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Les Mèmes de Patient Worthy

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Patient Worthy Memes

Hunter Syndrome affects many parts of the body, an Hunter Syndrome affects many parts of the body, and knowing the signs can make a big difference in early support and care. Raising awareness helps families, caregivers, and the community better understand this rare condition. If you would like to share your story with Hunter Syndrome, click the link in our bio! #HunterSyndrome #RareDiseaseAwareness #ShareYourStory #PatientWorthy
Thank you, Danielle, for sharing your story with M Thank you, Danielle, for sharing your story with MASH! Your voice matters, your experience inspires, and your willingness to share is making a difference for so many. We're grateful to you and for helping others feel seen and supported! @luckymelv
#MASH #NASH #LiverHealth #ShareYourStory #PatientWorthy
Sugar-Coated Deception: Discovery of Aggressive Ly Sugar-Coated Deception: Discovery of Aggressive Lymphoma Subtype Opens Door to Personalized Cancer Treatment. Read now at PatientWorthy.com
#PatientWorthy #DiffuseLargeBCellLlymphoma #DLBCL
PopEVE Aims to Fast-Track Rare Disease Diagnoses b PopEVE Aims to Fast-Track Rare Disease Diagnoses by Ranking Genetic Variant Severity. Read now at PatientWorthy.com
#PatientWorthy #GeneticDisease
It's #FactFriday! Did you know chronic hives can l It's #FactFriday! Did you know chronic hives can last for months or even years? Learn these facts about Chronic Spontaneous Urticaria and spread awareness! #ShareYourStory with us at the link in our bio.
#CSU #UrticariaAwareness #ChronicSpontaneousUrticaria
Mann-type DLBCL: Sugar Signature Reveals High-Risk Mann-type DLBCL: Sugar Signature Reveals High-Risk Lymphoma and New Therapeutic Avenues. Read now at PatientWorthy.com
#PatientWorthy #DLBCL #Lymphoma #DiffuseLargeBCellLymphoma
Hunter syndrome may be rare, but understanding it Hunter syndrome may be rare, but understanding it matters. Early awareness can help families get the support and care they need and highlight the importance of research for rare diseases.
Let’s shine a light on Hunter Syndrome and all that are affected—every story and every gene counts.
If you're interested in sharing your story with Hunter Syndrome, click the link in our bio!
#HunterSyndrome #MPSII #RareDiseaseAwareness #ShareYourStory #PatientWorthy
This season is about connection, not exhaustion. Y This season is about connection, not exhaustion. Your pace is perfect. Rest, breathe, and let the holidays meet you where you are.
#RareDisease #ChronicConditions #PatientWorthy #SelfCare
Thank you, Brooke, for sharing your story with CID Thank you, Brooke, for sharing your story with CIDP. Your honesty and strength are inspiring, and by telling your story, you're helping others feel less alone, more understood, and encouraged to keep going even on the toughest days. @brooke.blooms
#CIDP #ShareYourStory #PatientWorthy
The FDA Grants Traditional Approval for Daratumuma The FDA Grants Traditional Approval for Daratumumab Regime in Amyloidosis. Read now at PatientWorthy.com
#PatientWorthy #Amyloidosis #CD38 #LightChainAmyloidosis
Houston Methodist Researchers Identify T Cells Tha Houston Methodist Researchers Identify T Cells That Attack Transplanted Organs. Read now at PatientWorthy.com
#PatientWorthy #OrganTransplant #InterferonRegulatoryFactor4 #IRF4
Cancer-related fatigue is distinct from regular ti Cancer-related fatigue is distinct from regular tiredness. It's a medical symptom affecting cognition, mood, and quality of life, yet it's often overlooked. This awareness month, let's change that conversation. 
#CancerFatigueAwareness #CancerAwareness #CancerFatigue #PatientWorthy
#ShareYourStory with us at the link in our bio!
The invisible side of chronic illness: medication The invisible side of chronic illness: medication tradeoffs, lost relationships, emotional labor, appointment fatigue, and endless healthcare admin. Swipe to understand what patients actually navigate. 💙 #ChronicIllness #InvisibleIllness
#ShareYourStory with us at the link in our bio.
RFK's Granddaughter, Tatiana Schlossberg, Reveals RFK's Granddaughter, Tatiana Schlossberg, Reveals Diagnosis of Rare Blood Cancer. Read now at PatientWorthy.com
#PatientWorthy #RareBloodCancer #Leukemia
Addison's disease may be rare, but understanding i Addison's disease may be rare, but understanding it can make a big difference. Learning the signs and knowing the basics helps raise awareness and support those affected! #RareDiseaseOfTheWeek #AddisonsDisease #ShareYourStory #PatientWorthy
FDA Investigates Death Linked to Takeda’s Adzynma FDA Investigates Death Linked to Takeda’s Adzynma Therapy. Read now at PatientWorthy.com
#PatientWorthy #CongenitalThromboticThrombocytopenicPurpura #cTTP
FOLLOW PATIENT WORTHY ON INSTAGRAM
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
Read Full Story Here

Nous croyons Les patients atteints de maladies rares sont des personnes et non un diagnostic. Grâce à l’éducation, à la sensibilisation et à l’humour, nous aidons les patients, les soignants et les personnes de soutien en fournissant des nouvelles et des histoires pertinentes et souvent inspirantes.

Nos objectifs sont de partager des histoires, de cultiver une communauté forte, de fournir les dernières découvertes médicales, de connecter les gens et de produire des informations pionnières pour les patients. Aidez-nous à atteindre ces objectifs en nous parlant un peu de vous!

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