March 3rd is International TAPS Day 2022
March 3, 2022 is being recognized at International TAPS Day, a time to spread awareness among the general public and the medical field about twin
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The TAPS Support Foundation
The TAPS Support Foundation
Not all twins are equal. The complications associated with monochorionic twins inspire The TAPS Support Foundation to raise awareness of the differences in twin pregnancies and advocate for routine, standardized screening protocols worldwide. We want to bring positive change to the way twins are diagnosed, cared for, and improve their long-term outcomes. This starts with raising awareness of Twin Anemia Polycythemia Sequence, advocating for policy changes worldwide, and creating meaningful dialogues between politicians, researchers, doctors, and TAPS patients. Through our advocacy website, we provide free resources to patients, and our foundation website highlights the projects we work on to raise awareness and support research.
Patient Worthy Posts on TAPS
The Lessons I Learned From a Twin Anemia Polycythemia Sequence Diagnosis
A rare disease diagnosis changes your life. As I look back on eight years of twin anemia polycythemia sequence and its impact on my girls,
TAPS Support Foundation Twin Talks Webinars
In an innovative collaboration, the TAPS Support Foundation and the Fetal Therapy team from the Leiden University Medical Center announced today a new joint initiative
Redefining TAPS: How Stephanie and the TAPS Support Foundation Raise Awareness
When Stephanie Ernst-Milner first discovered that she was having twins, she was speechless. But what she learned over the course of her pregnancy, and in
Broadening Perspectives and Changing Conventional Approaches – How Patient Groups Can Help Medical Teams.
In an earlier article, I’ve spoken about the power of Google and how it can benefit both patients and medical providers. Through the power of
What Is The Best Treatment For Twin Anemia Polycythemia Sequence? A Look At The TAPS Trial
In 2006, a new, rare disease affecting monochorionic twins was identified and named. Twin Anemia Polycythemia Sequence (TAPS) changed the perception of the complications of
