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@BattenDiseaseSupport&ResearchAssociationNEXT WEEK ⬇️
Join members of the BDSRA staff for a practical, beginner-friendly conversation about fundraising, designed to support Batten disease families and community members looking to learn where to start. Register today: ow.ly/vNMm50XTEQE
@CUREgrin #parentsThe deadline to apply for our new Parent Advisory Committee is this Sunday!
We are looking for 20 parents to help shape our mission and research roadmap. The commitment is super flexible—only 5 to 10 hours per year (surveys and focus groups).
We have had some amazing applications and now need to be specific to finalize. We are now especially looking for:
GRIN2D and GRIN2B families
Non-USA residents (we need your global perspective!)
Your lived experience is exactly what we need to ensure our resources actually help the community.
➡️ Apply Today! forms.gle/DTb3ATn7ZUijXAoDA
@OneBlood #donateblood #donateplatlets #DonatePlasma"Since my patient is unable to thank you, I just wanted to let you know the huge difference that you are making in critically sick patients every day."
💌 Thanks to the Message My Donor program, this ICU nurse could thank her patient's donor. Learn more about the program here: givelife.io/lfes
