Patient Worthy

6 hours ago

January is National Birth Defects Awareness Month.
It’s a time to recognize that every family’s story deserves understanding and support. Birth defects affect babies every day, and many families begin their journey facing challenges they never expected. Awareness helps people learn what contributes to a healthy pregnancy and why early detection can change long‑term outcomes. It also connects families to the resources that help them feel supported and informed.
A baby is born with a birth defect every 4.5 minutes in the United States, reminding us how important compassion and community truly are. Families should never feel alone as they navigate care, decisions, and hope.
This year’s theme, “Every Journey Matters,” highlights how every experience is unique and every child deserves a strong start.
Throughout January, organizations are offering ways to learn and stay engaged. MotherToBaby is hosting a free national webinar, “Zika in 2026: Lessons from the Past and the Current State of Research and Risk,” on January 28, 2026 at 12 PM ET for clinicians, families, and anyone seeking evidence‑based prenatal information.
Together, we can spread understanding, support families, and honor every child’s journey.
#BirthDefectsAwarenessMonth #EveryJourneyMatters #PatientWorthy ... See MoreSee Less

Patient Worthy

9 hours ago

It's #FactFriday and Glaucoma Awareness Month! Learn these important facts about the "silent thief of sight" and help spread awareness for early detection and prevention. #GlaucomaAwareness #Glaucoma #PatientWorthy ... See MoreSee Less

Patient Worthy

11 hours ago

LGS Foundation Please take the survey Your participation matters🗣️ Your Voice Matters: LGS Community Needs Survey

The LGS Foundation wants to hear from YOU! We're excited to announce our Community Needs Survey: a chance for the LGS community to directly shape the future of support programs and services.

Why Participate?
This survey is our opportunity to learn directly from the LGS community about what's working and where you need more support. Your insights will ensure our programs and priorities are guided by patient-family needs.... Your experience matters!

A few important details:
- The survey closes on January 31st.
- You can enter for a chance to win one of five $20 Amazon gift cards by providing your email address at the end of the survey.
- Your individual answers will be kept strictly confidential and only shared in a summarized form.
- The survey takes about 20 minutes.
- We'll share the findings with you once they're available.

Take the survey today and help us build a stronger, more responsive organization for the LGS community.

👉 Take the survey here: bit.ly/LGSFoundationSurvey

💜 Thank you for helping us create a stronger, more responsive organization.

#LGS #LennoxGastautSyndrome #LGSFoundation #CommunitySurvey #YourVoiceMatters ... See MoreSee Less