The Myelodysplastic Syndromes (MDS) Foundation
The Myelodysplastic Syndromes (MDS) Foundation was created by a group of international physicians and researchers who wanted to make sure that information about MDS was always available. Now, the organization has developed to include patient advocacy groups, research funding, and educational initiatives. In addition, the MDS Foundation works to set up an international information network to contact patients for available clinical trials, thus sharing new treatment options in the community.
Condition Awareness & Advocacy
Here is a list of conditions this partner raises awareness and advocacy for:
Resources & Support
Patient Worthy Posts on Myelodysplastic syndromes
Free MDS Forum in TN!
Our partner organization, The MDS Foundation, Inc., is sponsoring another free myelodysplastic syndromes (MDS) Patient & Family/Caregiver Forum in Nashville, Tennessee. When: Thurs., September 19,
FDA Approves an Experimental Treatment of Various Blood Malignancies for Clinical Trials
According to a story from First World Pharma, the biopharmaceutical company Mustang Bio, Inc. recently announced that the US Food and Drug Administration (FDA) has
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The Controversy Surrounding Stem Cell Transplants
Genomic studies and advances in technology have increased researchers’ knowledge of several genetic syndromes that put people at risk for acute myeloid leukemia (AML).
FREE MDS Forum in Seattle!
Our partner, The MDS Foundation is sponsoring another free MDS Patient & Family/Caregiver Forum. The event will take place in Seattle, Washington on August 10th,
Tips by a Myelodysplastic Syndromes Patient on How to Navigate the Internet When Researching Your Rare Disease
Jane Biehl Jane Biehl has worked as a professor, rehabilitation counselor, and a librarian. She holds three different degrees, and spreads her knowledge through freelance
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The New 5F9 Antibody Looks Encouraging as it Targets MDS and AML Leukemia in a Phase 1b Clinical Trial
The California Institute for Regenerative Medicine (CIRM) has funded a study by a company called Forty Seven, Inc. The clinical trial is investigating the benefits of a
