Patient Worthy

2 hours ago

Meet Maria! She was diagnosed with Wilms' Tumor, a rare childhood kidney cancer, when she was just over a year old. For the first 15 years of her life, hospitals felt like a second home. In her early twenties, after years of testing, she was diagnosed with Mosaic Variegated Aneuploidy syndrome 3 (MVA 3)- an autosomal recessive disorder that can cause Wilms' Tumor. During Rare Disease Month, Maria shares her story as a way to reclaim her own voice while encouraging others to find theirs.

Read Maria's full story here: bit.ly/4aCLgjW

Share your rare disease story and inspire others here:
bit.ly/4dV7gru

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Patient Worthy

4 hours ago

A New Treatment to Fight Ovarian Cancer has been Developed by UCLA Scientists bit.ly/3MsVrj9 Read now at PatientWorthy.com
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Patient Worthy

9 hours ago

Cabaletta Bio Advances Rare Disease Treatment with Pioneering Myositis Trial and Innovative Manufacturing Breakthrough bit.ly/4c3yRIi Read now at PatientWorthy.com
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