The Myelodysplastic Syndromes (MDS) Foundation
The Myelodysplastic Syndromes (MDS) Foundation was created by a group of international physicians and researchers who wanted to make sure that information about MDS was always available. Now, the organization has developed to include patient advocacy groups, research funding, and educational initiatives. In addition, the MDS Foundation works to set up an international information network to contact patients for available clinical trials, thus sharing new treatment options in the community.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Resources & Support
Patient Worthy Posts on Myelodysplastic syndromes
Immunotherapy Elicits Positive Response in Acute Myeloid Leukemia and Myelodysplastic Syndromes Patients
According to a story from mdmag.com, a recent study that was presented at the 2019 meeting of the American Society of Clinical Oncology has demonstrated
Extremely Positive Results Announced from Interim Analysis of Phase 2 Clinical Trial for Hemochromatosis
Hereditary Hemochromatosis Hereditary hemochromatosis (HH) is a rare disease caused by hepcidin deficiency or hepcidin insensitivity. Hepcidin naturally regulates iron absorption/distribution in the body. Without
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A Look at Progress in Healthcare and a Glimpse into the Future
The Asco Post recently interviewed Dr. Jean Pierre Bizzari, the Executive Vice President of Celgene, a multinational bioparmaceutical company. The interview covered various aspects
Free MDS Foundation Forum in MD!
Patient Worthy’s partner the MDS Foundation is hosting a MDS Patient & Family/Caregiver Forum Baltimore, Maryland in conjunction with the University of Maryland Marlene and
Study Indicates More Research is Needed on Transgender Acute Myeloid Leukemia Patients to Improve Patient Care
In a world that is just beginning to make space for the open discussion of transgender individual’s life experiences, there’s still a huge gap in
Feasibility of Personalized Medicine for Myelodysplastic Syndromes Confirmed by Study
Personalized medicine is the latest craze in patient care. In essence, it refers to the development of treatment options which take into account the patient
