Meme: What Lies Within Us

• Post author:Rebekah
• Post published:February 16, 2017
• Post category:Rare Disease

No matter what happened in your past or what may happen in you're future, it's no match for you. You are tough enough to handle it. Your inner strength is…

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A New Year for the Impossible

• Post author:Kristen Lord
• Post published:January 2, 2017
• Post category:Rare Disease

Sometimes, the only things you can do are what is necessary in life-- the things that are possible. Keep doing just that and soon you may find that you can do…

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New Year New Beginings!

• Post author:Kristen Lord
• Post published:January 1, 2017
• Post category:Rare Disease

New BEGINNINGS are often disguised as painful endings. -Lao Tzu A New Year... time for new beginnings. If this year has been particularly hard for you, I hope this new…

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Healing Spirit

• Post author:Kristen Lord
• Post published:December 25, 2016
• Post category:Rare Disease

Share the spirit of healing. Those with rare diseases seek healing all year round. The holidays are for a different kind of healing though, healing of the spirit and soul.…

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Happy Christmahanakwanzika to All!

• Post author:Kristen Lord
• Post published:December 23, 2016
• Post category:Rare Disease

Yes, it is the season of holidays. Happy Christmahanakwanzika! Or whichever holiday you celebrate! I hope you experience peace, love and joy this season.

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A Charitable Holiday

• Post author:Kristen Lord
• Post published:December 22, 2016
• Post category:Rare Disease

If this holiday season finds you with extra love to share, then I hope can share a little bit to help fund research for a rare disease so that others…

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Peaceful Holidays

• Post author:Kristen Lord
• Post published:December 21, 2016
• Post category:Rare Disease

Hey, a happy holidays meme without using red and green! Here’s wishing you peace and love during the holidays. Even if you don’t celebrate a specific holiday, I hope the…

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Holidays Are Not for Pulling Out Your Hair

• Post author:Kristen Lord
• Post published:December 19, 2016
• Post category:Rare Disease

Happy Holidays! Many people spend their time running around trying to bake as much as they can, buy and wrap as many presents as they can, go to as many…

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Meme: Earthquakes + Positivity

• Post author:Rebekah
• Post published:December 2, 2016
• Post category:Rare Disease

Sometimes it feels like nothing is going your way. Though it can be difficult, try to find the positive. Silver linings can make a world of difference.

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Meme: 24 Hours

• Post author:Rebekah
• Post published:December 1, 2016
• Post category:Rare Disease

Tomorrow is another day. New beginnings and new opportunities are right around the corner and bad days don't last forever. Keep your chin up!

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Meme: Add a Little Love

• Post author:Rebekah
• Post published:December 1, 2016
• Post category:Rare Disease

This is always something good to keep in mind, but especially around the holidays! Spoonies often are dealing with fatigue and pain. Don't feel like you need to do so…

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Meme: Just Keep Swimming

• Post author:Rebekah
• Post published:November 30, 2016
• Post category:Rare Disease

It's not an easy swim but moving forward is important. You could be so close to having luck be in your favor.

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Thanksgiving for Every Moment

• Post author:Kristen Lord
• Post published:November 24, 2016
• Post category:Rare Disease

"Every moment on this earth is an extraordinary, destiny defining gift from God." –Billy Cox Happy Thanksgiving Patient Worthians!

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Meme: Thankful Every Day

• Post author:Kristen Lord
• Post published:November 24, 2016
• Post category:Rare Disease

"As Long as you're still breathing, There's still a purpose for your life." - Billy Cox I find these words very inspiring and comforting. Even when you question why you…

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Simple Hand Turkeys

• Post author:Kristen Lord
• Post published:November 23, 2016
• Post category:Rare Disease

Ah, I remember the simple times, when all you had to worry about was tracing your hand with a crayon and color in a turkey. Now I am an adult…

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Healthy Thanksgiving?

• Post author:Kristen Lord
• Post published:November 21, 2016
• Post category:Rare Disease

Whether you’re trying not to gain weight over Thanksgiving, or the prospect of being around a bunch of food you can’t eat because it would be bad for your rare…

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Meme: Courageous Hearts

• Post author:Rebekah
• Post published:November 8, 2016
• Post category:Rare Disease

Spoonies are strong every day and in spite of a lot. Don't forget that you have a courageous heart <3

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Meme: Kindness = Strength

• Post author:Rebekah
• Post published:November 3, 2016
• Post category:Rare Disease

Don't let things as important as tenderness and compassion ever be mistaken for weakness or fragility!

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Halloween – Not All About The Candy!

• Post author:Kristen Lord
• Post published:October 31, 2016
• Post category:Familial Hypercholesterolemia/Rare Disease

Halloween is here! The night known for indulging and splurging on candy. For some people this may not be an option though, for instance people with familial hypercholesterolemia. Eating a…

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Pshh, I Will Never Out Grow Halloween!

• Post author:Kristen Lord
• Post published:October 28, 2016
• Post category:Rare Disease

Happy Halloween! A lot of people grow out of Halloween. I personally love any reason to celebrate. I believe that life is short and it should be enjoyed at every…

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Giving Tricks or Treats This Halloween?

• Post author:Kristen Lord
• Post published:October 25, 2016
• Post category:Rare Disease

Are you planning on handing out candy for Halloween? If so I have a suggestion for you! This is the perfect opportunity for you to advocate for the rare disease…

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Kicking It On Labor Day

• Post author:Kristen Lord
• Post published:September 5, 2016
• Post category:Rare Disease

Happy Labor Day! I hope this Labor Day finds you well! Kick back, relax, and enjoy the fruits of your labor! While you do that be sure to send good…

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Labor Day: For Any And Everyone

• Post author:Kristen Lord
• Post published:September 5, 2016
• Post category:Rare Disease

Labor Day, devoted to no man or woman, celebrates all of us and our pursuit of happiness and the American Dream. There are some out there who suffer illnesses, whether…

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Strength, Prosperity And Well Being

• Post author:Kristen Lord
• Post published:September 2, 2016
• Post category:Rare Disease

According to the history of Labor Day, this day is dedicated to those who add to the strength, prosperity and well being of this country. I say double kudos to…

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Good Times On Labor Day

• Post author:Kristen Lord
• Post published:September 1, 2016
• Post category:Rare Disease

Ahh Labor Day, the day where we all take the day off to relax and spend time with friends, family and fellow laborers (ff you're lucky enough to work somewhere…

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