Julia Smith was diagnosed with Glanzmann thrombasthenia (GT) at the tender young age of six months through a series of fortunate events. First, her mother Helen,
The Glanzmann’s Research Foundation
The Glanzmann’s Research Foundation exists to increase awareness of Glanzmann’s Thrombasthenia, provide a network of support for families navigating through a GT diagnosis, and raise funding to find a cure.
If you have found the GRF because you or a loved one have recently been diagnosed with GT, we want to let you know that you are not alone. We have a vibrant community of GT patients and their caregivers who are ready to share their stories, experiences, and remedies with you.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Connect With the Glanzmann’s Research Foundation
Patient Worthy Posts on Glanzmann's Thrombathenia
Glanzmann’s thrombasthenia (GT) is an inherited autosomal disorder that begins at birth. It causes prolonged or spontaneous bleeding and affects one out of one million people. Patients
To read our primer on Hemophilia, click here and to read our primer on von Willebrand click here. These next three bleeding disorders – grouped under
In a news release from May 18, 2021, biopharmaceutical company Catalyst Biosciences, Inc. (“Catalyst”) shared that the first patient was dosed in the Phase