Biliary Atresia
Forged in Fire: My Journey with Biliary Atresia from 115 Pounds to a Life of Purpose
To the patient, the parent, the caregiver, and the person in the “limbo” of waiting: I am one of you. My name is Aaron Jackson,
An Itch That Was Taking Over My Thoughts: A Story About Primary Biliary Cholangitis
- February 25, 2026
Dear Cancer: We Are Stronger Than You
AstraZeneca Pursues FDA Approval for Injectable Lupus Treatment Following European Authorization
Gretchen’s Battle with Salmonella Osteomyelitis
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IgA Nephropathy (IgAN)
Terminal Ileum’s Rogue B Cells: A Novel Gateway to IgA Nephropathy
A comprehensive multi-omics analysis has identified the terminal ileum as a critical source of pathogenic antibody-producing cells in IgA nephropathy (IgAN), one of the most
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Today, we had the pleasure of meeting the RareArtist awardees at Rare Disease Week in DC. The Rare Artist Gallery offers attendees the opportunity to connect with and view artwork created by the 2025 Rare Artist Awardees. Stay tuned for a few amazing story shares from @daice_d_marshall living with Granulomatosis with Polyangiitis (GPA); @evaagus.art living with nasopharyngeal carcinoma; Beatriz living with neurosarcoidosis; Krista living with Ushers Syndrome; and Zanny who is living with CRPS.
#PatientWorthy #raredc2026
Patient Worthy is looking for individuals who are interested in sharing their experiences with Myositis. Be the reason someone feels seen, supported, and inspired! If you're interested in learning more or joining the conversation this week, visit patientworthy.com for the latest information. If you have a story to share, click here: bit.ly/4dV7gru
#myositis #shareyourstory #PatientWorthy
Today was Patient Worthy's first day in DC for Rare Disease Week 2026, and what a fulfilling day it was! Thanks to everyone who shared their stories with us! We can't wait to share those stories with you all throughout next week. See ya on Capitol Hill tomorrow!
#raredc2026 #PatientWorthy
