Personalize My Medicine
Personalize My Medicine works to help bridge the information gap between the explosion in medical innovations and the researchers, doctors, and patients who want to apply this information to their work and life, thus placing patients at the center of medical advancements. The goal of Personalize My Medicine is to solve this problem by creating a patient-centered medicine approach, in which patients have better access to innovations and actively participate in making them available.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Patient Worthy Posts on Rare Disease and Medication
Early Gene Therapy Trial Brings New Hope for Tay-Sachs and Sandhoff Diseases
A recent Phase I/II clinical study led by UMass Chan Medical School has shown encouraging results for a gene therapy targeting GM2 gangliosidosis, a group
Zebrafish Models Spark Hope for Treating Rare Lymphatic Disease KLA
A groundbreaking study from the Weizmann Institute of Science and Sheba Medical Center has brought renewed hope for children with kaposiform lymphangiomatosis (KLA), a rare
The FDA Now Requires Increased MRI Monitoring for Alzheimer’s Patients Who Are Treated with Leqembi
After the death of six patients, the FDA has announced that it will require earlier and more frequent monitoring of the monoclonal antibody Leqembi, the
Lenacapavir Set to Lead South Africa’s HIV Prevention Revolution Amid CAB-LA Setbacks
South Africa is on the brink of a major shift in HIV prevention, with plans to introduce lenacapavir—a twice-yearly injectable—at select public clinics by April
August Marks Milestone Month for Rare Disease Treatments with Four FDA Firsts
August 2025 was a landmark month for rare disease innovation, as the U.S. Food and Drug Administration (FDA) granted four historic approvals, each representing a
Denmark Researchers Have Created a Light-Based Technology That Improves Cognitive Function for Alzheimer’s Patients
Researchers at UC Berkeley, DTU, and OptoCeutics in Denmark have created a non-medical light-based technology that improved cognitive function for Alzheimer’s patients who have participated
