Patient Worthy Memes

You don’t need to justify to anybody why you are

You don’t need to justify to anybody why you are more productive this week than last, you can work late now but it wasn’t possible before, you are less able today that you were yesterday. Illnesses take new shapes and sizes everyday and you learn to know yourself and your current needs, rather than making decisions about what you ‘should’ be capable of now. It’s okay if it changes, you are just respecting yourself and your needs by recognizing that. Thank you @spoonie_village for your classically fantastic graphic! • • • #raredisease #chronicillness #chronicpain #spoonie

There’s tiredness, and then there’s chronic fa

There’s tiredness, and then there’s chronic fatigue which is a whole other level. But regardless of the disease- rare diseases can be soo draining. Which one are you today? Thank you @introvertdoodles for this graphic! • • • #raredisease #chronicillness #chronicpain #spoonie

You don’t have to justify your healthcare needs

You don’t have to justify your healthcare needs to anyone. Listen to yourself. • • • #raredisease #chronicpain #chronicillness #spoonie

Or maybe you do know, but it’s useful to have a

Or maybe you do know, but it’s useful to have a graphic to explain your experience. What common misconceptions do you find about your illness? Thank you @meredithaleighawells for this set of graphics! • • • #raredisease #chronicillness #chronicpain #spoonie

When we get better from an illness, it can feel li

When we get better from an illness, it can feel like we’re losing a part of ourselves- our routine, identity, habits. Illnesses can be time consuming, and play a large role in scheduling our lives. It can be hard to change and reform a new identity and lose your old coping techniques. It makes sense to have become comfortable in sickness, making wellness feels strange. Recovery is a process that includes many details and transitions. Thank you @worrywellbeing for this great design! • • • #raredisease #chronicillness #chronicpain #spoonie #recovery

Your tiredness, your flare ups, and your stress ar

Your tiredness, your flare ups, and your stress are not your fault. You are not guilty for feeling your disease. • • • #raredisease #rarediseaseawareness #chronicpain #chronicillness #enfermedad #enfermedadesraras #enfermedades #spoonie

*replace this with rare diseases and it’s all st

*replace this with rare diseases and it’s all still applicable* Diseases are not contained, they shadow over all of our life. This web could continue to get more and more specific because disease affects the details. Thank you @crazyheadcomics for creating this graphic! • • • #raredisease #chronicpain #chronicillness #spoonie

In celebration of 30 years since the ADA was passe

In celebration of 30 years since the ADA was passed, @meredithaleighawells made this lovely graphic to give some context to how that history played out. Educate yourself 🙂 • • • #raredisease #chronicillness #chronicpain #spoonie #ada #americanswithdisabilitiesact

Our diseases often impede on our ability to do all

Our diseases often impede on our ability to do all the things we used to, whether it be because of symptoms, fatigue, busy medical schedules, or heightened risk. You are still strong, durable you, even if you’re schedule isn’t the same. • • • #raredisease #chronicpain #chronicillness #spoonie #enfermedad #enfermedadesraras #enfemedadrara #enfermedadcronica

Between medications, flare ups, chronic rest days,

Between medications, flare ups, chronic rest days, and symptoms, our body’s go through a lot. It is normal to gain weight, loss weight, have new rashes or lumps or colors. It can be hard to change and adapt to new looks, but it helps with accepting your bodies hard work. Thank you @spoonie_village for this great graphic! • • • #raredisease #chronicpain #chronicillness #spoonie

Oops! Spelling error alert 😬 *”Rare disease i

Oops! Spelling error alert 😬 *”Rare disease individuals are much more than their health. They want to be doctors, nurses, to take an art class.” — *apologies for the misspelling! On our podcast this week, we hear from Annie Kennedy and Lindsey Cundiff of @everylifeorg about their survey to dig into the true total costs of living with a rare disease, past medical bills to include travel, babysitters, and medical foods. The deadline has been extended to August 3rd, 2020 so be sure to take the service and help contribute to rare disease advocacy by sharing your experience! After, they speak about their new scholarship program that awards 200 lucky patients up to $6,000 to take any classes of their choosing. Listen to them unpack the financial burden of rare disease, and their effort to help combat it. Link in bio ☝️☝️ • • • #raredisease #chronicillness #chronicpain #spoonie

This may not be true for everyone, but for many of

This may not be true for everyone, but for many of us, talking about our disease is better than pretending it doesn’t play a big role in our life. Like any other question about our life and identity, it helps to just be open and non-judgementally ask. Thank you @spoonie_village for making this! • • • #raredisease #chronicillness #chronicpain #spoonie

You do not need to apologize for flare ups ❤️

You do not need to apologize for flare ups ❤️ •• • • #raredisease #chronicillness #chronicpain #spoonie #enfermedadesraras #enfermedad #enfermedadesautoinmunes

For some of us, medication is the ONLY way, not a

For some of us, medication is the ONLY way, not a choice. It doesn’t make us weak, it helps keep us strong. Thank you @colourblind_zebra for making this graphic! • • • #raredisease #chronicillness #chronicpain #spoonie

We are not lazy for frequent rest days, those are

We are not lazy for frequent rest days, those are our hardest days. Rest days leave us more exhausted than before, we often need a rest from rest days. • • • #raredisease #chronicillness #chronicpain #spoonie #parkinsons #eds #hae

Sometimes there’s still a struggle but you’re

Sometimes there’s still a struggle but you’re doing the best you can. When people think they can tell you how you can do better, it can make your efforts seem unappreciated. It often feels best if you just listen. Thank you @bethdrawsthings for this drawing! • • • #raredisease #chronicillness #chronicpain #spoonie

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We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

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