Usher 1F Collaborative

Usher 1F Collaborative is a U.S. nonprofit foundation whose mission is to fund medical research to save or restore the vision of those with Usher Syndrome type 1F. When we began in 2013, there was no research specific to Usher 1F. Since then, patients and families working together with scientists have brought about the development of gene, drug, and stem cell therapies at eight research labs around the world. If you or a family member has Usher 1F, please join us in our work to find a cure. Visit our website at and email us at [email protected]

Condition Awareness & Advocacy

Here is a list of conditions this partner raises awareness and advocacy for: 

Resources & Support

Patient Worthy Posts on Usher Syndrome