Chronic Absentee With Poor Grades and HAE
As parents, we know our son, now fourteen, the best. And my husband and I had expected that at school, they could get to know
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HAE Junior
HAE Junior
HAE Junior is a patient organisation seeking to improve the quality of life of children & young people
suffering from hereditary angioedema (HAE). HAE is a rare and potentially life-threatening immune
disorder, causing recurring painful swellings on various parts of the body.
The organisation was established in Prague, in December 2019, by a group of parents of HAE pediatric
patients.
HAE Junior’s main goals are:
1. ADVOCATE for better access to modern HAE medicine, therapies and care.
2. INFORM & ADVISE in relation to HAE diagnose.
3. FOSTER patient networking (inter)nationally.
4. SUPPORT INCLUSION of HAE kids & youth.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on HAE
Phase 2 PHVS416 Trial for HAE Will Expand to US Enrollment
Over the last few months, researchers have been enrolling and dosing patients with hereditary angioedema (HAE) from Europe, Israel, and Canada within the Phase 2
My First HAE Symptom
The very first HAE symptom I had brought me to the operating table. Unnecessarily. It was summer, with holidays and grandmother’s birthday party- a big
Face to Face Against HAE
My nickname is Arti and I’m 11 years old. Because of my HAE diagnosis, I’ve been suffering from frequent and painful swellings since I was
HAE Junior’s Drawing Exhibition Unveiled the Dreams and Ambitions of Children Living With Hereditary Angioedema
HAE Junior’s drawing exhibition unveiled the dreams, wishes, and ambitions of children & teenagers living with hereditary angioedema (HAE). The patient organization HAE Junior organized
May 16 is HAE Day: Spreading Rare Disease Awareness
May 16 is recognized each year as HAE Day, a day dedicated to spreading awareness among the general public and the medical community about hereditary
