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Patient Worthy
2 hours ago
Patient Worthy

Today is International CHAMP1 Awareness Day 💙
CHAMP1-related neurodevelopmental disorder is rare, but the individuals and families impacted by it are strong, resilient, and deserving of understanding, support, and visibility.
Today we raise awareness, share knowledge, and stand with families worldwide as we work toward earlier diagnoses, better resources, and continued research.
💙 Every voice matters
💙 Awareness leads to understanding
💙 Together, we are stronger
#CHAMP1AwarenessDay #RareDiseaseAwareness #CHAMP1 #PatientWorthy ... See MoreSee Less

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Patient Worthy
2 hours ago
Patient Worthy

We are glad you were there ! Thank you International Rett Syndrome Foundation ... See MoreSee Less

We are glad you were there ! Thank you International Rett Syndrome FoundationImage attachmentImage attachment+1Image attachment
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Patient Worthy
2 hours ago
Patient Worthy

TESS Research Foundation for Slc13a5 Epilepsy ... See MoreSee Less

TESS Research Foundation for Slc13a5 EpilepsyImage attachmentImage attachment+1Image attachment
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