
Peter Frampton to Receive Award from Myositis Association
English-American guitarist, singer, and songwriter Peter Frampton is best known for his hit album “Frampton Comes Alive!” and his upbeat, immersive performances. But he is
GettingUp.Org, Inc. works to help educate the public and bring attention to rare adult onset conditions, specifically Inclusion Body Myositis. Our primary goals are to find treatments and cures through supporting research, identifying needs, advocating, and serving patients where we can. We are a 501(c)(3) nonprofit and appreciate both your volunteer time and financial support.
Here is a list of conditions this partner raises awareness and advocacy for:
English-American guitarist, singer, and songwriter Peter Frampton is best known for his hit album “Frampton Comes Alive!” and his upbeat, immersive performances. But he is
Arimoclomol is a treatment that is in development for ALS, Niemann-Pick disease type C (NPC), and inclusion body myositis (IBM). A recent Phase 2/3 trial
Orphazyme’s latest trial has ended in failure after arimoclomol, a possible treatment of inclusion body myositis (IBM), failed to meet any of its endpoints. As
Vance Robinson was diagnosed with inclusion body myositis over ten years ago, and since then he has worked to raise money and awareness. Pre-pandemic, Vance
Myositis Myositis is an autoimmune disease that leads to muscle damage. Patients live with chronic disability due to the symptoms of this rare condition. These include
Lisa Christopher-Stine is the Director of the Myositis Center at Johns Hopkins. She recently shared her biggest tips for patient care and some updates from
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