Happy Friday!
The days are getting shorter and the first cooling winds of autumn have started to blow.
This week, we have stories on Charcot-Marie-Tooth Disease Awareness Month, a special recognition for our partner organization Jordan’s Guardian Angels, and news about a new vaccination campaign targeting bacterial meningitis in Africa.
September is Charcot-Marie-Tooth Disease Awareness Month
September is Charcot-Marie-Tooth Disease Awareness Month, a time to spread awareness about this rare disorder among the medical field and the general public.
Jordan’s Guardian Angels Earns RARE Founder’s Award from Global Genes
The founders of Jordan’s Guardian Angels, a Patient Worthy partner organization, were presented with the RARE Founder’s Award from Global Genes for their achievements in advocacy for Jordan’s syndrome.
New Meningitis Vaccination Campaign Begins in Africa
Following disruptions from the COVID-19 pandemic, a campaign of vaccination targeting bacterial meningitis has been renewed.
