PBCers Organization
PBCers Organization is the largest primary biliary cholangitis (PBC) online support group worldwide, consisting of patients, families, and caregivers. The organization hopes that through education and discussions, “no one will feel alone with PBC.”
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Resources & Support
Patient Worthy Posts on Primary Biliary Cholangitis
The Struggles of being a Rare Disease Patient in China
The State of Rare Diseases in China The Illness Challenge Foundation (ICF) is an organization devoted to easing the burdens that rare disease patients living
Making Strides Towards New Treatment Options for Nonalcoholic Steatohepatitis
Nonalcoholic steatohepatitis (NASH), is condition most commonly caused by obesity or type 2 diabetes. It can result in fibrosis, complications in the lung and cardiac
Experimental Treatment for Biliary Atresia Gets Orphan Drug Designation in the EU
According to a story from Market Screener, the drug developer Albireo Pharma, Inc., recently announced that its investigational product candidate A4250 has earned Orphan Drug
Updates on a Study of a Drug For Primary Biliary Cholangitis
An on-going study of an investigational drug for primary biliary cholangitis has been given the go-ahead to continue by a safety monitoring board. The planned
A Study of a Potential Drug for Primary Biliary Cholangitis has Exceeded its Patient Enrolment Target
The company Genkyotex has announced that they have finished enrolling participants for a Phase 2 clinical trial of the investigational drug GKT831 in patients who
September is Primary Biliary Cholangitis (PBC) Awareness Month!
September is Primary Biliary Cholangitis Awareness Month! What is PBC? Primary biliary cholangitis (PBC) is a chronic disease of the liver characterized by a slow, progressive
