Usher 1F Collaborative is a U.S. nonprofit foundation whose mission is to fund medical research to save or restore the vision of those with Usher Syndrome type 1F. When we began in 2013, there was no research specific to Usher 1F. Since then, patients and families working together with scientists have brought about the development of gene, drug, and stem cell therapies at eight research labs around the world. If you or a family member has Usher 1F, please join us in our work to find a cure. Visit our website at https://www.usher1f.org and email us at info@usher1f.org
Here is a list of conditions this partner raises awareness and advocacy for:
According to a news release from RNA therapeutics company ProQR Therapeutics N.V. (“ProQR”), the first patients have been dosed in two Phase 2/3 clinical
At Patient Worthy, we love to see patient advocates and the impact that these advocates have on their communities. For example, brothers Ethan and Gavin
Becca Meyers, a 26-year-old swimmer who was born deaf, has just been told she can’t bring her care assistant to the Tokyo Games. As a
The Usher 1F Collaborative has recently announced the opening of registration for its scientific conference titled “Therapeutic Strategies for Large Protein Coding Genes in Usher
Welcome to the Rare Classroom, a new series from Patient Worthy. Rare Classroom is designed for the curious reader who wants to get informed on
Genetic Counselors are an incredible resource – they can help assess your risk of developing a condition, the risk of your children inheriting a condition,
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