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Adrenoleukodystrophy (ALD) is rare, but its impact on the individuals and families affected is profound.
Many people have never heard of ALD until it touches their own lives. Raising awareness helps bring visibility to this condition and to the communities navigating diagnosis, care and uncertainty every day.
Every share, conversation and moment of awareness helps ensure those living with ALD are seen and supported.
#adrenoleukodystrophy #ALD #rarediseaseoftheweek #raredisease #RareDiseaseAwareness #PatientWorthy
It's PHACE Syndrome Awareness Week - a rare condition affecting infants with facial hemangiomas, neurological, cardiac, and ocular complications. Share to raise awareness and support the community! #phacesyndromeawarenessweek #phacesyndrome #youarenotalone #raredisease #PatientWorthy
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'In Her Own Words': Ganna Bilousova, PhD
news.cuanschutz.edu
Ganna Bilousova plays a crucial role in the field of regenerative medicine, primarily studying stem cell reprogramming and skin regeneration with an emphasis on the inherited skin condition, epidermol...
