The days are getting shorter and the first cooling winds of autumn have started to blow.
This week, we have stories on Charcot-Marie-Tooth Disease Awareness Month, a special recognition for our partner organization Jordan’s Guardian Angels, and news about a new vaccination campaign targeting bacterial meningitis in Africa.
September is Charcot-Marie-Tooth Disease Awareness Month, a time to spread awareness about this rare disorder among the medical field and the general public.
The founders of Jordan’s Guardian Angels, a Patient Worthy partner organization, were presented with the RARE Founder’s Award from Global Genes for their achievements in advocacy for Jordan’s syndrome.
Following disruptions from the COVID-19 pandemic, a campaign of vaccination targeting bacterial meningitis has been renewed.