HAE Junior is a patient organisation seeking to improve the quality of life of children & young people
suffering from hereditary angioedema (HAE). HAE is a rare and potentially life-threatening immune
disorder, causing recurring painful swellings on various parts of the body.
The organisation was established in Prague, in December 2019, by a group of parents of HAE pediatric
patients.
HAE Junior’s main goals are:
1. ADVOCATE for better access to modern HAE medicine, therapies and care.
2. INFORM & ADVISE in relation to HAE diagnose.
3. FOSTER patient networking (inter)nationally.
4. SUPPORT INCLUSION of HAE kids & youth.
Here is a list of conditions this partner raises awareness and advocacy for:
In the past, there have been little to no concrete studies evaluating the relationship between hereditary angioedema (HAE) and cancer risk. However, researchers questioned whether
Hi! My name is Allison Lockwood and I have a rare blood disease called hereditary angioedema (HAE). This disease causes excessive swelling mainly to hands,
As parents, we know our son, now fourteen, the best. And my husband and I had expected that at school, they could get to know
Over the last few months, researchers have been enrolling and dosing patients with hereditary angioedema (HAE) from Europe, Israel, and Canada within the Phase 2
The very first HAE symptom I had brought me to the operating table. Unnecessarily. It was summer, with holidays and grandmother’s birthday party- a big
My nickname is Arti and I’m 11 years old. Because of my HAE diagnosis, I’ve been suffering from frequent and painful swellings since I was
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