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✨ Happy Holidays from all of us at Patient Worthy! This season, we're grateful for the rare disease community that inspires everything we do. To patients, caregivers, advocates, and loved ones: your voices matter, your stories matter, and you are always at the center of our work. Wishing you warmth, hope, and moments of peace this holiday season and into the new year! ✨
#PatientWorthy #whatnext
Merry Christmas! Today we're honored to share this patient story that takes the form of a poem, written by Spence Shishido, and shared with us by our friends at Elephants & Tea. Read here:
patientworthy.com/2025/12/25/raspberry-sorbet-swirls-in-the-sky/
Stiff person syndrome is rare and often misunderstood, which can delay recognition and care. Greater awareness helps people connect symptoms sooner, improves support, and brings visibility to a condition that deserves more understanding! #stiffpersonsyndrome #rarediseaseoftheweek #rarediseaseawareness #shareyourstory #PatientWorthy
