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Les Mèmes de Patient Worthy

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  2. Les Mèmes de Patient Worthy

Patient Worthy Memes

September 2025 Urothelial Cancer Update: New Thera September 2025 Urothelial Cancer Update: New Therapies, Diagnostics, and Expert Perspectives Lead the Way. Read now at PatientWorthy.com
#PatientWorthy #UrothelialCancer #CancerUpdate
Unlocking a New Era: Illumina’s 5-Base Solution Unlocking a New Era: Illumina’s 5-Base Solution Bridges Genomics and Epigenomics for Multiomic Discovery. Read now at PatientWorthy.com
#PatientWorthy #BloodTesting
🧠 October is Pituitary Awareness Month, a time 🧠 October is Pituitary Awareness Month, a time to shine a light on one of the body’s most powerful but often overlooked glands.
The pituitary gland plays a vital role in regulating hormones that affect growth, metabolism, and overall health. Yet, disorders like Cushing’s disease, acromegaly, and hypopituitarism are frequently misdiagnosed or misunderstood.
This month, we honor the strength of those living with pituitary conditions and advocate for earlier diagnosis, better treatment, and stronger support systems.
💙 Join us in raising awareness by sharing your story or tagging someone who inspires you.
#PituitaryAwarenessMonth #RareButStrong #PatientVoicesMatter #PatientWorthy
This week on Patient Worthy's site, we're putting This week on Patient Worthy's site, we're putting a spotlight on Urothelial Cancer. We'll be sharing helpful information, explore potential treatment options, and provide an opportunity for patients and caregivers to share their own personal stories. If you're interested in learning more or joining the conversation this week, visit patientworthy.com for the latest information.
If you have a story to share, click the link in our bio! #UrothelialCancer #Cancer #ShareYourStory #PatientWorthy
We're honored to share this patient story from our We're honored to share this patient story from our friends at Elephants and Tea by Megan, detailing her fight against Non-Hodgkin's Lymphoma. Read at patientworthy.com!
Amyloidosis is a rare and often misdiagnosed disea Amyloidosis is a rare and often misdiagnosed disease caused by abnormal protein deposits in organs and tissues. Early detection is critical, yet many patients face years of delayed diagnosis.
This year’s theme: Hereditary Amyloidosis
Let’s raise awareness, support patients, and advocate for faster recognition and better care.
✅ How you can help:
🔸 Wear orange – the color of amyloidosis awareness
🔸 Share facts and patient stories
🔸 Use hashtags to spread the word:
#WorldAmyloidosisDay #AmyloidosisAwareness #PatientWorthy
Narcolepsy is a neurological disorder that affects Narcolepsy is a neurological disorder that affects the brain’s ability to regulate sleep, causing extreme daytime sleepiness and sudden muscle weakness. Diagnosis involves specialized evaluation by sleep experts to understand how the condition affects your sleep patterns. While there’s no cure, treatment focuses on managing symptoms and improving daytime alertness, nighttime sleep, and overall quality of life. Raising awareness helps people recognize the signs early and access the care and support they need!
If you're interested in sharing your story with narcolepsy, click the link in our bio! #NarcolepsyAwareness #Narcolepsy #ShareYourStory #PatientWorthy
We're honored to share this story from our friends We're honored to share this story from our friends at Elephants & Tea about Anna's fight against Hodgkin Lymphoma. Read at patientworthy.com!
🩸 What Happens in MDS? • The body produces f 🩸 What Happens in MDS?
 • The body produces fewer red blood cells, white blood cells, and platelets.
 • These cells may be malformed or function poorly.
 • MDS is considered a type of cancer and can progress to acute myeloid leukemia (AML) in some cases.

🔬 Myelodysplastic Syndromes (MDS) affect thousands of lives every year, but awareness remains low.
💙 Let’s change that.
#MDSAwareness #BloodCancerAwareness #RareDisease #PatientWorthy
Meet Sierra, Advocacy & Recruitment Specialist at Meet Sierra, Advocacy & Recruitment Specialist at Patient Worthy!
Sierra is a healthcare management graduate with a background in patient advocacy and recruitment.  Currently pursuing her master’s degree in digital marketing, she combines her expertise in healthcare with a passion for marketing and social media.  She uses her skills to share compelling stories, shedding light on the unique journeys of patients and caregivers.  Through her work, Sierra aims to raise awareness, inspire change, and make a lasting impact.  She thrives on connecting with people, learning from their unique experiences, and believes in the transformative power of sharing stories – because everyone has a story worth telling. #PatientWorthy
Narcolepsy Linked to Higher Cardiovascular Disease Narcolepsy Linked to Higher Cardiovascular Disease Risk: Study Highlights Need for Regular Screening. Read now at PatientWorthy.com
#PatientWorthy #Narcolepsy
Gaucher disease affects how the body breaks down c Gaucher disease affects how the body breaks down certain fats, leading to symptoms like enlarged organs, bone pain, and fatigue. With three distinct types, the disease can range from manageable to life-threatening. This year’s theme, “See the Signs, Shorten the Diagnostic Journey,” reminds us how critical early recognition is for improving outcomes. Let’s raise awareness, support patients, and advocate for faster diagnoses and better care.
#GaucherAwareness #RareDiseaseMonth #SeeTheSigns #PatientWorthy #GeneticDisorders #GaucherDisease
Living with narcolepsy can be challenging, but sma Living with narcolepsy can be challenging, but small lifestyle changes can make a big difference! Every step counts towards better daily balance. If you're interested in sharing your story, click the link in our bio!
#NarcolepsyAwareness #SleepHealth #LifestyleTips #ShareYourStory #PatientWorthy
It’s Dysautonomia Awareness Month and #FactFrida It’s Dysautonomia Awareness Month and #FactFriday! Learn these 5 key facts about dysautonomia and help spread the word about this often misunderstood group of conditions. #DysautonomiaAwarenessMonth #Dysautonomia #PatientWorthy
#ShareYourStory with us at the link in our bio.
Dual Drug Strategy Offers Hope for Most Common Liv Dual Drug Strategy Offers Hope for Most Common Liver Disease and Heart Risk. Read now at PatientWorthy.com
#PatientWorthy #MASH #MASLD
We're proud to share this patient story from our f We're proud to share this patient story from our friends at GACI Global, originally all the way from Italy, about Laura's life with rickets. Read at patientworthy.com!
FOLLOW PATIENT WORTHY ON INSTAGRAM
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)

Nous croyons Les patients atteints de maladies rares sont des personnes et non un diagnostic. Grâce à l’éducation, à la sensibilisation et à l’humour, nous aidons les patients, les soignants et les personnes de soutien en fournissant des nouvelles et des histoires pertinentes et souvent inspirantes.

Nos objectifs sont de partager des histoires, de cultiver une communauté forte, de fournir les dernières découvertes médicales, de connecter les gens et de produire des informations pionnières pour les patients. Aidez-nous à atteindre ces objectifs en nous parlant un peu de vous!

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