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Les Mèmes de Patient Worthy

Home » Les Mèmes de Patient Worthy

Patient Worthy Memes

Ehlers Danlos Syndrome affects the proteins in the Ehlers Danlos Syndrome affects the proteins in the joints, making them extra flexible or hyper-mobile. This often causes EDS patients to experience joint pain and frequent dislocations. 

Thank you to @themightysite for the graphic and survey! 

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#raredisease #spoonie #chronicpain #chronicillness #geneticdisease #eds #ehlersdanlossyndrome #ehlersdanlos
Embracing the hardness of your disease can be vita Embracing the hardness of your disease can be vital to recovering. It’s okay to feel angry and frustrated at your disease. Health means learning to live with the full spectrum of your feelings.

Thank you @worrywellbeing for this graphic!

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#raredisease #chronicpain #chronillness #spoonie #recovery #selfcare
One of our community members has shared this note One of our community members has shared this note she left on her front door ahead of her building’s annual fire safety inspection. She said “Someone with an awesome immune system might not get sick themselves, but if they get exposed they could still pass it to me. I think it is good to normalize asking for what we need and good to remind people that their staying safe efforts arent just for themselves, but for others.”

Have you advocated for yourself or others in similar ways? Share your experiences in the comments!

#covid19 #immunecompromised #highriskcovid19 #wearamask #immunodeficiency #immunosuppressed
You might have to remind people about the extra bo You might have to remind people about the extra boundaries to do with your illness. They need to let you sleep in, eat when your hungry, or make room for lots of bathroom breaks. Be kind to yourself and set those boundaries! You will learn what you need and how to get it too.

Thank you @spoonie_village for this graphic!

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#raredisease #chronicpain #spoonie #chronicillness #selfcare
We can all be grateful for that 😌 • • • We can all be grateful for that 😌

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#raredisease #enfermedadesraras #enfermeras #enfermedadesautoinmunes #spoonie #enfermedadcronica #enfermedadescronicas
On our podcast, advocate Whitney Carter talks abou On our podcast, advocate Whitney Carter talks about her journey to multiple diagnosis and how it led her to getting involved patient awareness.

Listen. Link in bio 👆👆

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#raredisease #chronicpain #chronicillness #spoonie
On the new podcast, "Fight the Swell," #HAE patien On the new podcast, "Fight the Swell," #HAE patients discuss balancing school and work: https://bit.ly/3ojRV9Q
It fluctuates 😌 Thank you @decade2doodles for It fluctuates 😌

Thank you @decade2doodles for this doodle!!

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#raredisease #chronicpain #chronicillness #spoonie
There’s not always a good reason for things we g There’s not always a good reason for things we go through. Please don’t don’t me this is how it was supposed to be.

Thank you @how.u.feeling for this graphic 👆

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#raredisease #chronicpain #spoonie #chronicillness
Find the people who give you energy. Stay with the Find the people who give you energy. Stay with them for more life.

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#raredisease #chronicpain #chronicillness #spoonie
On our podcast Amy Dahm explained, “The nice thi On our podcast Amy Dahm explained, “The nice thing about having that service dog is not only do you have an innate, life saving tool, but you also have the companionship. Because it can be very lonely being a patient, and sometimes you don’t want to be around other people. The dog can help you go out and make your invisible illness visible, and that’s tremendously helpful.” 

Listen to her story about becoming involved with patient advocacy for Cushing’s disease, and how her dog became her health companion. Episode in bio👆👆👆

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#raredisease #chronicpain #chronicillness #spoonie #cushings #cushingsdisease #cushingssyndrome
Don’t make it weird. Be an ally instead 🤝 Th Don’t make it weird. Be an ally instead 🤝

Thank you @onceuponagene.podcast for this graphic 

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#raredisease #chronicpain #chronicillness #spoonie
Illness isn’t just symptoms, it’s complicating Illness isn’t just symptoms, it’s complicating all aspects of life. 

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#raredisease #spoonie #enfermedadesraras #chronicpain #chronicillness #enfermedadcronica
It’s a Saturday, but I have some good tv 💁‍ It’s a Saturday, but I have some good tv 💁‍♀️

Thank you @rana2.0 for this graphic! 

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#raredisease #chronicpain #chronicillness #spoonie
On the new podcast, "Fight the Swell," #HAE patien On the new podcast, "Fight the Swell," #HAE patients share ways to stay relaxed during a swell: https://bit.ly/3ojRV9Q
Let’s hope for none today 🤞😌 Thank you @f Let’s hope for none today 🤞😌

Thank you @fibro_what for this picture! 

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#raredisease #chronicpain #fibro #fibromyalgia #fibromialgia #enfermedad #enfermedadesautoinmunes #enfermedadesraras
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Nous croyons Les patients atteints de maladies rares sont des personnes et non un diagnostic. Grâce à l’éducation, à la sensibilisation et à l’humour, nous aidons les patients, les soignants et les personnes de soutien en fournissant des nouvelles et des histoires pertinentes et souvent inspirantes.

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