Understanding Genetic Testing and Counseling for Neurofibromatosis Type 1
- September 23, 2025
Opinion: Use of Basket Trials to Solve Sleep Problems in Patients with Rare Diseases
All About Genetic Sequencing
A Rare Diagnosis: Families in Wales Face the Reality of DRPLA
LISTEN TO OUR PODCAST
THE LATEST FROM PATIENT WORTHY
FEATURED
UPCOMING EVENTS
SIGN UP FOR OUR NEWSLETTER
September is National Atrial Fibrillation Awareness Month—a time to raise awareness about AFib, the most common type of irregular heartbeat that can increase the risk of stroke and other heart complications. #AFibAwareness #hearthealth #AFib #atrialfibrillation
Tay-Sachs disease is a rare genetic disorder that impacts the brain and nervous system. Raising awareness helps families, supports research, and highlights the importance of early diagnosis and care! #taysachsdisease #geneticdisorders #rarediseaseoftheweek #raredisease #shareyourstory #PatientWorthy
If you're interested in sharing your story, click here: bit.ly/4dV7gru
Understanding Genetic Testing and Counseling for Neurofibromatosis Type 1 bit.ly/4pIfEQS Read now at PatientWorthy.com
#PatientWorthy #neurofibromatosistype1 #NF1
