CysticLife

CysticLife is the leading social network for the cystic fibrosis community with the goal of creating a positive and uplifting family that anyone affected by CF can access for encouragement, tips, and answers to their questions. Through profiles, members can write blogs, contact each other, and search for members like them, creating an inspirational and worldwide support system for the CF community.

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for:

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Patient Worthy Posts on Cystic Fibrosis

Que tienen el alcohol y la fibrosis quística en común? Esta en los genes

Ayer leí un artículo publicado en la fibrosis quística Noticias Hoy por Patricia Silva, PhD, que fue causante de mucha reflexión. Los científicos han descubierto

Achoo! Patients with Cystic Fibrosis Say Keep Your Germs to Yourself

There is nothing worse than a summer cold. I should know. I am the proud owner of a bonafide summer cold complete with a runny

Can a Fire-Breathing Dragon Make Cystic Fibrosis Therapy Fun?

Since my son was old enough to hold a video gaming system, he’s been hooked. They’re fun, challenging, and (sometimes) educational. I tell myself that

The Future for Gene Therapy and Treating Cystic Fibrosis Patients

Cystic fibrosis is caused by a mutation in the gene CFTR. This gene involves a protein that affects the chloride on cells; without this

Editor’s Choice: Orkambi Shouldn’t be a Pie in the Sky for UK Patients

Happy Independence Day Weekend Everyone! We have the latest update on the UK cystic fibrosis fight for Orkambi. We also have a great contribution on

Editor’s Choice: “Unleashing” Cystic Fibrosis Patients

Happy Friday Patient Worthians! We are rounding out our Cystic Fibrosis campaign with CysticLife this week. For the past few weeks, Patient Worthy has been supporting CysticLife’s collaboration