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Rady’s Lupus Journey: Carried by Faith, Fueled by Hope
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Today is Niemann-Pick Disease Awareness Day! A reminder of the importance of understanding rare diseases that often go unnoticed. Niemann-Pick is a group of inherited metabolic disorders that prevent the body from properly breaking down fats, causing them to build up in cells and damage the brain, liver, spleen, and other organs. By spreading awareness, we move closer to earlier diagnosis, better treatments, and hope for affected families.
#niemannpickawarenessday #rarediseaseawareness #GeneticDisorders
We would like to introduce Jim. Jim was diagnosed with Amyloidosis Wild Type in 2023. “I want to share what I have been through to raise awareness. There needs to be more information available for people diagnosed with amyloidosis.” Thank you Jim for sharing your story and bringing awareness to amyloidosis. If you are interested in sharing your journey with amyloidosis please click the link: bit.ly/4dV7gru #AmyloidosisWildType #shareyourstory #patientowrthy
For everyone who's ever felt haunted by symptoms that others can't see - you're not alone!👻 #chronicbuticonic #chronicillness #invisibleillness
