Ronnie’s Journey: How a Lifelong Series of Symptoms Led to a Sjogren’s Diagnosis
From Invisible Pain to Unwavering Spirit: My Fabry Disease Journey
Breaking New Ground: Immunotherapy Now Available for Recurrent Ovarian Cancer Patients
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For many people living with a rare disease, changes in speech aren’t about effort or intelligence — they’re the result of neurological or muscular involvement affecting how the body controls communication. Recognizing symptoms like this can be an important step toward diagnosis, understanding disease progression, and ensuring patients receive the support they need to be heard in every sense. #RareWordOfTheWeek #RareDisease #RareDiseaseMonth #PatientWorthy
Myositis may be invisible to many, but for those living with it, every step can be a battle. From muscle weakness to chronic fatigue, this rare autoimmune condition affects strength, mobility, and daily life. Let's raise awareness, support research, and stand with the myositis community. Click the link below to share today, bit.ly/3VuxFDV #myositisawareness #autoimmunedisease #PatientWorthy
We're excited to share Gretchen's story in honor of Rare Disease Month! Gretchen was diagnosed with Salmonella osteomyelitis, and it almost killed her, twice. She shares her experiences to remind others that it's ok to be scared. It's ok to worry. It's ok to feel any which way about your diagnosis, but you must keep moving forward. Please read Gretchen's full story here: bit.ly/4awP3Ay
Share your rare disease story with us here: bit.ly/4dV7gru
#salmonellaosteomyelitis #rarediseasemonth #RareDiseaseWeek #PatientWorthy
