Alex, The Leukodystrophy Charity

Alex, TLC is a patient support group and UK registered charity for patients and families with Adrenoleukodystrophy (ALD) and Adrenomyeloneuropathy (AMN).

Alex, TLC:

  • Provides practical, emotional and financial support to patients and families with Adrenoleukodystrophy (ALD) and Adrenomyeloneuropathy (AMN)
  • Improves public and medical awareness of both conditions
  • Promotes research, best practice in treatment and improved diagnostics

Some of Alex, TLC’s notable projects are exploring the link between ALD and Addison’s Disease, Project Bostock and Newborn Screening.

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

Resources & Support

Connect With Alex, The Leukodystrophy Charity

Patient Worthy Posts on Adrenoleukodystrophy (ALD)