Understanding Genetic Testing and Counseling for Neurofibromatosis Type 1
- September 23, 2025
Opinion: Use of Basket Trials to Solve Sleep Problems in Patients with Rare Diseases
All About Genetic Sequencing
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Did you know hydrocephalus is the most common reason children need brain surgery? It happens when excess fluid builds in the brain, and while treatment exists, there is no cure. Greater awareness helps drive research and better care! #HydrocephalusAwareness #shareyourstory #PatientWorthy
September is National Atrial Fibrillation Awareness Month—a time to raise awareness about AFib, the most common type of irregular heartbeat that can increase the risk of stroke and other heart complications. #AFibAwareness #HeartHealth #AFib #atrialfibrillation
Tay-Sachs disease is a rare genetic disorder that impacts the brain and nervous system. Raising awareness helps families, supports research, and highlights the importance of early diagnosis and care! #taysachsdisease #geneticdisorders #rarediseaseoftheweek #raredisease #shareyourstory #PatientWorthy
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