The PTEN Hamartoma Tumor Syndrome Foundation

The PTEN Hamartoma Tumor Syndrome Foundation was founded to find treatments or therapies for PTEN Syndromes by funding research, providing PHTS education, supporting patients, and by raising awareness. PHTS includes Cowden syndrome (CS), Bannayan-Riley-Ruvalcaba syndrome (BRRS), PTEN-related Proteus syndrome (PS), and Proteus-like syndrome. We are dedicated to supporting our community through making connections, collaborating with research teams and working toward a treatment or cure. Our impact statement is Being Bold for Change.

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

  • PTEN Syndromes
  • Cowden Syndrome (CS)
  • Bannayan-Riley-Ruvalcaba syndrome (BRRS)
  • PTEN-related Proteus syndrome (PS)
  • Proteus-like syndrome

Resources & Support

Connect With The PTEN Hamartoma Tumor Syndrome Foundation

Patient Worthy Posts on PTEN Syndromes

We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

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