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Les Mèmes de Patient Worthy

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  2. Les Mèmes de Patient Worthy

Patient Worthy Memes

✨ Happy Holidays from all of us at Patient Worthy! ✨ Happy Holidays from all of us at Patient Worthy! This season, we're grateful for the rare disease community that inspires everything we do. To patients, caregivers, advocates, and loved ones: your voices matter, your stories matter, and you are always at the center of our work. Wishing you warmth, hope, and moments of peace this holiday season and into the new year! ✨ 

#PatientWorthy #WHATNEXT
Merry Christmas! Today we're honored to share this Merry Christmas! Today we're honored to share this patient story that takes the form of a poem, written by Spence Shishido, and shared with us by our friends at Elephants & Tea. Read at patientworthy.com!
Stiff person syndrome is rare and often misunderst Stiff person syndrome is rare and often misunderstood, which can delay recognition and care. Greater awareness helps people connect symptoms sooner, improves support, and brings visibility to a condition that deserves more understanding! #StiffPersonSyndrome #RareDiseaseOfTheWeek #RareDiseaseAwareness #ShareYourStory #PatientWorthy
The FDA has approved the first AI tool aimed at ad The FDA has approved the first AI tool aimed at advancing drug development for the liver condition MASH. Read more at patientworthy.com!
🎄 🕎 ❄️ The holidays can be magical and heavy all a 🎄 🕎 ❄️ The holidays can be magical and heavy all at once. As a caregiver, taking time for yourself isn't selfish, it's essential. Say no when you need to. Take a break. Rest without guilt. You deserve moments of peace too. And you can't fill from an empty cup! ❄️ 🕎 🎄 

#caregiver #PatientWorthy #WHATNEXT
For HIV awareness month we had the privilege of me For HIV awareness month we had the privilege of meeting Jessica Glaspie @lifeloveandhiv. She has been living with HIV for 15 years and advocating for over 10 years. She is the author of the memoir "Life, Love, and HIV" and takes great pride in her advocacy work as an educator and motivational speaker. She is a single mother of 3 beautiful, HIV negative children and loves traveling! Read Jessica's full story now at https://patientworthy.com/

  #HIV #HIVawareness #patientworthy #shareyourstory
Managing energy during the holidays is tough, espe Managing energy during the holidays is tough, especially for patients and caregivers. Remember: it’s okay to rest, set boundaries, and focus on what matters most. Wishing you restful, meaningful moments this season! #HolidaySelfCare #ChronicIllness #SelfCareMatters #PatientWorthy
Here is a helpful message from Jessica @jayrayofli Here is a helpful message from Jessica @jayrayoflight sharing her knowledge on advocacy groups that have supported her throughout the different stages of her cancer journey. We appreciate you sharing your insights into this space with the community. Thank you for being an active advocate! #advocacy #cancersupport #patientworthy #whatnext For more information on the advocacy groups Jessica mentioned click on the links below:
https://elephantsandtea.org/ 
https://www.cheekycharity.org/
https://fightcolorectalcancer.org/
Breakthrough in COPD Management: GSK's Nucala Adva Breakthrough in COPD Management: GSK's Nucala Advances Toward European Approval for Eosinophilic Patients. Read at PatientWorthy.com
#PatientWorthy #COPD #chronicObstructivePulmonaryDisease #GSK
The FDA has approved LumosityRx (a digital therape The FDA has approved LumosityRx (a digital therapeutic tool) as a prescription for adults with ADHD. Read more at patientworthy.com!
We're proud to present you with part 4 in our ongo We're proud to present you with part 4 in our ongoing caregiver story-share by Bill Clark about his wife Becky. Read at patientworthy.com!
Stepwise progression highlights how rare disease a Stepwise progression highlights how rare disease and chronic illness don’t always follow a smooth or predictable path. For many patients, symptoms change in stages, with periods of stability followed by sudden shifts—reshaping what “normal” looks like over time. #RareWordOftheWeek #RareDisease #ChronicIllness #PatientWorthy
Regular check-ins with your healthcare team and nu Regular check-ins with your healthcare team and nutritional support are essential. Screening for related autoimmune conditions and maintaining a balanced diet will help you stay healthy.
Bottom line: DH is manageable with the right combination of diet, medication, and support. If you suspect DH, consult a dermatologist or gastroenterologist for a personalized plan. Visit our website at patientworthy.com to share your DH journey or follow along for more information.
#DermatitisHerpetiformis #PatientWorthy #CeliacDisease #GlutenSensitivity #AutoimmuneDisease
Eli Lilly's Jaypirca Positions Itself as Superior Eli Lilly's Jaypirca Positions Itself as Superior Alternative to Imbruvica in Blood Cancer Treatment. Read now at PatientWorthy.com
#PatientWorthy #ClinicalTrial #Jaypirca #BloodCancer #CLL #SLL
🌍 Shake and Freeze Day – December 21 On the shorte 🌍 Shake and Freeze Day – December 21
On the shortest day of the year, we step out in shorts to brave the cold and raise awareness for Parkinson’s disease. ❄️💙
This annual campaign was started by a mother-daughter duo whose family has been deeply impacted by Parkinson’s, eight diagnoses in total. Their mission? Educate, inspire, and fund research so that one day, no one has to “shake and freeze” without hope for a cure.
Join us in honoring Dr. James Parkinson on his death anniversary and standing with those affected. Wear your shorts, share your photos, and help spread the word!
👉 Learn more, and make a difference.
https://shakeandfreeze.com
#ShakeAndFreezeDay #ParkinsonsAwareness #FindACure #PatientWorthy
December is Seasonal Depression Awareness Month. I December is Seasonal Depression Awareness Month. If you're struggling with persistent low mood, fatigue, or hopelessness as the days get shorter, you're not alone. Seasonal Affective Disorder affects 10 million Americans annually—and it's treatable. Swipe to learn more. #SeasonalDepressionAwarenessMonth #SeasonalDepression #MentalHealthMatters
FOLLOW PATIENT WORTHY ON INSTAGRAM
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
Read Full Story Here

Nous croyons Les patients atteints de maladies rares sont des personnes et non un diagnostic. Grâce à l’éducation, à la sensibilisation et à l’humour, nous aidons les patients, les soignants et les personnes de soutien en fournissant des nouvelles et des histoires pertinentes et souvent inspirantes.

Nos objectifs sont de partager des histoires, de cultiver une communauté forte, de fournir les dernières découvertes médicales, de connecter les gens et de produire des informations pionnières pour les patients. Aidez-nous à atteindre ces objectifs en nous parlant un peu de vous!

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