The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone.
Please visit www.FSHDSociety.org for more information and to access our arsenal of resources and support.
Here is a list of conditions this partner raises awareness and advocacy for:
Chip Wilson, billionaire founder of Lululemon Athletica, was first diagnosed with muscular dystrophy in 1987 at the age of 32. Wilson, who is now
This year, the American Society of Gene & Cell Therapy (ASGCT) held its 26th annual meeting from May 16 through May 20, 2023. In
A January 2023 news release from biopharmaceutical company Avidity Biosciences, Inc. (“Avidity”) shares that the company’s therapy, AOC 1020, earned Fast Track designation from the
Actor Max Adler is known for a variety of roles in films and TV shows such as Glee, Saugatuck Cures, and Switched at Birth.
As part of its 2022 webinar series, the Rare Disease Cures Accelerator Data and Analytics Platform (RDCA-DAP) hosted a webinar on August 17, 2022 titled
In a news release, biopharmaceutical company Fulcrum Therapeutics, Inc. (“Fulcrum”) shared that the first patient was dosed in the Phase 3 REACH study. Within
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