web-Based Living with Cystinosis Support Group A supportive, web-based peer support group for those living with cystinosis facilitated by Kerry Heckman, MSW, LICSW 3rd Tuesday of each month 4-5 PM PT/7-8 PM ET To sign up for free, click here.

Find out more »
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