When Stephanie Ernst-Milner first discovered that she was having twins, she was speechless. But what she learned over the course of her pregnancy, and in
The TAPS Support Foundation
Not all twins are equal. The complications associated with monochorionic twins inspire The TAPS Support Foundation to raise awareness of the differences in twin pregnancies and advocate for routine, standardized screening protocols worldwide. We want to bring positive change to the way twins are diagnosed, cared for, and improve their long-term outcomes. This starts with raising awareness of Twin Anemia Polycythemia Sequence, advocating for policy changes worldwide, and creating meaningful dialogues between politicians, researchers, doctors, and TAPS patients. Through our advocacy website, we provide free resources to patients, and our foundation website highlights the projects we work on to raise awareness and support research.
Condition Awareness & Advocacy
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Patient Worthy Posts on TAPS
Broadening Perspectives and Changing Conventional Approaches – How Patient Groups Can Help Medical Teams.
In an earlier article, I’ve spoken about the power of Google and how it can benefit both patients and medical providers. Through the power of
In 2006, a new, rare disease affecting monochorionic twins was identified and named. Twin Anemia Polycythemia Sequence (TAPS) changed the perception of the complications of
In this digital age, rare disease issues have become more prevalent and more visible. According to Eurordis, a rare disease affects less than 1 in
In a previous article, I talked about the importance of patient-led advocacy groups and how they can positively impact how a rare diagnosis is received