The HCU Network America strives:

• to inform and provide resources for patients and families, create connections, influence state and federal policy, and support advancement of diagnosis and treatment for Homocystinuria and related disorders.
• to support research that improves diagnosis and treatment including a cure for the disease.
• to create connections across the community and facilitate sharing of information and best practices through in-person and virtual events and discussions.
• to assure all patients are diagnosed as early and efficiently as possible to enable access to care and avoid complications.
• to provide information and resources to better manage the disease. Resources include:
  • HCU treatment and dietary approaches
  • General disease management
  • Increased access for treatment and supplements
  • Research findings and opportunities for clinical trials