PBCers Organization
PBCers Organization is the largest primary biliary cholangitis (PBC) online support group worldwide, consisting of patients, families, and caregivers. The organization hopes that through education and discussions, “no one will feel alone with PBC.”
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Resources & Support
Patient Worthy Posts on Primary Biliary Cholangitis
Experimental Treatment for Primary Biliary Cholangitis Earns Orphan Drug Status in the US and EU
According to a story from Markets Insider, the biopharmaceutical company GENFIT recently announced that both the European Medicines Agency (EMA) and the US Food and
FDA Clears Phase 2 Trial for Possible Idiopathic Pulmonary Fibrosis Drug
According to a story from BioPortfolio, the biopharmaceutical company Genkyotex has recently announced that the US Food and Drug Administration (FDA) has approved the company’s
Positive Results in Mouse Model for Experimental Drug Treating Liver Scarring Associated With Nonalcoholic Steatohepatitis (NASH)
According to a story from globenewswire.com, the biopharmaceutical company ContraVir Pharmaceuticals, Inc. has recently announced that its experimental drug CRV431 was able to successfully decrease
Mouse Model Continues to Show Efficacy of GKT831 for Treating Cholestatic Fibrosis in Primary Biliary Cholangitis
Preclinical data supporting the efficacy of GKT831 as a potential therapy for cholestatic fibrosis has just been published in the Journal of Hepatology. GKT831 GKT831 is
New Potential Primary Biliary Cholangitis Treatment Granted Breakthrough Therapy Designation
Researchers at GENFIT are excited about promising results from studies investigating a new potential therapy for PBC and NASH, two rare liver diseases. Primary Biliary
The Struggles of being a Rare Disease Patient in China
The State of Rare Diseases in China The Illness Challenge Foundation (ICF) is an organization devoted to easing the burdens that rare disease patients living
