Global DARE (Defeat Adult Refsum Disease Everywhere) Foundation

Refsum disease is caused by a faulty gene (PHYH or PEX7) which results in the lack of an enzyme that doesn’t allow the oxidation of a fatty acid called Phytanic Acid and it accumulates in the blood and fat tissues. Phytanic acid is not produced in the body but found in many foods. The highest concentration of phytanic acid is found in dairy, beef, lamb and some fish.

Global DARE Foundation’s mission is to promote world-wide awareness and better quality of life for all who are diagnosed with Adult Refsum Disease.

Our goal is to support research, education initiatives, awareness campaigns, and advocacy. Driving research is at the center of what we do because we DARE to believe there is a cure for Adult Refsum Disease.

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

Resources & Support

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Patient Worthy Posts on Refsum Disease