Faye’s Journey with Amyloidosis
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In rare disease and chronic illness communities, grief doesn’t always look the way people expect.
Sometimes it’s the quiet grief for abilities, plans, or versions of life that changed along the way — losses that rarely get acknowledged by the outside world.
But that grief is real, and it deserves space.
If you’ve carried these feelings, you’re not alone. And your experience matters.
#RareDisease #RareDiseaseAwareness #ChronicIllness #ChronicIllnessAwareness #YouAreNotAlone #PatientWorthy
Setmelanotide Shows Limited Efficacy in Heterozygous Obesity Gene Carriers bit.ly/4sZ8OqR Read now at PatientWorthy.com
#PatientWorthy #setmelanotide #obesity
March is Autoimmune Awareness Month—dedicated to educating communities about autoimmune diseases, which occur when the immune system attacks the body’s own healthy cells. Awareness can lead to earlier diagnosis, improved care, and better quality of life. 💜
#AutoimmuneAwarenessMonth #InvisibleIllness #RareDisease #RareCommunity #PatientWorthy #ShareYourStory
