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50 minutes ago

Patient Worthy is seeking individuals impacted by Huntington’s Disease who feel called to share their stories. Your voice can spark hope, connection, and courage—reminding others on this journey that they are never alone.
If you're ready to learn more or join this powerful community conversation, visit bit.ly/425L89T for the latest updates. Have a story to share? Click the link below.
bit.ly/4dV7gru
#HuntingtonsDisease #YourStoryMatters #PatientWorthy
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Patient Worthy is seeking individuals impacted by Huntington’s Disease who feel called to share their stories. Your voice can spark hope, connection, and courage—reminding others on this journey that they are never alone.
If youre ready to learn more or join this powerful community conversation, visit https://bit.ly/425L89T for the latest updates. Have a story to share? Click the link below.
 https://bit.ly/4dV7gru
#HuntingtonsDisease #YourStoryMatters #PatientWorthy
58 minutes ago

It was wonderful hearing Madison's story during Rare Disease Week in DC! Her commitment to advocacy and patients' rights is inspiring. Diagnosed with Stiff Person Syndrome, Madison reminds us that patients are PEOPLE first and need to be afforded the care and access they require. Thanks for sharing your passion with us, Madison!

#raredc2026 #RareDiseaseWeek #stiffpersonsyndrome #PatientWorthy
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It's Aplastic Anemia, MDS, & PNH Awareness Week! Three rare blood disorders. One mission: education, support, and hope. If you're living with one of these conditions, this week is for you. Share your journey. Amplify your voice. #AplasticAnemia #MDS #PNH #BloodDisorders #PatientWorthy
#ShareYourStory with us here: bit.ly/4dV7gru
... See MoreSee Less

Its Aplastic Anemia, MDS, & PNH Awareness Week! Three rare blood disorders. One mission: education, support, and hope. If youre living with one of these conditions, this week is for you. Share your journey. Amplify your voice. #AplasticAnemia #MDS #PNH #BloodDisorders #PatientWorthy 
#ShareYourStory with us here: https://bit.ly/4dV7gruImage attachmentImage attachment+2Image attachment
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