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From or Friends @Help4HDRead this recent press release from Sarepta Therapeutics on SRP-1005 clinical trial on the Huntington's Post! #HuntingtonsDisease #hdresearch

www.help4hd.org/post/sarepta-therapeutics-submission-of-clinical-trial-application-for-srp-1005
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From or Friends @Help4HD

From our friends at International Rett Syndrome FoundationNew dates. New momentum. 💜

We’re excited to bring the Rett syndrome community together in the Twin Cities this summer for IRSF’s Scientific Meeting and ASCEND National Summit.

Look out for information on registration, room blocks, and more later this month at:

🔗 Scientific Meeting: www.rettsyndrome.org/ScientificMeeting
🔗 ASCEND: www.rettsyndrome.org/ascend
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From our friends at International Rett Syndrome Foundation

From our Friends Elephants and Tea
We are 5 days away from our January 17th Storytelling Soiree & Fundraising Event!

We have some exciting changes for this year’s event!
• We have an Auctioneer! We will be Live Auctioning two items:
o Poppy Restaurant Experience for 6 people
o Ramen by Steve G for up to 8 people - right in your home!
• We will also have a live donation “paddle raise” following our speakers this year. This should be a fun and new engaging experience for all our supporters!
• Be sure to pick up your paddle at check-in!

This event is more than just a celebration; it’s a crucial fundraiser that helps us provide vital resources, support, and community for young individuals facing cancer.

Your generous contributions enable us to offer our programs and services at no cost, making a tangible impact in their lives.

Your support makes all the difference, and we hope to see you there!

Click here to reserve your spot and to donate!

See you soon,
Nick Giallourakis
Executive Director, Elephants and Tea + Steven G. Cancer Foundation
... See MoreSee Less

From our Friends Elephants and Tea
We are 5 days away from our January 17th Storytelling Soiree & Fundraising Event!

We have some exciting changes for this year’s event!
• We have an Auctioneer! We will be Live Auctioning two items:
o Poppy Restaurant Experience for 6 people
o Ramen by Steve G for up to 8 people - right in your home!
• We will also have a live donation “paddle raise” following our speakers this year. This should be a fun and new engaging experience for all our supporters!
• Be sure to pick up your paddle at check-in!

This event is more than just a celebration; it’s a crucial fundraiser that helps us provide vital resources, support, and community for young individuals facing cancer. 

Your generous contributions enable us to offer our programs and services at no cost, making a tangible impact in their lives.

Your support makes all the difference, and we hope to see you there!

Click here to reserve your spot and to donate!

See you soon,
Nick Giallourakis
Executive Director, Elephants and Tea + Steven G. Cancer Foundation
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