From HIV Treatment to Rare Genetic Disease: Nucleoside Therapy Enters a New Era
- January 17, 2026
Once-Daily Zasocitinib Delivers Clear Skin for Psoriasis Patients: Takeda’s Landmark Phase 3 Victory
Biohaven’s BHV‑7000 Falls Short in Midstage Depression Trial, Refocusing Pipeline Strategy
“The Aftermath: Nobody Told Me This Part Would Hurt Too: – Megan’s Fight Against Non-Hodgkin’s Lymphoma
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Vasculitis FoundationManaging vasculitis is about more than treating symptoms
It’s about building the right care team, monitoring your health long term, and feeling confident speaking up during appointments.
Our free fact sheet, Living Well with Vasculitis: Essential Topics to Discuss with Your Provider, helps patients and caregivers prepare for meaningful conversations about treatment, relapse monitoring, mental health, lifestyle changes, and more.
Take an active role in your care.
👉 Read the full resource and download the fact sheet at hov.to/7f6817ea
Bolniki z Marfanovim sindromom so si med seboj zelo različni, čeprav imajo isto bolezen, ker bolezen povzročajo različne mutacije istega gena FBN1, ki lahko vodijo v različno hude oblike bolezni. Poleg tega se bolezen pri posameznikih različno izraža, saj se znaki lahko pojavijo v različni starosti, z različno resnostjo in prizadenejo različne organske sisteme. Na potek bolezni vplivajo tudi drugi geni, ki lahko okrepijo ali omilijo učinek osnovne mutacije, ter okoljski in življenjski dejavniki, kot so telesna aktivnost, način življenja in pravočasnost zdravljenja. K razlikam med bolniki prispevajo tudi naključni biološki procesi v razvoju in delovanju telesa.
#MarfanovSindrom #redkebolezni #medicina #zdravje #bolnik #bolezen #FBN1 #vezivnotkivo #srce #skelet #organi #aorta #zaklopke #pljuca #gen #genetik #genetika #zdravljenje
Brittle Bone SocietyNew blog! ✨
We are excited to introduce our first new blogger of 2026, Deirdre Anderson! Deirdre's first blog looks back at her childhood experiences of icy conditions and how this shaped her attitude towards winter that continues into adulthood. Despite decades without a fracture, the impact of early experiences with Osteogenesis Imperfecta still influences how she navigates winter today.
Read Deirdre's blog here: www.brittlebone.org/stories/deirdres-story-winter-months-and-oi/ 💙
