LISTEN TO OUR PODCAST
THE LATEST FROM PATIENT WORTHY
FEATURED
DIVERSE VOICES
UPCOMING EVENTS
SIGN UP FOR OUR NEWSLETTER
4 hours ago
The Importance of Staying Active with Pompe Disease bit.ly/4fDJFv1 #pompedisease #raredisease ... See MoreSee Less
The Importance of Staying Active with Pompe Disease – Patient Worthy
Hello, my name is Vanessa, and I am living with late onset Pompe disease, also known as glycogen storage disease type II and acid maltase deficiency. I was diagnosed in December of 2014.
View Comments
- likes love 2
- Shares: 2
- Comments: 0
5 hours ago
Did you know? Here's your #FactFriday about Nasal Polyps. Let's learn together and spread awareness! Share your story with us at the link here: bit.ly/3VuxFDV
#nasalpolyps #nasalpolypsawareness #PatientWorthy #shareyourstory
... See MoreSee Less