Patient Worthy – Page 6

Illuminating Protein Dynamics: Novel Insights from High-Speed Atomic Force Microscopy

Bree Clare - July 6, 2025

A Rare Cardiac Emergency: Spontaneous Coronary Artery Dissection in a Young Womam

Metabolic dysfunction-associated steatohepatitis

Madrigal Pharmaceuticals Nears EU Approval for REZDIFFRA, Expanding Hope for MASH Patients

Unusual Discovery: Adult Intussusception Caused by Small Bowel Lipoma

LISTEN TO OUR PODCAST

THE LATEST FROM PATIENT WORTHY

FEATURED

Meet Gabby: The Shield-maiden With the Sweetest Hugs

Reducing the Itch: Life with Progressive Familial Intrahepatic Cholestasis (PFIC)

DIVERSE VOICES

We Need Equity and Diversity Within Rare Disease Research

Bridging the Diversity Gap in Healthcare

Rare Disease Clinical Trials Are Essential to Help Uncover Potential Patient Solutions: Spotlight on Classic Congenital Adrenal Hyperplasia (CAH)

UPCOMING EVENTS

SIGN UP FOR OUR NEWSLETTER

FOLLOW US ON INSTAGRAM

A breakthrough has been achieved in a new form of

July is Ultraviolet (UV) Safety Month! While getti

You might associate heart attacks with older folks

Narcolepsy is more than just being tired—it's a

Fibrodysplasia Ossificans Progressiva (FOP) is a r

Liver fibrosis is often silent but it can lead to

🎆 Happy 4th of July from all of us here at Pati

Madrigal Pharmaceuticals Nears EU Approval for REZ

Have you been diagnosed with MASH (Metabolic dysfu

Follow on Instagram

FOLLOW US ON TIKTOK

FOLLOW US ON FACEBOOK

CLICK HERE TO SHARE YOUR STORY!

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.

Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

© Copyright 2024 Patient Worthy