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Les Mèmes de Patient Worthy

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  2. Les Mèmes de Patient Worthy

Patient Worthy Memes

International AHC Day is about visibility, underst International AHC Day is about visibility, understanding, and support. 
Alternating Hemiplegia of Childhood is rare, complex, and often misunderstood—but awareness helps change that. By sharing, learning, and listening to the AHC community, we help push for earlier recognition, better care, and continued research. Every post, conversation, and show of support matters! #AHC #AHCAwareness #RareDisease #PatientWorthy
Major Depressive Disorder (MDD) is more than a rou Major Depressive Disorder (MDD) is more than a rough patch!  It’s a real medical condition that deserves real care. Getting treatment early can protect your well‑being, strengthen daily functioning, and help prevent symptoms from becoming more overwhelming. Effective care can include therapy, medication, lifestyle support, or a combination designed around your needs.
You don’t have to wait for things to get worse to reach out. Support works. Healing is possible. And you deserve to feel better-starting now.
#MDD #MentalHealth #PatientWorthy #ShareYourStory
We're honored to share Nick and Rene Kelly's story We're honored to share Nick and Rene Kelly's story, detailing their experiences with their infant daughter who's living with cystic fibrosis. Read at patientworthy.com!
Scientists are beginning to utilize HIV treatments Scientists are beginning to utilize HIV treatments as a way to treat rare genetic diseases, such as mitochondrial disease. Read more here:

https://patientworthy.com/2026/01/17/from-hiv-treatment-to-rare-genetic-disease-nucleoside-therapy-enters-a-new-era/
January is National Birth Defects Awareness Month. January is National Birth Defects Awareness Month.
It’s a time to recognize that every family’s story deserves understanding and support. Birth defects affect babies every day, and many families begin their journey facing challenges they never expected. Awareness helps people learn what contributes to a healthy pregnancy and why early detection can change long‑term outcomes. It also connects families to the resources that help them feel supported and informed. 
A baby is born with a birth defect every 4.5 minutes in the United States, reminding us how important compassion and community truly are. Families should never feel alone as they navigate care, decisions, and hope. 
This year’s theme, “Every Journey Matters,” highlights how every experience is unique and every child deserves a strong start. 
Throughout January, organizations are offering ways to learn and stay engaged. MotherToBaby is hosting a free national webinar, “Zika in 2026: Lessons from the Past and the Current State of Research and Risk,” on January 28, 2026 at 12 PM ET for clinicians, families, and anyone seeking evidence‑based prenatal information. 
Together, we can spread understanding, support families, and honor every child’s journey.
#BirthDefectsAwarenessMonth #EveryJourneyMatters #PatientWorthy
Diagnosing Major Depressive Disorder isn’t about a Diagnosing Major Depressive Disorder isn’t about a single test — it’s about looking at the bigger picture of someone’s mental and physical health. Providers consider mood, behavior patterns, and overall functioning over time to understand how depression is affecting daily life and rule out other causes. If you have a story you'd like to share, click the link in our bio! #MajorDepressiveDisorder #MDD #ShareYourStory #PatientWorthy
It's #FactFriday and Glaucoma Awareness Month! Lea It's #FactFriday and Glaucoma Awareness Month! Learn these important facts about the "silent thief of sight" and help spread awareness for early detection and prevention. #GlaucomaAwareness #Glaucoma #PatientWorthy
BioHaven closed out 2025 with disappointing result BioHaven closed out 2025 with disappointing results in a clinical trial for a new medication aimed at treating depression. Read more at patientworthy.com!
Today is Intestinal Malrotation Awareness Day. Int Today is Intestinal Malrotation Awareness Day. Intestinal malrotation affects about 1 in 500 births, yet symptoms are often missed or mistaken for common GI issues. The most critical warning sign is green or bright yellow bile vomiting, which can indicate volvulus, a life‑threatening twisting of the intestines. Other symptoms—abdominal pain, dehydration, lethargy, and failure to thrive, underscore the need for quick action. With many cases diagnosed beyond infancy, awareness across all ages is essential. Early recognition saves lives. Let’s spread the word, support families, and advocate for stronger clinical awareness.
#IntestinalMalrotation #PatientWorthy #VolvulusAwareness
If you're juggling multiple doctors, you know: coo If you're juggling multiple doctors, you know: coordination is exhausting. Between scheduling, records, and conflicting recommendations, managing specialists can be challenging. Swipe for strategies to reduce the chaos and tips for better coordination.
#CareCoordination #HealthcareNavigation #PatientAdvocacy #PatientWorthy
#ShareYourStory with us at the link in our bio!
Major Depressive Disorder (MDD) is a complex medic Major Depressive Disorder (MDD) is a complex medical condition shaped by biological, psychological, and life factors. It affects mood, thinking, and daily functioning. With awareness and support, recovery is possible. Let’s break the stigma and encourage open conversations.
#MajorDepressiveDisorder #MDD #PatientWorthy #MentalHealthMatters #ShareYourStory #YouAreNotAlone
We are honored to share a story from our friend, K We are honored to share a story from our friend, Kaye Lynn. In 2022, Kaye Lynn received a diagnosis of stage four colon cancer. She weighed the suggested treatment options and then created her own path by choosing options that felt right to her. She hopes that every cancer warrior can keep a positive mindset after their diagnosis. Thank you, Kaye Lynn, for sharing your journey to support others. If you are interested in sharing your cancer story, click the link in the bio and we will be in contact with you!
#coloncancer #cancer #storyshare #patientworthy #whatnext
Menopause-related insomnia affects approximately o Menopause-related insomnia affects approximately one in four women during the transition, yet it remains significantly undertreated. Read Breaking New Ground: Daridorexant Offers Hope for Menopausal Insomnia at PatientWorthy.com
#MenopausalInsomnia #PatientWorthy #Insomnia #Menopause
A group of researchers at the University of North A group of researchers at the University of North Carolina - Chapel Hill are showing promising results in the development of an enzyme therapy for Hunter Syndrome. Read more at patientworthy.com!
The FDA has approved the first-ever at-home brain The FDA has approved the first-ever at-home brain stimulation device for the treatment of depression. Read more at patientworthy.com!
Hidradenitis suppurativa awareness matters because Hidradenitis suppurativa awareness matters because this condition is often misunderstood, dismissed, or diagnosed late. For many people, it’s not “just a skin issue” — it can affect mobility, mental health, work, and daily life. Education helps reduce stigma, encourages earlier care, and reminds people living with HS that they’re not alone! #HidradenitisSuppurativa #HS #RareDisease #ShareYourStory #PatientWorthy
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You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
Read Full Story Here

Nous croyons Les patients atteints de maladies rares sont des personnes et non un diagnostic. Grâce à l’éducation, à la sensibilisation et à l’humour, nous aidons les patients, les soignants et les personnes de soutien en fournissant des nouvelles et des histoires pertinentes et souvent inspirantes.

Nos objectifs sont de partager des histoires, de cultiver une communauté forte, de fournir les dernières découvertes médicales, de connecter les gens et de produire des informations pionnières pour les patients. Aidez-nous à atteindre ces objectifs en nous parlant un peu de vous!

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