Patient Worthy Memes

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Try one, none, some of these today. You can see how a little positivity can change your day. What are your methods to practice gratitude? •
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#raredisease #chronicpain #chronicillness #spoonie #spoonielife

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Some more trivia about the RD community •
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#raredisease #rarediaeases #chronicillness #chronicpain

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A little this and that about rare diseases for the community who knows them best. •
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#raredisease #chronicpain #chronicillness #spoonie #chronicpain

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You don’t need to explain yourself if you have days where you need a little extra care. Remember to take time for yourself to take care of yourself. •
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#raredisease #chronicdisease #chronicillness #chronicpain

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Rare diseases can be invisible from the outside, but loud and clear on the inside. It’s can be tiring to explain ... but I AM sick. •
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#raredisease #invisibleillness #chronicpain #chronicillness

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Ehlers-Danlos Syndrome or EDS is a group of disorders due to inherited defects in collagen production. Although symptoms vary widely between patients and subsets, many people with EDS have combinations of the characteristics above (and many more!). People with EDS and other rare or neglected conditions often refer to themselves as “zebras.” This nickname comes from a common philosophy taught in medicine: “when you head hoof beats, think horses not zebras.” In other words, assume a patient’s disease is the most common one associated with the symptoms. As EDS patients find out though, “sometimes when you hear hoof beats, it really is a zebra.” Check the link in our bio for some surprising clues associated with EDS. •
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#raredisease #chronicillness #ehlersdanlossyndrome #eds

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Rare diseases touch so many aspects of life, it can be easy to misunderstand. A disease isn’t just doctors and medications, it’s all the stress and schedule changes that surround it.

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Just because someone isn’t always talking about the struggles of their disease, it doesn’t mean it isn’t affecting them. When the symptoms are chronic, it can be part of your routine to deal with your pain or manifestations without complaint. It doesn’t mean it isn’t hard. Here’s to remembering how much patients deal with on a daily basis.•
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#spoonie #spooniememes #zebrastrong

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Yeaaaah, my chronic pain isn’t going anywhere. Here’s to trying 🤷‍♀️ Follow @spoonie.collective for more content like this ☝️

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It may be a cliche, but every cloud has a silver lining. Maybe you have realized how much a family member is willing to help, maybe you’ve seen how much stronger than you had realized and you have applied that somewhere else in life. What are you grateful for this thanksgiving season?

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Everyday can be different with rare diseases, there can be new challenges daily or the same challenges that feel even harder. It’s nice to be reminded that strength comes from endurance.

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Meditation has been shown to help reduce chronic pain and relieve stress for countless other diseases. Articles on our site explain why meditation has been proven to help pain. If you have five minutes to spare today, challenge yourself take them with a quiet mind.

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Still no 😬

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Sometimes chronic diseases keep giving hard lessons, and you have to gather the strength to learn it again.

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Suffering and strength so often come together, you grow with each recovery. Keller’s words were a truth she knew well.

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Never underestimate small habits, minor changes, your daily routine. Life is made up of many much smaller decisions.

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What’s wrong with a great team of medical specialists and a few close friends? Quality over quantity. 😬
Follow @asecretspoonielife for more quotes like this one ☝️

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We met the talented Michaela at EveryLife’s rare artist reception last February. Check out @ogrefairydoodles for more digital art that emphasizes disabilities visibility with an art nouveau influence. Additionally, posts include detailed image IDs.

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We love the work of @spoonie_village! This post is from a series on space— and how we hold space for people with chronic illnesses. The creator of this work describes holding space as “essentially walking alongside someone without an agenda.” How do you hold space for spoonies in your life?

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This quote is from Tom Seaman’s article “The Real Impact of the Pain That People Cannot See.” Tom was diagnosed with dystonia about 20 years and works on providing resources to others living with chronic pain. The link to his full article is in our bio. @coachtom12

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It’s sometimes hard for people to understand that chronic diseases can have good and bad days, but “still” will always be part of your journey. The “chronic” in chronic conditions can feel draining without an end to sickness💆‍♀️ What goals you do to make for handling your chronic disease?
Follow @chronicillnessmemes to see more pictures like this one☝️

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Nous croyons Les patients atteints de maladies rares sont des personnes et non un diagnostic. Grâce à l’éducation, à la sensibilisation et à l’humour, nous aidons les patients, les soignants et les personnes de soutien en fournissant des nouvelles et des histoires pertinentes et souvent inspirantes.

Nos objectifs sont de partager des histoires, de cultiver une communauté forte, de fournir les dernières découvertes médicales, de connecter les gens et de produire des informations pionnières pour les patients. Aidez-nous à atteindre ces objectifs en nous parlant un peu de vous!

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