Studying Two Rare Diseases Simultaneously Led to Novel Findings
Innovation and Collaboration Macular telangiectasia type 2 (MacTel) is a rare eye disease that causes progressive vision loss as patients age. Paul Bernstein is a
- Rare Disease News
HSAN1E Society
HSAN1E Society
HSAN1E Society is a nonprofit organization with the purpose of raising awareness for Hereditary Sensory Autonomic Neuropathy Type 1E (HSAN1E). HSAN1E Society provides emotional support to families affected by HSAN1E. We also help facilitate research through education, contributions and donations.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Resources & Support
Patient Worthy Posts on HSAN1E & Hereditary Sensory Autonomic Neuropathy
Rare Genetic Disease Claims 12 Family Members
A California family has lost 12 family members to the newly discovered rare disease known as hereditary sensory and autonomic neuropathy type 1E (HSAN 1E),
