Patient Worthy Memes

Illness is mental, physical, social, spiritual. It

Illness is mental, physical, social, spiritual. It is not just my body going through pain and growth, it is my whole being.

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#raredisease #chronicpain #chronicillness #spoonie #enfermedadesautoinmunes #enfermeras #enfermedadesraras

Did you know 96% of chronic health conditions are

Did you know 96% of chronic health conditions are invisible? #invisibleillness come with their own set of woes, including having the extent that their health is effected understood. Believe patients.

Thank you @spoonie_village for this post!

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#raredisease #chronicpain #spoonie #chronicillness #disabilities

Institutional design is key to quality of life. If

Institutional design is key to quality of life. If accessibility isn’t considered and prioritized, it won’t happen. We need good design to include varied needs.

Thank you @pacingpixie for this graphic!

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#raredisease #chronicpain #spoonie #chronicillness

The effects of an illness aren’t all listed WebM

The effects of an illness aren’t all listed WebMD. POTS is tiredness and brain fog, but also joints aching after a soccer match and missed sleepovers for doctors appointments.

Thank you @standinguptopots for this graphic!

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#raredisease #chronicpain #chronicillness #spoonie #pots #eds

I want doctors and friends to hear my pain so I kn

I want doctors and friends to hear my pain so I know others understand my experience. Believe our symptoms, stories, suffering. Believe patients.

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#raredisease #chronicpain #chronicillness #spoonie #enfermedades #enfermedadesautoinmunes #enfermedadesraras #enfermedadescronicas

Listen to our podcast speak with J.G. Jones, a ren

Listen to our podcast speak with J.G. Jones, a renowned comic book illustrator who makes covers for Batman and Frankenstein. A decade ago, he was diagnosed with a rare blood cancer, Polythemia Vera. Now, he’s taking time to illustrate other patients with MPN’s in the series “Rare Reflections: MPN’s Unmasked.” After speaking to an array of patients, Jones said,

“Everyone has their own approach in life, but I have found everyone is very tenacious. They find a way to cope with the initial shock of the diagnosis and them almost immediately, find a way to live with it."

Listen to the link I’m bio 👆👆👆

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#raredisease #chronicpain #chronicillness #spoonie #MPN #MPN’s #rarebloodcancer #polycythemiavera

Im not enjoying my off days, I’m working as hard

Im not enjoying my off days, I’m working as hard as ever. I’m not on vacation, I’m battling my symptoms.

Thank you @how.u.feeling for this graphic!

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#raredisease #chronicpain #chronicillness #spoonie

Health is relative, sometimes sickness is a lifest

Health is relative, sometimes sickness is a lifestyle.

Thank you @thechronicallyhonest for this graphic!

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#raredisease #chronicpain #chronicillness #spoonie

I am not stronger because of all that I learned fr

I am not stronger because of all that I learned from my illness, although it gave plenty of lessons.

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#raredisease #chronicpain #chronicillness #spoonie #enfermeras #enfermedadesraras #enfermedadesautoinmunes #enfermeras #enfermedades

You are not responsible for your illness, or the m

You are not responsible for your illness, or the many canceled plans and rest days that come with it. Not being responsible for your illness doesn’t just mean the illness, but giving yourself the extra understanding for what caring for that means.

Thank you @worrywellbeing for this graphic!

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#raredisease #chronicpain #chronicillness #spoonie

Sometimes it can be hard when you have a chronic i

Sometimes it can be hard when you have a chronic illness to complain because you feel like you’ve used up that time. In the end though, your friends and family just want to know your truth, and are not judging or burdened by that honesty. It is hard to be vulnerable, but vulnerability is courageous and bindings

Thank you @spoonie_village for this graphic!

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#raredisease #chronicpain #chronicillness #spoonie

I am not flakey, my illness is 😭 Thank you @my

I am not flakey, my illness is 😭

Thank you @myfibroandmejourney for this image!

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#raredisease #chronicpain #chronicillness #spoonie

Healing is hard. It takes a lot of work and discip

Healing is hard. It takes a lot of work and discipline to recovery from episodes, but dealing with shifting tides is a practiced skill.

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#raredisease #chronicpain #chronicillness #spoonie #enfermedadesautoinmunes #enfermedadescronicas #enfermedadesautoinmunes

Sometimes I feel like I have imposter syndrome wit

Sometimes I feel like I have imposter syndrome with my own illness. My disease hurts, but others are much worse. I don’t feel like I can claim the title of sick or disease when people have it so much worse. But I am sick, and acknowledging it just gives it air. I can say I am well in many ways, and sick in others, and both are true.

Thank you @thechronicallyhonest for this graphic!

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#raredisease #chronicpain #chronicillness #spoonie

If I could stop being tired eventually that would

If I could stop being tired eventually that would be nice too 😴😴

Thank you @ladyfibromyalgia for this meme!

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#raredisease #chronicillness #spoonie #chronicpain

I am sick today not because I didn’t do yoga or

I am sick today not because I didn’t do yoga or eat enough vegetables or not try your friends suggestion, I’m sick because of my chronic illness.

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#raredisease #chronicpain #chronicillness #spoonie #enfermedadescronicas #enfermeras #enfermedadesraras #enfermedadesautoinmunes #duele

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We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

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