PFIC Advocacy & Resource Network

The PFIC Network works hard to not only understand Progressive Familial Intrahepatic Cholestasis (PFIC), but also the needs of the PFIC community. To document these needs in an effort to fill knowledge and resource gaps. Our organization is based in the US; however, our efforts extend internationally as we continue to work with families in all areas of the world to assist in finding solutions for our rare community. We plan to further our organizations mission by continuing to provide programs, advocate, work to advance research, and support the needs of the patient and healthcare community. Together, we will make a difference.

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

Resources & Support

Connect With NCBRS Worldwide Foundation

Patient Worthy Posts on Progressive Familial Intrahepatic Cholestasis (PFIC)