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Les Mèmes de Patient Worthy

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  2. Les Mèmes de Patient Worthy

Patient Worthy Memes

Cancer-related fatigue is distinct from regular ti Cancer-related fatigue is distinct from regular tiredness. It's a medical symptom affecting cognition, mood, and quality of life, yet it's often overlooked. This awareness month, let's change that conversation. 
#CancerFatigueAwareness #CancerAwareness #CancerFatigue #PatientWorthy
#ShareYourStory with us at the link in our bio!
The invisible side of chronic illness: medication The invisible side of chronic illness: medication tradeoffs, lost relationships, emotional labor, appointment fatigue, and endless healthcare admin. Swipe to understand what patients actually navigate. 💙 #ChronicIllness #InvisibleIllness
#ShareYourStory with us at the link in our bio.
RFK's Granddaughter, Tatiana Schlossberg, Reveals RFK's Granddaughter, Tatiana Schlossberg, Reveals Diagnosis of Rare Blood Cancer. Read now at PatientWorthy.com
#PatientWorthy #RareBloodCancer #Leukemia
Addison's disease may be rare, but understanding i Addison's disease may be rare, but understanding it can make a big difference. Learning the signs and knowing the basics helps raise awareness and support those affected! #RareDiseaseOfTheWeek #AddisonsDisease #ShareYourStory #PatientWorthy
FDA Investigates Death Linked to Takeda’s Adzynma FDA Investigates Death Linked to Takeda’s Adzynma Therapy. Read now at PatientWorthy.com
#PatientWorthy #CongenitalThromboticThrombocytopenicPurpura #cTTP
Patients & Caregivers Needed: Share Your Hunter Sy Patients & Caregivers Needed: Share Your Hunter Syndrome Journey
Are you living with Hunter Syndrome or caring for someone who is? Your story matters and it can make a real difference. By sharing your experience, you help others feel less alone, provide hope, and offer valuable insights to families navigating this rare condition. Together, we can build a community of strength and support.  If you're interested in learning more or joining the conversation this week, visit patientworthy.com for the latest information. If you have a story to share, click the link in our bio.
#HunterSyndrome #RareDisease #PatientWorthy #StoryShare
Hunter Syndrome affects 1 in 100,000-150,000 boys Hunter Syndrome affects 1 in 100,000-150,000 boys and is an X-linked genetic disorder, which is why only males get it. There are 2 types with different speeds of progression, but treatment options are available! 🧬 Swipe for the facts and share your story with us at the link in our bio.
#HunterSyndrome #RareDisease #PatientWorthy #ShareYourStory
First-in-Human Gene Therapy Offers Hope for Hunter First-in-Human Gene Therapy Offers Hope for Hunter Syndrome: Oliver’s Remarkable Turnaround. Read now at PatientWorthy.com
#PatientWorthy #GeneTherapy #HunterSyndrome #MPSII
"The Part That Died". Read now at PatientWorthy.co "The Part That Died". Read now at PatientWorthy.com
#PatientWorthy #PatientStory #BrainCancer #Cancer #RareCancer
For patients with rare diseases, nosocomial compli For patients with rare diseases, nosocomial complications can be especially serious because their underlying conditions often make them more vulnerable to infections or adverse affects during hospital stays. Understanding and preventing nosocomial issues is crucial in rare disease care, where each complication can have a significant impact on health impacts. #RareWordOfTheWeek #RareDisease #ShareYourStory #PatientWorthy
FDA Approves Koselugo for Adults with Neurofibroma FDA Approves Koselugo for Adults with Neurofibromatosis Type 1.  Read now at PatientWorthy.com
#PatientWorthy #Koselugo #NeurofibromatoisisType1 #NF1
Marc Nolan's Announces Partnership with the United Marc Nolan's Announces Partnership with the United Leukodystrophy Foundation https://bit.ly/48IiE7S Read now at PatientWorthy.com
#PatientWorthy #MarcNolan #UnitedLeukodystrophyFoundation
🌟 Spotlight on Hunter Syndrome 🌟 This week at Pati 🌟 Spotlight on Hunter Syndrome 🌟
This week at Patient Worthy, we’re shining a light on Hunter Syndrome, a rare genetic disorder that impacts how the body breaks down certain sugar molecules. When these molecules build up over time, they can cause damage to organs and tissues, affecting both physical and mental development.
Throughout the week, we’ll share:
✅ Valuable insights
✅ Potential treatment options
✅ Stories from patients and caregivers
Join the conversation and learn more at patientworthy.com
💬 Have a story to share? Click the link in our bio-we’d love to hear from you!
#HunterSyndrome #RareDisease #PatientWorthy #PatientAdvocacy
NHS Fast-Tracks Glofitamab, Expanding Curative Opt NHS Fast-Tracks Glofitamab, Expanding Curative Options for Aggressive Lymphoma. Read now at PatientWorthy.com
#PatientWorthy #DiffuseLargeB-cellLymphoma #DLBCL #Glofitamab
New Hope for Kidney Disease: Vera Therapeutics' At New Hope for Kidney Disease: Vera Therapeutics' Atacicept Advances Through Accelerated FDA Path. Read now at PatientWorthy.com
#PatientWorthy #KidneyDisease #IgANephropathy #IgAN
At 34 years old, Jenna was diagnosed with neuroend At 34 years old, Jenna was diagnosed with neuroendocrine tumors, or NETs. As a married mother to a young son, the news was devastating. Jenna shares her diagnosis and treatment journey to inspire and encourage others to be their own best advocates! Read her story at PatientWorthy.com: https://patientworthy.com/2025/12/08/jennas-journey-with-neuroendocrine-tumors-nets/

#Neuroendocrinetumors #NETs #PatientWorthy #WHATNEXT #patientstories
FOLLOW PATIENT WORTHY ON INSTAGRAM
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
Read Full Story Here

Nous croyons Les patients atteints de maladies rares sont des personnes et non un diagnostic. Grâce à l’éducation, à la sensibilisation et à l’humour, nous aidons les patients, les soignants et les personnes de soutien en fournissant des nouvelles et des histoires pertinentes et souvent inspirantes.

Nos objectifs sont de partager des histoires, de cultiver une communauté forte, de fournir les dernières découvertes médicales, de connecter les gens et de produire des informations pionnières pour les patients. Aidez-nous à atteindre ces objectifs en nous parlant un peu de vous!

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