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Living with a rare disease or chronic illness can feel isolating, and that is where Patient Worthy comes in! Our digital media platform is dedicated to sharing patient stories, the latest research, treatment news, and advocacy updates all through a lens that centers the patient experience. Patient Worthy gives a voice to communities that are often overlooked, helping patients, caregivers, and advocates connect, learn, and find hope.
Because every story matters!
Visit our website at PatientWorthy.com
#PatientWorthy #RareDisease #shareyourstory
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Living with a rare disease or chronic illness can feel isolating, and that is where Patient Worthy comes in! Our digital media platform is dedicated to sharing patient stories, the latest research, treatment news, and advocacy updates all through a lens that centers the patient experience. Patient Worthy gives a voice to communities that are often overlooked, helping patients, caregivers, and advocates connect, learn, and find hope.
Because every story matters!
Visit our website at PatientWorthy.com
#PatientWorthy #RareDisease #ShareYourStoryImage attachmentImage attachment+3Image attachment

Meet Taylor, Director of Advocacy and Recruitment at Patient Worthy!
Taylor has a background in elementary and secondary education and worked as a health educator prior to joining Patient Worthy. Taylor is dedicated to empowering patients through the transformative power of storytelling. She strives to raise awareness and inspire others to share their experiences and drive positive change. She believes that by sharing your own story, you have the power to change someone else’s. In her spare time, Taylor enjoys going to concerts & music festivals and spending time outdoors with her husband and two dogs.
... See MoreSee Less

Meet Taylor, Director of Advocacy and Recruitment at Patient Worthy!
Taylor has a background in elementary and secondary education and worked as a health educator prior to joining Patient Worthy. Taylor is dedicated to empowering patients through the transformative power of storytelling. She strives to raise awareness and inspire others to share their experiences and drive positive change. She believes that by sharing your own story, you have the power to change someone else’s. In her spare time, Taylor enjoys going to concerts & music festivals and spending time outdoors with her husband and two dogs.
12 hours ago

Patient Worthy is pleased to share another informative article from our friends at the TESS Research Foundation about the blood-brain barrier. This is part one, so keep your eyes peeled for part 2 tomorrow! Read here:

patientworthy.com/2025/09/27/blood-brain-barrier-part-1/
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Patient Worthy is pleased to share another informative article from our friends at the TESS Research Foundation about the blood-brain barrier. This is part one, so keep your eyes peeled for part 2 tomorrow! Read here:

https://patientworthy.com/2025/09/27/blood-brain-barrier-part-1/
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