Rare Disease
The Positives of Social Distancing: Focusing on What You CAN Do
Social distancing sucks in so many ways. I’ll be the first to admit it. You can feel isolated, alone, stuck, scared. But, there are some
Rare Patient News. Well Done.
Review of Rare Movement Disorders in India and the United States
- March 30, 2020
New Phenylketonuria Treatment Granted Orphan Drug Designation
Experimental Treatment for Cryopyrin-Associated Periodic Syndrome (CAPS) Shows Potential in Early Trial
Immunocompromised During COVID-19? Not Much Has Changed in the Lives of Many Rare Patients
LATEST PATIENT WORTHY ARTICLES
Chronic Kidney Disease
Using Machine Learning and Biopsies to Study the Origins of Chronic Kidney Disease Linked to Diabetes
According to a story from Healio, chronic kidney disease and diabetes are closely related. Kidney disease is unfortunately a frequent complication of both type 1
Cancer
The Experimental Drug Infigratinib Enters Trials in Multiple Cancer Indications
According to a story from gurufocus, the biotechnology company QED Therapeutics recently announced that the first patients have been dosed in separate phase 2 and
Multiple Sclerosis
Why Covid-19 Needs to be Taken Seriously
We know that older individuals and those who are immune compromised are more at risk for experiencing severe Covid-19. These include multiple sclerosis (MS) patients.
Familial Hypercholesterolemia
Siblings with Familial Hypercholesterolemia to Receive Treatment at New Clinic
According to a story from The Scarborough News, brother Connor and sister Kiera Pickering, aged eleven and twelve years respectively, will be some of the
Rare Disease
Machine Learning Changes the Dynamics of Kidney Disease Diagnosis
Kidney disease is following other disorders as a target for new and improved machine learning. As published in a recent edition of Science Daily, pathologists
