CysticLife
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Cystic Fibrosis
Three Drug Combination for Cystic Fibrosis Performs Well in Clinical Trial
According to a story from Xconomy, the drug developer Vertex Pharmaceuticals recently announced that a three drug combination treatment for the rare lung disorder cystic
This Just In: India Never Implemented their Rare Disease Policy as Promised
We all got really excited last year when India implemented a new plan to benefit rare disease patients. It was called the National Rare Disease
UK Cystic Fibrosis Patients are Protesting to get a Vital Drug Covered on the NHS
Cystic fibrosis patients in the UK are planning a protest on November 19th, 2018 with the goal of getting Orkambi, an important cystic fibrosis drug,
Is Phage Therapy the Best Hope for Cystic Fibrosis Patients That Can’t be Treated With Antibiotics?
According to a story from Buzzfeed News, Paige Rogers was 21 years old when she was admitted to the hospital. She was having trouble breathing
Study Finds That Cystic Fibrosis Patients Aren’t Getting the Treatment They Need to Fight Infection
According to a story from EurekAlert!, a recent study from the Children’s National Health System has found that some cystic fibrosis patients are not getting
This Cystic Fibrosis Patient’s Story Highlights the Limitations of Clinical Trials
According to a story from statnews.com, Ella Balasa, who has cystic fibrosis, has been seeking to join a clinical trial in hopes of finding a
