Alport Syndrome Foundation

We are the leading patient-led, independent, non-profit organization in the United States educating and giving a voice to the Alport syndrome community.

Our Mission is to improve the lives of those affected by Alport syndrome through education, empowerment, advocacy and research. Our Vision is to conquer Alport syndrome.

Alport Syndrome Foundation directs the majority of its resources to research and research-related activities. We also raise awareness and provide educational resources for patients, medical professionals and researchers through our website, regular email communication with patients, social media presence, and participation at medical and rare disease conferences.

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

Connect With Alport Syndrome Foundation

Patient Worthy Posts on Alport Syndrome