Hands Speak Louder Than Words in Rare Disease Video
Helping hands can do truly amazing things. Eurodis, the champions of Rare Disease Day, displays that in their 2015 Rare Disease Day theme video.
CHAMP1 Foundation
CHAMP1 Research Foundation
The CHAMP1 Foundation is an organization created for parents of children with developmental delay, hypotonia, cerebral palsy, autism, and epilepsy among many other diagnoses a result of a change in the CHAMP1 gene.
Our vision is to find effective treatments and a cure for CHAMP1 disorders.
Our mission is to improve the lives of those affected by CHAMP1 disorders through clinical research, effective treatments, public awareness, early detection, family support and patient advocacy.
Our Goals: To coordinate and collaborate with the global scientific community to understand the function of the CHAMP1 gene in order to accelerate the develop of effective treatments and a cure for CHAMP1 disorders.
To increase the medical community and public awareness of the complexity and potential severity of CHAMP1 disorders.
To provide educational and emotional support for those affected by CHAMP1 disorders.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on CHAMP1 Disorders will be Coming Soon!
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