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10 hours ago

Feeding Tube Awareness Week is about visibility, understanding, and respect. Feeding tubes are not a last resort or a failure—they’re a medical tool that provides nourishment, strength, and life. Behind every tube is a person deserving of dignity, patience, and compassion. #FeedingTubeAwarenessWeek #ShareYourStory #PatientWorthy ... See MoreSee Less

Feeding Tube Awareness Week is about visibility, understanding, and respect. Feeding tubes are not a last resort or a failure—they’re a medical tool that provides nourishment, strength, and life. Behind every tube is a person deserving of dignity, patience, and compassion. #FeedingTubeAwarenessWeek #ShareYourStory #PatientWorthy
18 hours ago

Meet Amber! She was diagnosed with Granulomatosis with Polyangiitis (GPA) in 2017. Through traditional medicine, holistic care, and fierce self-advocacy, Amber is now in remission! She shares her story to educate medical professionals and empower others living with GPA. For Rare Disease Month, her message is clear: we are not alone. Together we share our stories and learn from each other, and knowledge is power! Thanks Honey I Roam for sharing your story with us!

#granulomatosiswithpolyangitis #Wegeners #rarediseasemonth #RareDisease #rarebutnotalone #WeCareAboutRare #SHAREYOURSTRIPES #shareyourstory #PatientWorthy
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19 hours ago

Mississippi Metabolics Foundation #RareDiseaseThis is a monumental day for rare disease patients!!! All our hard work has been realized. ... See MoreSee Less

Mississippi Metabolics Foundation  #raredisease
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