July 13th is GIST Awareness Day!
Did you know that July is widely considered to be Sarcoma Awareness Month? During this month, many stakeholders – from patients to researchers – aim
- Rare Disease News
- [email protected]
The Life Raft Group
The Life Raft Group
GISTs belong to a group of cancers called soft tissue sarcomas. Sarcomas are less-common cancers that develop in connective or supporting tissues. Sarcomas are derived from the general class of cells known as “mesenchymal cells”, found in bone, muscle, fat, cartilage, etc.
The Life Raft Group is global patient advocacy group dedicated to enhancing the survival and quality of life for people living with GIST through patient-powered research, education and empowerment, and global advocacy efforts. The LRG vision is to champion patient-powered science and drastically increase long-term survivorship for GIST patients throughout the world. Our community strives for each patient to have support, access to treatment, and to know that they are not alone.
You can contact us at: [email protected]
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Resources & Support
Patient Worthy Posts on GIST
ICYMI: QINLOCK Approved in UK for GISTs
In late December 2021, biopharmaceutical company Deciphera Pharmaceuticals, Inc. (“Deciphera”) shared that its therapy QINLOCK (ripretinib) was approved in the United Kingdom. The treatment is
July 13 is GIST Awareness Day: Spreading Rare Disease Awareness
July 13th 2021 will be recognized as GIST Awareness Day. This is a day set aside to help spread awareness about gastrointestinal stromal tumor (GIST),
Ayvakit for Gastrointestinal Stromal Tumors Approved in China
According to a story from Markets Insider, the biopharmaceutical company CStone Pharmaceuticals has announced that China’s National Medical Products Administration (NMPA) has approved avapritinib (marketed
Living with Gastrointestinal Stromal Tumors: A Rare Patient Story
Rebecca Newsome lives with a rare form of cancer called gastrointestinal stromal tumors (GISTs). In this story, she talks about her experiences as a patient
Rare Classroom: Gastrointestinal Stromal Tumor
Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on
