• Rare Disease News
  • contribute@patientworthy.com
Facebook-f
Instagram
Linkedin-in
Pinterest
Twitter
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet Our Team
    • Collaborative Content On Patient Worthy
    • Contact Us
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
  • Resources
    • Library
    • Memes
    • Events
    • Patient Worthy FAQs
  • Listen
  • Languages
    • Spanish / Español
    • Russian / русский
    • French / Français
  • Log In
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet Our Team
    • Collaborative Content On Patient Worthy
    • Contact Us
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
  • Resources
    • Library
    • Memes
    • Events
    • Patient Worthy FAQs
  • Listen
  • Languages
    • Spanish / Español
    • Russian / русский
    • French / Français
  • Log In
  • Join PW

Patient Worthy’s Memes

Home » Patient Worthy’s Memes

Patient Worthy Memes

The first 2021 RARE on the Road Virtual State-Spec The first 2021 RARE on the Road Virtual State-Specific Training and Networking event is coming up May 4th for residents of Nevada! Brush up on your rare disease advocacy skills and connect with other advocates in your area. 

Registration is now OPEN!  Don’t miss the opportunity to build upon the skills and interests already in your toolbelt while virtually meeting others in your state to share experiences and ideas. 
Copy and paste the link below to register or go to raretour.org

https://bit.ly/3g4Xqax

#rareontheroad
Repost from the talented @_restingitchface ! “ Repost from the talented @_restingitchface ! 

“Psoriasis and its damage is more than just skin deep.

It is important to emphasize that psoriasis is more than just plaques and itchy patches. Psoriasis is not merely a skin disease but rather a multi-system inflammatory disease with negative implications for individuals' overall health.

Psoriasis commonly presents on the skin and nails, but a growing body of evidence has suggested that psoriasis is associated with systemic comorbidities. Some of which are joint inflammation, and psoriatic arthritis. There also is a risk for cardiovascular complications and psychosocial disorders. Other conditions in patients with psoriasis include diabetes mellitus, high blood pressure, Crohn disease, and the metabolic syndrome.

The struggles in battling psoriasis is not just wanting to itch your skin off— it’s so much more than that. It’s the pain of not being able to move because everything hurts, it’s the pain of having to endure people staring at you in disgust, it’s the pain of not knowing how long you have to deal with this illness, and it’s the pain of a thousand uncertainties.

Psoriasis is more than just a skin condition that can be treated just by slapping creams and lotions in your body.

Psoriasis more than skin deep— and you are more than just a red rash and a flaky skin. You are more than your psoriasis.” 

#WorldPsoriasisDay #psoriasis #psoriasisawareness #psoriasiswarrior #psoriasiscommunity 
•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease  #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease
#breakasweatforfabry : post a selfie with some swe #breakasweatforfabry : post a selfie with some sweat, it’s #fabryawarenessmonth! Tell us your Fabry story in the bio. 

Thank you @fabryinternationalnetwork for getting the word out on the campaign 🙂

•
•
•
#fabrydisease #fabry #fabryinternationalnetwork #fabryawareness •#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease  #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease
Sometimes we don’t realize the pain of needing t Sometimes we don’t realize the pain of needing to constantly try to validate our pain, it makes us question ourselves. Skepticism can cut to our self belief. Remember you are the one in your body. 

Thank you @how.u.feeling for this graphic!

•
•
•
#raredisease #chronicpainmemes #chronicillnessandme  #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease  #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease #autoimmunewellness
Being a caretaker for someone with a disability ma Being a caretaker for someone with a disability made me appreciate accessible spaces, inclusive communities, how much my child can see that the rest of us can’t. You never know your strength till your forced to pass your limits and learn about the might of our bodies. Shoutout to all of the mighty parents and caretakers who became a new person too in the process 💪🏽💪😌

Thank you @amanda.griffith.atkins for the reminder ✨

•
•
••#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease  #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease
This week on our podcast, we speak with EMT and na This week on our podcast, we speak with EMT and narcolepsy advocate Tara O'Conner about her recently published article on PatientWorthy.com. Tara talks about her journey to diagnosis, why narcolepsy is an under-diagnosed condition and ways friends and family can be supportive of someone with the condition. Listen to her story!  Link in the linktree in bio!👆👆

•
•
•

•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease  #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease
Our good and bad days have a looooong range in bet Our good and bad days have a looooong range in between! But who’s counting 🌝💛

•
•

•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease  #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease
The whole world just got a taste of health insecur The whole world just got a taste of health insecurity. Now is a good time for people to reflect on how much of this experience isn’t new for the spooner community. We can take this time to integrate the experiences, use this to illustrate what we go through, to show ways life can stay accessible and virtual and aware of those with extra health needs. We are among you, with us, brothers, sisters, teachers, coworkers. Remember us, as life kicks back up.

Thank you @spoonie_village for this reminder 🌟🌝

•
•
•
 •#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease  #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease
All dressed up and ready to stay home 💛🥳 At All dressed up and ready to stay home 💛🥳 At least we have Instagram!

Thank you @rana2.0 for your many beautiful chronic illness warrior graphics ✨

•
•
•#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease  #chronicillnesswarrior #eds #ehlersdanlossyndrome #chronicpainmemes #cysticfibrosis #rheumatoidarthritis #autoimmunedisease
On our podcast, Colby talks to Rachel Sutherland, On our podcast, Colby talks to Rachel Sutherland, an editor and copywriter with our partners at Snow Companies, shares her #cysticfibrosis story! She talks about her own diagnosis and journey, and the importance of establishing a support system.  Listen to her story!  Link in the linktree in bio!👆👆

disease advocacy. Listen to her speak, link in the link tree in bio 👆👆
#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #autoimmunewarrior #autoimmunedisorders
We have been told all of them and more, all of us! We have been told all of them and more, all of us! So please, no commentary necessary, just questions and care 🌞🌞

Thank you @colourblind_zebra for this lovely graphic 🌟

•
•
•
#abreathofhopefoundationfornmo #raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #autoimmunewarrior #autoimmunedisorders 
#enfermedadesraras #enfermedadesautoimmunes #enfermedadescronicas
When you feel pain everyday, you don’t eventuall When you feel pain everyday, you don’t eventually stop hurting. You just keep hurting, everyday. We get used to it, we having our strategies and tools, but we’re certainly not numb.🖤

Thank you @how.u.feeling for this reminder!!

•
•
•

#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #autoimmunewarrior #autoimmunedisorders 
#enfermedadesraras #enfermedadesautoimmunes #enfermedadescronicas
My illness makes me resilient, empathetic, gratefu My illness makes me resilient, empathetic, grateful, and alive. Nothing less about that!

•
•

#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #autoimmunewarrior #autoimmunedisorders 
#enfermedadesraras #enfermedadesautoimmunes #enfermedadescronicas
How is this little potato man shared by @rarepatie How is this little potato man shared by @rarepatientvoice both so adorable + accurate🥺 It’s hard to “do your best” all the time when trying is realllly hard. Your best includes the days you do much less than your best. It’s the ups and downs and everything along the way. It’s riding the waves 🌊🌊

•
•
•

#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #autoimmunewarrior #autoimmunedisorders 
#enfermedadesraras #enfermedadesautoimmunes #enfermedadescronicas
When a child with a chronic illness enters school, When a child with a chronic illness enters school, dealing with the questions and misunderstanding of youth can be disheartening. It goes a long way to make sure your child has been told about embracing diversity and difference, treating uniqueness with kindness, and the importance in treating a child with disabilities just like any other classmate. Once a child is told to embrace difference, they can usually see past the silly stuff and become an ally. 🙌

•
•
•

#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #autoimmunewarrior #autoimmunedisorders 
#enfermedadesraras #enfermedadesautoimmunes #enfermedadescronicas #enfermedadesmentales
Thank you @arthritis_life_cheryl for reminding us Thank you @arthritis_life_cheryl for reminding us how many parts of a disease life we share with all our separate ailments. I hope a day with no stressors for you 🙏⚠️💛

•
•

#raredisease #chronicpain #chronicillness #spoonie #chronicfatigue #autoimmunedisease #autoimmunewarrior #autoimmunedisorders
LOAD MORE FOLLOW PATIENT WORTHY ON INSTAGRAM
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story
Become a Contributor

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Policy
Privacy Policy for CA Residents
EU Privacy Notice

© Copyright Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info