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On Friday, internationally renowned singer-songwriter Sia tweeted, “Hey, I’m suffering with chronic pain, a neurological disease, ehlers danlos and I just wanted to say to
According to a story from news-medical.net, a team of researchers have developed a potential new treatment for polycystic kidney disease (PKD), a rare disorder that
According to a story from derbytelegraph.co.uk, four year old Michal Myslicki, who was born with Batten disease, will soon get access to a critical treatment
Physician and investigator John Wood, MD, Ph.D. of Childrens Hospital of Los Angeles specializes in studying the challenges facing SCD patients. He has currently focused his
According to a story from pmlive.com, the gene therapy company Bluebird Bio’s latest recently released results from the company’s phase 2/3 clinical trial demonstrates further
According to a story from the Cystic Fibrosis Foundation’s Community Blog, the internet allows for access to a trove of knowledge and information literally at
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