Patient Worthy

4 hours ago

February 15th is Angelman Syndrome Awareness Day 💙 Angelman Syndrome Foundation
Today we shine a light on Angelman syndrome — a rare neurogenetic condition that affects speech, movement, sleep, and development, but never a person’s capacity for joy, connection, and love. Behind every diagnosis is a child, teen, or adult with a unique personality, incredible strength, and a family advocating fiercely for their future.
Awareness brings understanding. Understanding brings support. And support brings progress toward better therapies, resources, and hope.
Join us in spreading awareness, amplifying voices, and celebrating the amazing individuals living with Angelman syndrome today and every day.
#AngelmanSyndrome #AngelmanAwareness #RareDisease #RareDiseaseCommunity #RareButNotAlone ... See MoreSee Less

Patient Worthy

6 hours ago

From advanced imaging to targeted treatments, managing retinal vein occlusion is all about protecting your sight and preventing complications. Every patient's journey is different - and every story matters. If you're living with RVO, consider sharing your experience with us by clicking the link below: bit.ly/3VuxFDV #RetinaHealth #SeeClearly #PatientWorthy 🧐 ... See MoreSee Less

Patient Worthy

7 hours ago

Childhood cancer doesn't discriminate. It affects children globally, but improved treatments and research give us hope. This International Childhood Cancer Awareness Day, help raise awareness and support the cause! #childhoodcancer #childhoodcancerawareness #PatientWorthy
Share your story with us here: bit.ly/4dV7gru ... See MoreSee Less