HCU Network America

The HCU Network America strives:

  • to inform and provide resources for patients and families, create connections, influence state and federal policy, and support advancement of diagnosis and treatment for Homocystinuria and related disorders.
  • to support research that improves diagnosis and treatment including a cure for the disease.
  • to create connections across the community and facilitate sharing of information and best practices through in-person and virtual events and discussions.
  • to assure all patients are diagnosed as early and efficiently as possible to enable access to care and avoid complications.
  • to provide information and resources to better manage the disease. Resources include:
    • HCU treatment and dietary approaches
    • General disease management
    • Increased access for treatment and supplements
    • Research findings and opportunities for clinical trials

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

Resources & Support

Connect With HCU Network America

Patient Worthy Posts on Homocystinuria