Jordan's Guardian Angels
Jordan’s Guardian Angels was founded by Joe and Cynthia Lang after their daughter, Jordan was diagnosed with a rare variation on the gene PPP2R5D, now known as Jordan’s Syndrome. At the time, in 2014, it had only been seen a handful of times around the world. Now the Jordan’s Guardian Angels Foundation’s global research effort has expanded to include hundreds of children who have been diagnosed with Jordan’s Syndrome with plans to include 150,000 more individuals who may be undiagnosed or underdiagnosed worldwide.
Headquartered in Sacramento, California, Jordan’s Guardian Angels funds and facilitates research into Jordan’s Syndrome. The research team is led by Dr. Wendy Chung, an internationally recognized medical investigator, and includes human geneticists, neurologists, psychologists, biochemists, protein modelers, model organism researchers, and cancer biologists from elite institutions across the globe.
Jordan’s Syndrome is a mutation on the genes PPP2R5D, PPP2R5C, and PPP2R1A and can cause low muscle tone, global developmental delays, larger head size, seizures, Autism, and behavioral challenges among other symptoms. Researchers believe the study may lead to breakthroughs for intellectual disabilities, Autism, Parkinson’s, Alzheimer’s, and cancer.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
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Patient Worthy Posts on Jordan's Syndrome
This is part 2 of this story, click here to read part 1! Michelle had taken her daughter to see a geneticist who promptly diagnosed
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