ABOUT SYNGAP RESEARCH FUND
SRF, incorporated in 2018, is a 501(c)(3) public charity. Their mission is to improve the quality of life of SYNGAP1 patients through the research and development of treatments, therapies and support systems. Completely parent-led, SRF is the largest non-government funder of SynGAP research with over $1M in grants. The founders cover all operational costs, allowing 100% of donations to go to research. SRF is a member of the American Brain Coalition, COMBINEDbrain, Global Genes Foundation Alliance, Personalized Medicine Coalition and the SynGAP Global Network. SRF’s mantra is Collaboration. Transparency. Urgency.
Here is a list of conditions this partner raises awareness and advocacy for:
A concerned Texas mom finally has answers about the cause of her son’s sensory-processing problems, thanks to a special collaboration among her patient-advocacy group and
In a recent press release, the SynGAP Research Fund (SRF) shared that the Heller Laboratory of Neuroepigenetics would receive a $130,000 research grant. The fund,
On September 2, 2021, Patient Worthy attended a webinar from the SYNGAP Research Fund titled “Treatments in Development for Epilepsy Syndromes: Opportunities for SYNGAP1.” This
Stoke Therapeutics and Acadia Pharmaceuticals made a joint announcement this week through Business Wire of their collaboration in the development of RNA-based medicines to potentially
The number of identified rare diseases continues to climb every year, with the number recently reaching the 11,000+ mark. Some of them have only a
Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on
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