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Rare Disease

The Weight of a Decision

Editor’s Note: We’re proud to be the first to share this story by Blair Young Whitworth, a Parent Champion of the Courageous Parents Network. There

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48 minutes ago

Living with Cushing syndrome can feel overwhelming, but understanding it is the first step toward better care. Let's spread awareness and support those navigating the challenges of this rare condition! #cushingsyndromeawareness #RareDisease #rarediseaseoftheweek #PatientWorthy ... See MoreSee Less

Living with Cushing syndrome can feel overwhelming, but understanding it is the first step toward better care. Lets spread awareness and support those navigating the challenges of this rare condition! #CushingSyndromeAwareness #RareDisease #RareDiseaseOfTheWeek #PatientWorthy

💙 We are thrilled to share the exciting news of welcoming two fantastic additions to the #IPOPI family: GhanaPOPI and ASOGEIDI [Guatemala]!

We are eager to collaborate with you to enhance diagnosis and care for patients with primary immunodeficiencies.

#IPOPI #Immunodeficiency #StrengthenedCommunity #TogetherWeAreStronger
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