The PTEN Hamartoma Tumor Syndrome Foundation
The PTEN Hamartoma Tumor Syndrome Foundation was founded to find treatments or therapies for PTEN Syndromes by funding research, providing PHTS education, supporting patients, and by raising awareness. PHTS includes Cowden syndrome (CS), Bannayan-Riley-Ruvalcaba syndrome (BRRS), PTEN-related Proteus syndrome (PS), and Proteus-like syndrome. We are dedicated to supporting our community through making connections, collaborating with research teams and working toward a treatment or cure. Our impact statement is Being Bold for Change.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Connect With The PTEN Hamartoma Tumor Syndrome Foundation
Patient Worthy Posts on PTEN Syndromes
According to a story from Vector, a patient in an early experimental trial for a potential treatment for PTEN hamartoma tumor syndrome appears to be
The PTEN Hamartoma Tumor Syndrome Foundation is facilitating a patient symposium, themed “Knowledge is Power”, March 25-26th in Huntsville, Alabama. The event will begin with a