CysticLife
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Cystic Fibrosis
These Rich Guys Are the New Robin Hoods Saving Rare Patients
Let’s blow your mind for a minute. There are approximately 7,000 different types of rare diseases, and more being discovered every day. According to Global Genes,
The Best Revenge? Boy With CF Wins Iron Man’s Heart
Understanding of cystic fibrosis (CF) has, thankfully, come a long way from its earliest descriptions of children being “bewitched” or “hexed” because their sweat tasted of salt.
Concert Pharmaceuticals Initiates Phase 1 Multiple Ascending Dose Trial with CTP-656 for Cystic Fibrosis
“In the pipeline” are words that make the heartstrings of anyone living with a chronic, hard-to-treat disease go twanggggg. It’s Big Pharma lingo for “drugs
Looking at an Old CF Problem in a New Way
Like all genetic disorders, there aren’t many silver linings to having cystic fibrosis. The best we can say is that life expectancy for people with
What Do You Need to Know About New Cystic Fibrosis Treatment?
Okay, people in the CF Community, listen up! A new targeted treatment for Cystic Fibrosis (CF) may be on the horizon sooner vs. later, and I’m pretty
Why Is Canada the Place to be with CF?
Oh Canada, people think you’re all “please and thank you,” and maple syrup, but I know the truth: You’re a fighter and that fight is
