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CELEBRATE! The BEST news! Thank you to all who helped make this possible EveryLife Foundation for Rare Diseases‼️Breaking News: Rare Pediatric Disease PRV Program Reauthorized by Congress!
After a two-year campaign to reauthorize the Rare Pediatric Disease Priority Review Voucher (PRV) Program, the rare disease community’s relentless advocacy has paid off.
Congress has passed the Labor, HHS, and Related Agencies Appropriations bill, effectively reauthorizing the PRV Program for five years while also funding a number of other critical healthcare agencies.
We applaud the reauthorization of the PRV Program and renewed investments in critical health research and public health programs.
Thank you to the congressional champions who have partnered with our rare disease community to secure these advances. While significant work remains to enable all those living with rare diseases to thrive, today’s progress will accelerate innovation, expand access to life-changing therapies, and offer renewed hope to children and families whose futures once seemed beyond reach.
To learn more about the full healthcare package, please visit our website: everylifefoundation.org/congress-passes-five-year-reauthorization-of-rare-pediatric-disease-prv-p...
Obesity is a medical condition affecting over 100 million Americans—yet it's often misunderstood. Swipe to understand what obesity actually is, how it differs from being overweight, and why the conversation matters. #obesity #PatientWorthy
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EveryLife Foundation for Rare Diseases #RareDiseaseWeekRegister for #RDDNIH!
National Institutes of Health (NIH) is hosting a free, hybrid Rare Disease Day event on Feb. 27, 2026! Learn about rare diseases, scientific challenges and opportunities to advance research for new treatments. Visit the following link to get more event details: hubs.li/Q03_MFp60
