CureDuchenne
CureDuchenne is the nation’s leading nonprofit organization dedicated to funding a cure for Duchenne, the most common and lethal form of muscular dystrophy. As the leading genetic killer of young boys, Duchenne affects more than 300,000 boys living today. CureDuchenne has garnered international attention for its efforts to raise funds and awareness for Duchenne through venture philanthropy.
With a mission to cure Duchenne muscular dystrophy, CureDuchenne breaks the traditional charitable mold and balances passion with business acumen. Our innovative venture philanthropy model funds groundbreaking research, early diagnosis and treatment access. With pioneering education and support programs, our organization drives real change for those with Duchenne muscular dystrophy and their loved ones.
Join us at a free Workshop or Session near you!
CureDuchenne Cares EventsCondition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Duchenne Muscular Dystrophy
You’ll Love How They’re Finding A Cure For Muscular Dystrophy!
For 21-year-old Tanner Pyeatt, the future is uncertain. Diagnosed with Duchenne muscular dystrophy at the age of four, he gradually lost the use of his legs
Young Boy with DMD Makes Wish to Become Ant-Man, Not What You’d Expect
If you have a rare disease with no cure, it’s important to live your future today. Bradon Coy, 10, took that advice by travelling all
Do You Need Dogs for a DMD Cure?
If a treatment that would cure me or my child had to use dogs for testing, what would I do? That’s the question I had
Why Will This Breakthrough Research Give You New Hope?
When Debra Chiabai helped her good-Samaritan dad volunteer for his charity of choice—Muscular Dystrophy Canada—they both thought of it as a simple, nice thing to
Can Statins Save Your Life? Find Out Here
Duchenne muscular dystrophy (DMD) may not sound so bad, but it is. What’s so fatal about muscle degeneration? you might ask. Well, the heart is a
How The FDA Is Making This Boy More Sick
Last year, the FDA approved a record number of new drugs to treat rare diseases, according to the National Organization for Rare Disorders (NORD). In
